ALS/MND Alliance
@ALSMNDAlliance
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A World Free of #ALS #MND
Facebook: /TheIntlAlliance
Joined May 2013
Our conference last week in Toronto, Canada, brought community members from around the world, even from very far away - like Kolo from Taiwan: https://t.co/NDdcC7sTlV The conversations and connections participants made drive our mission forward: a world free from ALS/MND.
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📧 SUBSCRIBE TO OUR BI-MONTHLY NEWSLETTER! 🖋️ Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations. 📰 https://t.co/sTjn81UZJP
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🙏 Thank you to everyone who shared the 2025 March of Faces over the past few weeks. Together, we’ve ensured these faces and the stories behind them have reached thousands around the world. We continue to raise global awareness of ALS/MND.
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⭐ Human Rights Day highlights why dignity matters: access to care, inclusion, and opportunity. Gísli’s treatment—made possible through connections at our meetings—improved his life. We’re advocating so everyone with ALS/MND has that chance. 💙
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🧡 Deep gratitude to our “Day in the Life Of” Suite Supporters for helping showcase the power of assistive technology at our 2025 event. Tools like eye-gaze systems, voice banking & mobility tech make ALS/MND more livable and empower daily independence.
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🌍 Heartfelt thanks to our Conference Supporters for making the 2025 Alliance Meeting & Allied Professionals Forum possible. Your support empowers global collaboration and strengthens our mission to improve life for people affected by ALS/MND.
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✨ Gratitude to our Bronze Sponsor for supporting the 2025 Alliance Meeting & Allied Professionals Forum. Your commitment helps bring the global ALS/MND community together to learn, collaborate, and accelerate progress. We appreciate you!
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💙 Grateful to our Silver Sponsors for supporting the 2025 Alliance Meeting & Allied Professionals Forum. Your partnership helps our global ALS/MND community connect, share, and push progress forward. Thank you for standing with us!
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🌟 Huge thanks to our Gold Sponsors for powering the 2025 Alliance Meeting & Allied Professionals Forum. Your support strengthens global collaboration and helps advance care, research & advocacy for the ALS/MND community. We couldn’t do this without you!
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✨ Honouring Dr. Philip Van Damme for his extraordinary impact on ALS/MND. His leadership in care, biomarker research, and global projects like Project MinE has advanced diagnosis + treatment worldwide. Known for both excellence and compassion, he continues to drive progress. 💙
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💙 Every calendar purchase helps people with lived experience participate in ALS/MND events worldwide. Support the community & get your 2026 calendar today: https://t.co/RwsfGlL7wY
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💙 On International Volunteer Day, we honour every person who gives their time and energy to support people affected by ALS/MND. In this video, Rebecca Daniher speaks about the power of everyday people coming together to create change. Watch here:
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✨ The 2025 March of Faces continues to honour loved ones, caregivers, and people with ALS/MND around the world, past and present. Behind every face is a story of strength, compassion, and connection. Share this post if someone you love is represented in this year’s March!
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💙 The International Day of Persons with Disabilities calls us to take action for, with, and by persons with disabilities. In the ALS/MND community, this principle is already at the heart of our work! In this video, Linda Levine captures it perfectly:
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✨ We 're honoured to recognize Alberto Fontana, General Secretary of Italy’s NeMO Centres, for transforming ALS/MND care. He founded a national network supporting 7,500+ people each year with integrated, person-centred care, rehabilitation, and comprehensive support. 💙
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📣 Our international meetings are an annual highlight, when we can come together to share our experiences, challenges, and what's working. You can feel the energy participants bring - like in this video from Marcela Santos, representing the ALS/MND association in Colombia. 💙
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💙 Giving Tuesday is a reminder of what’s possible when we come together as a global ALS/MND community. Last year, Norman MacIsaac and Marie Christine shared how meaningful it was to connect! Your support helps keep this global collaboration strong: https://t.co/aGwyIfS2tf
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📣 "Everything you’re doing today is building that momentum and it’s all puzzle pieces coming together to set you up for success." - Ilayda Ulgenalp, ALS Canada. We thank our members worldwide for their determination and support them in improving our quality of life. 💙
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✨ We honor two remarkable young researchers advancing ALS/MND science. Apaala Basak is pioneering an optogenetic therapy to support tongue function and reduce dysphagia. Dr. Sadegh Ghaderi has developed a multimodal MRI framework offering more sensitive ALS/MND biomarkers. 💙
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✨ The International Alliance of ALS/MND Associations proudly honors Dr. Alper Kaya for his extraordinary global impact. As Chairman of the Turkish ALS/MND Association and someone living with ALS/MND, he’s advanced research, driven policy change, and inspired countless people. 💙
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