
CARRA
@carrainc
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We conduct collaborative research to prevent, treat and cure pediatric rheumatic diseases. A world free of limitations from pediatric rheumatic diseases.
Washington, DC
Joined April 2016
💙 Today is World Young Rheumatic Diseases Day (aka World JA Day)! 💚 Please join us in recognizing the kids who face these complex diseases with courage, resilience, and hope. 🙌 Check out our video to highlight their experiences! ➡️ #WORDDay2024.
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RT @ACRheum: For patients & families struggling with rare diseases, our latest guest has some insight on what to do. LISTEN → https://t.co/….
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đź’ˇCheck out the latest interview with two CARRA researchers who are leading the way to transform #mentalhealth in #pedsrheum through proactive screening and collaborative care. đź’™.
healio.com
Proactive screening and ongoing assessment are critical to mitigating mental health concerns in pediatric rheumatology patient populations, according to new consensus guidance statements from the...
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RT @AAlliance_SAID: Thanks so much @ACRheum for the interview ! We appreciate you,& for sharing this during Int'l #Autoinflammatory Awarene….
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💡Check out this international collaboration from CARRA and the Paediatric Rheumatology European Society (PReS). 🌍 Researchers in the United States and Europe investigated the use of JAK inhibitors to treat juvenile dermatomyositis (JDM). Read more ➡️
pubmed.ncbi.nlm.nih.gov
Paediatric rheumatologists use JAKi off-label for refractory JDM. Most providers noted clinical improvement in their patients. Barriers to JAKi use include lack of clinical data and insurance...
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RT @DBogdanos: I’m (we are) profoundly grateful and inspired by patients who, despite their own suffering, are raising funds to advance cli….
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RT @PeDRAResearch: 🙌 We’re grateful for the leadership of #PeDRA2025! Our Conference Co-chairs and Meetings Committee members assembled a l….
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RT @GracefullyJen: Excited to moderate the #ANRF Researcher Spotlight Series on August 27. I’ll be sharing my OA story + helping guide the….
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RT @Fight_CRMO: Clinical characteristics and prognosis of patients with chronic recurrent multifocal osteomyelitis based on cluster analysi….
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🌟We’re thrilled to announce that CARRA has once again earned a 4-star rating from @CharityNav – the highest possible score! This marks our third consecutive year receiving this top distinction, reflecting our continued commitment to accountability and transparency.
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🎉 Congratulations Joy Um, M.D., of @WashU on her 2025 CARRA-@ArthritisFdn Grant! Dr. Um was awarded a Fellow Grant to support her research “Investigating the Role of Pathogenic CD8 T Cells in HLA-B27 Positive Juvenile Spondyloarthritis​.” . Read more➡️
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🎉 Congratulations to Sahar Lotfi-Emran, M.D., Ph.D., of @NIH_NIAMS, on her 2025 CARRA-@ArthritisFdn Grant award!. 🌟Read more about the 2025 CARRA-Arthritis Foundation Grant awardees. ➡️ #pedsrheum, #rheumatology, #kidsgetarthritistoo
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🎉 Congratulations to Hanna Saltzman, M.D., of @UofUPedsRheum on her 2025 CARRA-@ArthritisFdn Grant! This grant will support her research into developing a patient-oriented, nature-based intervention for adolescents with Juvenile Idiopathic Arthritis​. ➡️
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RT @CuoghiE: Research study for teens and young adults with #Pediatric #Lupus or their parents . #cSLE #kidsgetlupustoo #lupusresearch #lup….
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RT @PReSLupusWP: 🌟 Exciting news 🌟 The PReS Lupus Working Party is now on LinkedIn! Let’s connect to support, share, and advance childhood-….
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RT @ACRheum: Calling all #pedsrheum professionals! SAVE THE DATE for #PRSYM26, March 18-21, 2026, in Minneapolis. You won’t want to miss th….
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🎙️Check out this @HCPLiveNews interview with Dr. Karen Onel on the challenges of transitioning to adult care. ➡️ 💚 Thank you to the @ArthritisFdn for raising awareness about this important issue during #JAAwarenessMonth! #KidsGetArthritisToo.
hcplive.com
July is Juvenile Arthritis Month and Onel discussed complexities of transitioning care.
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🌏 Dr. Timothy Beukelman, CARRA Registry Scientific Director, recently spoke to @JAFAforkids in Adelaide, Australia about how CARRA established a distinctive and effective model for partnering with patients and caregivers at every stage of the research process.💙
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