Team Gleason
@TeamGleason
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Nonprofit founded by former New Orleans Saints player, @SteveGleason , after his diagnosis with Amyotrophic Lateral Sclerosis (ALS) in 2011. NO WHITE FLAGS
Joined August 2014
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Team Gleason will change the world for every family who is fighting ALS!
#curesforall
#iamals
#nowhiteflags
#teamgleason
📷
@barrios3213
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Today marks the 16th anniversary of Steve’s blocked punt and the 11th anniversary of Team Gleason.
Thank you to our followers and supporters for being a part of this journey.
Our Future is Greater Than Our Past! -SG
#nowhiteflags
#saints
#teamgleason
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Team Gleason is proudly flying
@AmericanAir
today w
@SteveGleason
on board. The pilot makes his general announcement, then follows w announcing Steve on board as a Congressional Gold Medal honoree & speaks to his work fighting ALS and encourages all to learn more.
#NoWhiteFlags
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If you don't already know Catherine Scott, you should.
If you do know Catherine, you know she has lived with ALS for 20 years and is one of our most active Team Gleason Board members and a force of nature, despite the disease.
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Mark Cohan hasn’t seen his 93 year old mother in over 9 years, since before he was diagnosed with Amyotrophic Lateral Sclerosis (ALS).
We helped make his dream come true as he travelled from Maryland to Florida to do what he’s been wanting to do for almost a decade: hug his mom
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We are at a loss for words with the passing of Sandy Morris. She led an assault against ALS with grace and intellect that we vow to continue. Sandy requested that we repurpose her speech device, but only if a brilliant activist uses it to change the world. Mission accepted.
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Happy Birthday, Steve. You are our guide star & motivation behind all we do at Team Gleason. Your mandate that we are to help others as a way to better all of us, speaks to why the nation celebrated you with the Congressional Gold Medal and why we do today.
#NoWhiteFlags
#HBD37
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Team Gleason is proud to be observing Lou Gehrig Day! Steve will use just his eyes and the
@google
Android app, Look to Speak, to announce the beginning of the
@Cubs
v.
@Cardinals
game at Wrigley Field tonight
Read more
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“I see a world where we keep exploring how to serve others, how to care for them, and how to love our human family.” -
@SteveGleason
We have learned a lot over the last eleven and a half years. ALS is not a one size fits all disease. Every individual and family are unique.
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Excited to announce
@SteveGleason
's interview series, Behind the Glass: Soul to Soul with Steve Gleason.
The 1st interview w
@RealHughJackman
will premiere live on our Facebook page, Instagram, & YouTube on May 28 at 7:30 pm CST. For more infor
https://teamgleason.org/soultosoul/
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The ALS community has been pushing hard for SSDI relief for years. Today, the Senate took the 1st step to pass the ALS Disability Insurance Act. Thanks to the ALS community, orgs, & this group of people for helping push this to the finish line. Next up, the House!
#NoWhiteFlags
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For 15 years,
@drewbrees
has been a steadfast friend who has inspired and motivated me to turn tragedies, like hurricane Katrina or ALS, into triumphs.
Here's to many more memories in our future.
Thank you for your support and friendship Drew. I love you brother. -SG
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We celebrated the life of Doug Rushton today. He was a resident at the Team Gleason House & was the Chief Smile Officer. He chose a path free from ALS last week & will be greatly missed by all who were blessed with his infectious personality. Keep smiling Mr. Doug...we are.
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"Thank you team Gleason for providing an eye level seat, lift for my power wheelchair. I have attached a picture of me going for a walk with my wife after our first snowfall."
Kind regards,
Kevin O.,
Lincolnville, ME
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The House just voted YES for the ALS Social Security Disability Act! The Senate overwhelming approved the legislation last week! Off it goes to be signed into law and giving people and families living with ALS financial relief!
#NoWhiteFlags
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A couple of weeks ago, Caleb reminded us he needed 2 service hours for school. He asked our neighbors how he could help them.
We thought we could have a lemonade stand and give all proceeds to Team Gleason who could help those with ALS.
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We wanted to express our gratitude to all who worked toward, posted, shared, and commented about Steve receiving the Congressional Gold Medal yesterday. If you did not see the ceremony, here is a link on
@cspan
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Here's some good news. It's Michel's birthday. Simply put, without Michel, there would be no Team Gleason. Happy Birthday, Michel! Let's help her celebrate...online, of course.
