We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and @TurningStone sales, catering and golf staff.

TY, Governor @GavinNewsom, for signing #SB41 (@Scott_Wiener)!👏This bill protects patients & pharmacies by holding PBMs accountable. This is a huge win for everyone who cares about fair access to medicine and better healthcare. @SFAIDSFound @LALGBTCenter https://t.co/y5RabwpJU6

🎉 Huge win! We are thrilled @CAgovernor has signed #SB41(@Scott_Wiener) into law! This imp bill is a big step toward lowering meds costs by regulating the practices of pharmacy benefit managers (PBMs) TY to everyone who stood with us to make this happen!  https://t.co/y5RabwpJU6

@Smith1988101 @PM_ViktorOrban It needs to end already and there will be no winners. It should have never started to begin with. At this point, Peace and compromise out ways picking sides. The senseless killing needs to end immediately. President Trump will get this conflict resolved! The EU has proven itself

3No one should pay twice for their meds! States must require cash payments count toward deductibles and OOP max. Thanks @mcubanfor leading the charge. Ohio can take action now! @Rob_McColley@BillReineke @SteveWilsonOH@LangforOhio @manningforOhiod#OHSB207 #AllCopaysCount

We’re calling on every senator: Do the right thing for Wisconsin families. Pass #SB203 today. @WisSenGOP @SenateDemsWI

✅ Happy to discuss with the #Rheumatology colleagues of Bulgaria that no dose of glucocorticoids is safe or innocent in #Lupus. In our recent nation-wide study in France (~30 000 patients with #SLE) we detected that even mean GC doses 1-5mg/day were associated with complications

This is more than just four quarters. It’s every tailgate, every chant, every moment. It’s fuel that goes beyond the field. This is CELSIUS! LIVE. FIT. GO.

Purple 💜 💪 Power Hispanic Heritage Month Every day, we see the strength Every week, we see Hope Every month, we need to make #Lupus visible #LupusAwareness is a continuous journey of compassion and support. Thank you Washington School #Lupuschat

•Dr. Maria Lopez exposes PBMs’ unregulated control, profiting off the backs of patients. @CAgovernor, #SB41 will bring accountability to California’s prescription drug market and ensure better access for underserved communities.

Thanks to action in @WaysandMeansGOP @WaysMeansCmte and @HouseCommerce @EnergyCommerce, the #MCEDAct is moving forward. The Senate must take the next step for patients everywhere. @gillibrandny @SenSchumer

We’ve reached the biggest milestone yet: the #MCEDAct has 2/3rds support in both chambers. With @WaysMeansCmte markup + @HouseCommerce hearing this week, Congress must finish the job. Thank you @RepTomSuozzi @RepNicole @RepTenney @RepAOC @RepLangworthy for leading the charge!

Join @obesityaction @OMAsocial on 9/23 to learn about the #obesity medicine landscape in 2025. Hear from patients, providers, and policy experts on the challenges facing people with obesity and get ready to advocate for change. Register now!

The 7th SLEuro Advanced Workshop on SLE has started today in Tallinn (Estonia)! The 30 selected participants from all over the world and the Speakers are here with us for this interactive 2-day workshop about lupus ✅ #SLEuroWorkshop #lupus

✅ Very happy to be organizing the 7th @SLEuroSociety Advanced #Lupus #Workshop in Tallinn, Estonia, with the amazing Sandra Meisalu and our great #SLEeuro team! We will discuss complex #SLE situations with 30 lucky participants 👍 to improve care & knowledge.

States are losing billions in Medicaid savings due to 340B Program loopholes. In 2024 alone, states missed out on $2.3B in rebates, money that could support vulnerable patients.    @SenBillCassidy @SenMullin @SenAshleyMoody it's time to #Fix340B. https://t.co/7LIT0Fbrnq

Advocates are celebrating a major milestone: 290+ House and 60 Senate cosponsors for the #MCED Act. But cosponsors don’t save lives—passing the bill does. @SenSchumer @RepJeffries @SpeakerJohnson @SteveScalise. Congress must act now. Let’s get this done in 2025.

Childhood pain is real—and relentless. 53% say it never stops. 1 in 10 say nothing helps. This isn’t “growing pains.” It’s a care crisis. Read their stories: https://t.co/j22gaiwAwN #ThisIsPain #PediatricPain #PainAwarenessMonth #UnmaskingPain

Join @obesityaction @OMAsocial on 9/23 to learn about the #obesity medicine landscape in 2025. Hear from patients, providers, and policy experts on the challenges facing people with obesity and get ready to advocate for change. Register now!

Spot on from @mcuban. The “EHB loophole” is “PBM shenanigans” that the Trump Administration must address. @USDOL @SecretaryLCD we urge you to close the EHB loophole to protect patients from this harmful scheme. #AllCopaysCount

September is Pain Awareness Month—and we’re Unmasking Pain. Behind every chart is a life. Behind every stat, a story. Learn more: https://t.co/Y0ulMcqAde #ThisIsPain #UnmaskingPain #PainAwarenessMonth #USPainFoundation

Love wasting hours applying online just to hear nothing back? Yeah, engineers don’t either.

Thank you, @RepDavidValadao, for meeting with California advocates to discuss #PBMReform and the #MCEDAct. Your support of these patient-centered policies will help improve access for rare and chronic disease patients throughout the country.

@LADAOrg @Annezab @TurningStone @KathleenArntsen @SandiFrear @MasonicResearch @mkontari @LupusResearch @carrainc @RheumResearch @US_Pain @JessBateman02 Congratulations! So glad of the work you're doing and the generosity of your community. Let's find a Cure or Treatment for lupus in the near future. Gerardo from Lovely San Diego, CA 😍 .