Melanie Craig
@CraigMelanie
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Mom, RN, Fighting ALS SOD1
Basking Ridge, NJ
Joined December 2011
Thank you for your ALS leadership @SenatorDurbin and for sharing @bsw5020 & @sabrevaya's story with @SecKennedy. ALS is urgent with no time to waste. We look forward to advancing research & access to promising treatments with Sec. Kennedy, @DrJBhattacharya @DrOzCMS @DrMakaryFDA
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ALS has killed multiple people in my family. Now it's coming for me https://t.co/RugOqxkQ1v via @TODAYshow
today.com
I was diagnosed with familial ALS in 2022, and while my body is deteriorating, I’m hopeful the future will be different for my children.
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In response to @ConanOBrien’s desire to speed research for ALS at @ALSTDI, an anonymous donor has pledged to match all donations made up to $25,000, in response to his wonderful tweet!
als.net
Donate to support cutting-edge research at the ALS Therapy Development Institute, a 501c3 nonprofit biotech dedicated to ending ALS.
Join me in battling #ALS by donating to the ALS Therapy Development Institute: https://t.co/yhaMKzNadx. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!
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.@SenBooker, watch Juan's story https://t.co/DteB8d4kY8 and help this Veteran continue to make memories and be an example of courage by cosponsoring the Elizabeth Dole Home Care Act (S.141).
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Her ALS Story Public Service Announcement 📣 #ALSAwareness #EndALS #HerALSStory #FuckALS #ALS #LifeWithALS #Accessibility #Disability #MND #MotorNeuroDisease #ALSSucks #MNDAwareness #FuckMND #DisabilityAwarenesss
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Huge shoutout to https://t.co/OBdFolljuw for equipment and training unlocking features of iPhone/iPad for als patients!!
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It takes a second…please retweet. Our daughter deserves ANY chance to live and #NurOwn is it. https://t.co/0uhDPmfTyW
@iamalsorg @sabrevaya @bsw5020 @BartBaker @TeamGleason @DrCaliff_FDA @klink52 @kandysimons @BellinaDeb @FDACBER @dantate2 @rosadelauro
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@MrBeast @MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.
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Day 31 of ALS Awareness month! 🎶And nowww the enddd is neeeearrr 🎶 #alsawarenessmonth #als #lougehrigsdisease #support #donate #help #research #cure #terminal #share #wediditjoe @ALSTDI
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At the #walktodefeatals ran into these guys who informed me the empire is putting a lot of funding into ALS research. You should too! #ALS #ALSfunding #tofersenworks
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Mom fighting ALS and raising money for the ALS walk this Saturday in NYC. I would love for you to share with your friends and donate if you can. #ALS #tofersenworks #ALSwalk #donate
https://t.co/KbyktKVk3p
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Beautiful morning for a 3 mile walk 13 months after diagnosis. 12 months after first tofersen injection #TofersenWorks #Tofersen #US_FDA #SOD1
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