MND-SMART
@mndsmart
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Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
Edinburgh, UK
Joined February 2021
On 8-9 October '25, we gathered in Edinburgh to honour the life & legacy of Euan MacDonald MBE- a driving force behind MND research & accessibility. Read the news article here 👉 https://t.co/WQszTV6h84 🎥A recording of the full session & public will be available soon!
euanmacdonaldcentre.org
Oct 2025: On 8th and 9th October, 300 researchers, friends and supporters of the Euan MacDonald Centre gathered in Edinburgh to celebrate the legacy of our founder, the late Euan MacDonald MBE.
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We’re delighted to announce that MND-SMART is now open for recruitment at Hull Royal Infirmary, offering opportunities for participation to people living with motor neuron disease across the Hull and Humber Region. 🔗 https://t.co/wrtlJ6YCpX
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Wonderful for @mndsmart at @EuansCentre @UKDRI to be profiled in @Forbes Magazine as an exemplar of an innovative patient centred platform trial for #mnd #als following the recent excellent #iDR25 international drug repurposing conference
forbes.com
Drug repurposing—finding new uses for old drugs—is the key to the future in drug development as being faster and less expensive. Remedi4All shows its potential.
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⭐️The brilliant and dedicated research team at the Southampton General Hospital Trial Centre have now randomised >50 participants to MND-SMART!⭐️ Read more 👉 https://t.co/9AJ4REVBfh
#MND #ALS #clinicaltrial
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We're excited to welcome a new Group Leader to the UK DRI! 🥳🙌 Prof @suvankarpal joins our Edinburgh Centre, where he aims to deliver a streamlined approach to take mechanistic understanding of neurodegeneration into evidence-based clinical trials👉 https://t.co/TbxL1ur8NL
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Tacrolimus added as the fourth investigational arm in MND-SMART. MND-SMART uses an innovative #MAMS design to evaluate several potential treatments simultaneously, speeding up the time to identify effective therapies. Read more 👉 https://t.co/sGjq4tKytP
#GlobalMNDAwarenessDay
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🏃♀️ Amy Stenson is running the Edinburgh Marathon Relay to fund groundbreaking MND research with @EuansCentre. As part of the @mndsmart trial team, she knows just how vital your support is. 💙 Donate & read her story 👉 https://t.co/lNh8rnF4W5
#MND #EMF2025
@UoEFundraising
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Congratulations to the fantastic team at Birmingham for delivering equity of access to trials for people living with #MND. Supported by the wonderful @ADFoundationUK, Birmingham serves a diverse population, is a major regional recruitment hub, and one of 23 of our UK sites.
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Our newsletter is back! Find out what’s been happening in MND-SMART over the past year with our Spring 2025 Newsletter: https://t.co/4s59kU9gPJ Join our mailing list to receive our bi-annual e-newsletter, showcasing all the latest trial updates:
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Platform trials have led to a significant step change in how we identify potential new treatments for #als #mnd Thank you to @ALSMNDAlliance for inviting @suvankarpal to present an update on progress we’re making alongside the #EXPERTS & #HEALEY platforms
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ALS/MND Platform Trials Update | March 19, 2025 📊 Many thanks to HEALEY, EXPERTS ALS and SMART! They will update us on their approach, recruitment, trial eligibility and their latest news. Appreciation to moderator, Martina de Majo. 🙏 👉 Register now: https://t.co/TkTrsXGlQf
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Incredibly grateful to @mndsmart for leading this initiative and a warm welcome and huge thanks to our new Davidson Nurses 🙏🥰
We are thrilled to launch our new 'Davidson Nurses' initiative in partnership with the @ADFoundationUK This special collaboration has established five regional hubs across the UK where dedicated nurses are working to promote equity of access to MND-SMART. https://t.co/QDQLbLEksl
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We are thrilled to launch our new 'Davidson Nurses' initiative in partnership with the @ADFoundationUK This special collaboration has established five regional hubs across the UK where dedicated nurses are working to promote equity of access to MND-SMART. https://t.co/QDQLbLEksl
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Wonderful Translational Summit on MND and Rare Dementias hosted by @lifearc1 this week. Great to hear about all the progress being made across multiple areas to improve outcomes for people and to join a panel session and update on progress with @mndsmart #RareNeuro
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Kenzie is taking part in Sunday's Cambridge Half Marathon to raise money in aid of @EuansCentre - huge thanks Kenzie for your support of #MND research and thanks also to everyone who has donated to @JustGiving at https://t.co/0767JTj6es
@mndsmart
justgiving.com
Help Kenzie Robertson raise money to support The University of Edinburgh
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Congratulations to our our trial manager Amy Stenson and the wonderful trial office team for receiving a University of Edinburgh Good Research Practice Recognition Award in the category ‘Supporting and enabling a culture of Good Research Practice and Research methods’ 🥳
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Every day, 6 people in the UK are diagnosed with motor neuron disease, a devastating neurological condition At the UK DRI, our teams are bringing tangible hope for those affected, driving advances through pioneering research from lab to clinic & back👉 https://t.co/Ay6FUd3obJ
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A holiday message from the MND-SMART team: We extend our thanks to every participant, family member, local research delivery team member, and funder for your support, hard work, and dedication in 2024.
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