JellyBabyKid
@JBKid7
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Reader. Writer. Endless tea drinker. Whovian till I die. Trekkie. Activist. PwME. PTSD. Rock fan. OU grad (She/they)
Attic of Books
Joined June 2012
I think our benefits system should treat us all with dignity and respect, not suspicion. I added my name to this open letter to Pat McFadden. Will you join me to send a clear message to government? Add your name to help #StopTheStigma and #FixTheSystem.
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June 30 + 22ā¦ š„³ Iām hugely relieved that DHSC is apparently publishing the Final Delivery Plan today. But itās contemptuous that it is only being released as the long Summer Recess starts, depriving MPs of the opportunity for proper scrutiny. https://t.co/DBcgmUZBh7
gov.uk
Better care for patients living with myalgic encephalomyelitis/chronic fatigue syndrome, with plans to invest in research and offer care closer to home.
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@tessamunt @HelenMorganMP @wesstreeting Iām glad the #infectedbloodscandal victims are finally getting somewhere,Iām glad the #PostOfficeScandal victims are finally getting somewhere,but when will the victims of the #GreatestMEdicalScandal finally get somewhere?!When will we get our justice,treatments,acknowledgment?!
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Whatever peopleās views about the concessions, surely everyone can see the process here is ALL wrong? Third Reading in eight days? A timetable like that diminishes the role of MPs in getting this legislation right, shuts out disabled people and puts too many at risk.
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Just to be very clear, the amended and then amended again āpathways to workā green paper remains an undemocratic travesty that will push 100,000s into worse precarity and cause huge mental and physical damage. It is vital that it is voted down. #TakingThePIP
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NEW YouGov poll: Most Britons oppose cutting disability benefits. š¹ 53% oppose any cuts to support for disabled people who can work. š¹ 74% oppose cuts hitting those who canāt work. @UKLabour, whose side are you on? #TakingThePIP
yougov.co.uk
But half of the public feel recent rise in claimants is not due to genuine health problems
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A lot of people end up in hospital, get iller, self-harm more and some die by suicide if they need to appeal. This is not hyperbole, I can (literally) send you the āprevention of future deathsā reports if a MP. Most cases fail at MR and have to go to tribunal. That takes a year.
The government argues its PIP cuts won't hit as many people as feared because applicants will appeal against rejections But DWP figures show a ten-month average wait for appeals. And that's before demand rises with the cuts By me, for Big Issue
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@NadiaWhittomeMP They'll force through the 4-Point rule tomorrow and then move the goalposts in the PIP review, gerrymandering all the descriptors and points system to push the majority of new claimants below the threshold. #TakingThePIP
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@tessamunt @HelenMorganMP If theyāre not going to invest in services to support pwME, or find treatments to help us live better lives, they need to give pwME an exemption from any of these benefit cuts being brought in. They canāt expect us to recover if we donāt have safe medical care or treatments.
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@ThereForME_UK @thetimes @HelenMorganMP @LibDems They want us to get back to work, but they wont provide the research to find treatments to do so @wesstreeting
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A look at UK Government funding levels for ME research from 2015-20 highlights the serious long-term underfunding š¬š§š¬ The government simply cannot say 'we funded DecodeME' and sit back thinking their job is done forever. We need to FUND THE PLAN! #MECFS #LongCovid
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#DisabilityBenefits Didnāt consult disabled people properly with the welfare reform bill. The concessions have NOT been consulted on disabled people have had no say. We will not accept concessions weāve had no input on. Bin the bill start again MPs āVote NO on Tuesday
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Thereās an alternative billāone that hasnāt been written yet. One based on uplift. On believing people. Not subjecting them to constant scrutiny. Supporting people to live better lives. The kind of support that always ends up saving moneyābut only incidentally. #TakingThePIP
@Shrink_at_Large The point is, this Bill was formulated for the express purpose of saving money. If you take that away there is no Bill.
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Could someone please point me to the alternative support the 1.325 million current #PIP claimants set to lose their daily living allowance are supposed to access? I canāt find it.
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Iām so delighted that all 72 LibDem MPs signed this letter to @wesstreeting @AshleyDalton_MP asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay
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@junkcrap50 Yes we have but with no consistent funding. We have looked at different models with students dipping in and out of the project. This work needs at least one 3 year Post Doc costing around £350-400K. Our budget for ME/CFS has been £20-30K per year at best since 2018
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I've just signed this petition. Will you add your name and share too? Ringfence biomedical research funding for #MECFS
https://t.co/u62M56Qxfl via @38degrees
you.38degrees.org.uk
Hundreds of thousands of people were already living with the chronic post-viral illness ME/CFS before the covid pandemic. COVID turned out to be highly effective at producing chronic post-acute...
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@scope Since disability can strike any person at any time, we should all want a proper safety net in place. The disabled should not have to live in poverty or fear for something that is in no way their fault.
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