Lupus Association
@LADAOrg
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Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.
Verona, NY
Joined October 2016
#LADAOrg is honored to sponsor #LUPUS2025 and bring our mighty team to learn, engage, and share insights. #Lupus @Lupus_Chat @CoLN2007 @CaringForLupus @KathleenArntsen @Dave_Arntsen @Annezab @TiffanyAndLupus @MilDiva81 @whitneywarriors @AutumnAustin616 Dina Thachet, Evanne Grate
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RT @Lupusreference: ✅ Very happy to report that we have completed the #LBFSS study STEP2!! An international panel of experts 🧑🎓 & patients….
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RT @DBogdanos: 🚨 New meta-analysis: Circulating follicular helper T (cTfh) cells are significantly increased in SLE patients, highlighting….
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RT @SAFEbiologics: @GlobalCRC's @AndrewRSpiegel discusses how importing European-style price controls via the "most favored nation" #MFN d….
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Large PBMs and their unfair business practices are forcing community pharmacies, like Ten Acres in Sacramento, out of business. SB 41 will improve transparency into drug costs and provide true accountability.
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RT @SAFEbiologics: @WarOnCancer ICAN's @marciakhorn discusses how the "most favored nation" #MFN drug pricing disincentivizes new drug deve….
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The 340B Program’s rapid expansion has been linked to insurance premium increases of $22 billion a year, costing families $415/year. This was never the goal. @SenMullin please support #340BReform to restore integrity & reinvest savings in care.
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RT @SAFEbiologics: Insurer, PBMs & manufacturer “advocacy groups" want to gut current FDA safeguards for interchangeable #biosimilars to ov….
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RT @SAFEbiologics: Insurers, PBMs & manufacturers want to gut current FDA safeguards for interchangeable biosimilars—to override state pati….
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We urge @CongBoyle to stand with pharmacists and seniors by cosponsoring #HR3164. This bill is key to strengthening access to care in Pennsylvania and across the U.S.
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RT @DBogdanos: 🚀 Discover the Promising Role of GLP-1 Antagonists in Rheumatology: the pros and cons! A joint recent publication with Drs B….
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RT @ACRheumDC: The ACR is disappointed Congress passed the #BigBeautifulBill, which could jeopardize Medicaid access for 11.8M Americans (r….
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RT @aimedalliance: The U.S. House of Representatives will vote any day now on a bill that will kick millions off Medicaid and increase heal….
act.fightcancer.org
ACS CAN is the leading cancer advocacy organization that is working every day to make cancer issues a national priority.
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RT @Lupusreference: ✅ Very happy to report that we have completed STEP 2 of #LUPUSALERT, asking a large international panel to triage & pri….
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RT @Lupusreference: ✅ Check my visual summary for the @ACRheum #recommendations for the screening 🔎 and treatment 💊 of #LUPUS #NEPHRITIS ⬇️….
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Louisiana is facing high drug prices, thanks to PBMs’ control over prescription costs. @LAGovJeffLandry, please continue to push for #PBM reform, ensuring compensation isn't linked to drug prices to reduce the financial burden on patients. #LALeg.
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Please join us in urging @RepLindaSanchez to cosponsor #HR3164. Seniors in California and across the country deserve access to prompt, essential care from pharmacists. Learn more about #HR3164 here: @GHLForg
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We are one of 77 groups urging @SenRickScott and@SenAshleyMoody to reject proposed federal cuts to health care and SNAP. Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted.
floridapolicy.org
Proposed cuts would have devastating impacts on Florida families.
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RT @KathleenArntsen: Check out the video from #BIO2025 from my interview with @OshmanAdvocate about the importance of the #patientperspec….
linkedin.com
I am incredibly honored to be included in Biotechnology Innovation Organization’s events as both the leader of Lupus and Allied Diseases Association, Inc. and as a patient representative to share my...
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RT @KathleenArntsen: Thank you to @IAmBiotech and @OshmanAdvocate for giving me the opportunity to share my #Autoimmune journey at #BIO2025….
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