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Cure MND

@CureMND

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1K
Following
3K
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Six people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.

Oxford
Joined November 2019
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@CureMND
Cure MND
5 years
MND-SMART launches in Southampton
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@MinoShah
Shah Minokadeh, M.D.
5 years
Remembering my friend Elsie today. Elsie died while fighting so hard for a chance to access #Nurown to see if she would also respond. The broken system failed her despite a 100% fatal #ALS diagnosis. They left her to die. #BloodOnYourHands #PeterMarks @FDACBER @DrWoodcockFDA
@elsiejo22955940
elsie johnson
6 years
pALS on NUROWN-WHEELCHAIR TO STANDING pALS DENIED ACCESS TO NUROWN-STANDING TO WHEELCHAIR SAME WINDOW OF TIME
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@MinoShah
Shah Minokadeh, M.D.
5 years
It supports a rapidly growing expanded access program. Its leaders are committed to URGENTLY finding treatments & cures. ALL DONATIONS go to research/treatments, NOT salaries. PLEASE encourage fundraisers, friends & family to donate.πŸ™πŸ™ #HealeyHope https://t.co/6sNAFq4Z3s
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@MinoShah
Shah Minokadeh, M.D.
5 years
I still hear other orgs brought up. This can't be stressed enough!!! The CLEAR LEADER for #ALS treatment access/research isΒ the @MGHNeurology Healey Center.Β  NO OTHER ORG COMES CLOSE. Uniting behind them advances ALS at all trial sites across the country. #PlatformTrial
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@LynsayBalmer
Lynsay Balmer
5 years
#GivingTuesday since it’s giving tuesday, if you could spare anything, during the current climate to help us raise funds to allow David to return to mexico for stem cell therapy πŸ€žπŸΌπŸ™πŸΌ #balmerbattlesmnd https://t.co/q8aftG0bc8 @CalvinHarris @LewisCapaldi @kevinbridges86
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@MNDScotland
MND Scotland
5 years
Approaching ✨50,000✨ If everyone who's signed our petition with @mndassoc and @MNDoddie5 got one other person to sign, we'd be a step closer to securing a vital debate in the UK Parliament. #United2EndMND Let's make it happen! πŸ‘‡
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@MNDoddie5
My Name'5 Doddie Foundation
5 years
100,000 signatures πŸ‘πŸ‘Š Thank you to everyone who has signed our petition with @mndassoc and @MNDScotland - this means the petition will now be considered for a debate in parliament. It's not too late to add your name, every signature is important: https://t.co/nxbLwzLsoy
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@AlsChange
Eliana Goncalves
6 years
#Nurown Lucha mundial contra la ELA - No podemos esperar @US_FDA @EMA_News - Sign the Petition! https://t.co/lM83phrhAT via @Change
Tweet card summary image
change.org
Lucha mundial contra la ELA - No podemos esperar
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@CureMND
Cure MND
5 years
Bronstein, Gewirtz & Grossman, LLC Notifies Investors of Brainstorm Cell Therapeutics Inc. (BCLI) Investigation https://t.co/NvfE53FRkD via @Yahoo
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@DrArpan100
π€π«π©πšπ§ 𝐌𝐞𝐑𝐭𝐚
5 years
@AlsChange @EuansCentre @UHSFT @MNDoddie5 @MNDScotland Thank you for your message. There are no changes to the investigational medicinal compounds being tested in @mndsmart (trazodone & memantine). Best wishes.
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@CureMND
Cure MND
6 years
@suvankarpal @EuansCentre @MeritCudkowicz Dear Dr Pal Thank you for the initiative. Is the first drug indicated below Namenda / Namzaric (Memantine & Donepezil)? What is the second drug on the platform trial? The first drug is already used to improve the (1/3)
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@bsw5020
Brian Wallach
5 years
I cannot wait for the day that enough people are invested in the fight against ALS that a tweet saying β€œend ALS” can go viral alongside tweets about politics. On that day, this guy with ALS will get out of his wheelchair and dance like no one is watching.
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@ALSEUROPE1
@ALSEUROPE
5 years
#alstreatmentsnow Light a candle for #ALS #MND, Amyotrophic Lateral Sclerosis, an agonizing and deadly disease. We need treatments now !!! #NUROWN #AMX0035 @US_FDA @EMA_News Join this challenge and nominate other people @Emma_MacLennan @lynseymerritt @CureMND @emmccormick2005
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@mrdanwalker
Dan Walker
5 years
Still wrapping my head around the fact that Kev Sinfield is a couple of quid away from raising Β£2.5 million for his friend @Rob7Burrow. There are plenty of examples of poor leadership around but Kev is strong, loyal and selfless. Once a captain, always a captain. What a fellaπŸ‘πŸ»
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@LynsayBalmer
Lynsay Balmer
5 years
I am trying to fundraise for my brother who has ALS and needs money to return for potential lifesaving treatment, struggling on the fundraising front due to COVID. This would help massively! @JeffreeStar 🀞🏼
@JeffreeStar
Jeffree Star
5 years
Who needs help today?? I’m going to pick 3 random people who retweet this and send them $3,000 β™₯️ Love you guys
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