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On May 12th and in honor of ALS Awareness month, 6,000 flags were placed in Constitution Gardens at the National Mall in Washington, DC. Spearheaded by
#IAmALS
and ALS Advocates across the country, these flags represent the number of people diagnosed with ALS each year.
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Every donor will be entered to win
an Autographed
#19
Tom Dempsey Jersey Donated by our friend
@thomasmorstead
& an Autographed
#37
Steve Gleason Jersey!
#Rebirth2020
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Steve's note to Congressman Scalise on today's
@EnergyCommerce
Congressional hearing, The
Path Forward: Advancing treatments & cures for neurodegenerative disease. Thanks to his & the other leaders support & speaking today, the ALS community is being heard.
#NoWhiteFlags
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Centers for Medicare & Medicaid Services has announced that Medicare will now include power seat elevation on Medicare-covered power wheelchairs.
Thank you to the ALS and wheelchair communities for your help and support in advocating for this policy change.
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We joined this lawsuit in an effort to bring attention to all ALS families struggling for home care. We are only asking Medicare to ensure required care is provided as it’s critical to living with diseases like ALS.
#HomeHealthCare
#NoWhiteFlags
NEWS RELEASE:
@CMAorg
sues on behalf of
#Medicare
beneficiaries seeking fair access to
#HomeHealthCare
. Find out more in the following link:
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Big night for
@SteveGleason
, Rivers & Michel. They are throwing out the first pitch at the
@mariners
game tonight.
Fans can see the pitch or tune in to ROOT SPORTS (
@rootsports_nw
) pregame show between 5:30-6:10pm EST.
#Mariners
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"The seat elevator has made it possibly for my mom to get out of bed and enjoy the sunlight in her backyard. She’s very grateful for all the assistance from Team Gleason!"
#teamgleason
#als
#nowhiteflags
#seatelevator
#accessibility
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"With my new device, I can communicate better with my friends and family. Engaging in social media has given me some independence. I enjoy the eye gaze technology because I am in control. We are truly grateful to receive Team Gleason's help." - Gerardo F., Downey, CA
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Looks like Will Clapp and AJ Klein are both supporting
@TeamGleason
. Always cool to see what causes the players are supporting
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We are sharing "Some Good News' during these unusual times. ALS turns people living w the disease into the most resourceful people on earth. Despite intense stay-at-home orders, we are continuing to find ways to help others & still have a little fun.
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An amazing update from
@NotSoVanilla
on her Patagonia adventure! We are so excited to see the images and video and really looking forward to the stories she’ll tell on her return! Always
#KeepExploring
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We are excited to share the cover and release date of Steve’s book, A Life Impossible.
Coming April 30, 2024
Preorder your copy today:
@SteveGleason
@aaknopf
@penguinrandom
@JeffDuncan_
#SteveGleason
#ALifeImpossible
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ICYMI
@SteveGleason
and family chatted with
@RealHughJackman
last week. Could this be a new
@XMenMovies
spin-off? With Hugh as Wolverine, what would Steve’s X-Men name be?
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Check this out —> Dan is using Independence Drive to control his wheelchair!
Diagnosed with ALS in 2018, Dan is fully dependent on his power wheelchair. Thanks to his new Independence Drive by
@EvergreenCircts
, Dan has regained some of his mobility independence. Read his full story here -
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Once again the ALS community leads progress! But, a big thanks is in order for
@SenatorBraun
@lisamurkowski
@SenMcSallyAZ
and others for their leadership In creating new possible pathways for ALS treatments.
#ActForALS
#PromisingPathwayAct
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We are excited to announce Steve's 2nd interview in his series, Behind the Glass: Soul to Soul with Steve Gleason. This interview is w ex-NFL great, Ronnie Lott!
It will be live on Facebook, Instagram, & YouTube on June 25th at 7:30 pm CST. More info:
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Two years ago today,
@SteveGleason
accepted the Congressional Gold Medal in Statuary Hall in the U.S. Capitol.
Learn more about this day and read Steve’s full acceptance speech:
#als
#stevegleason
#congressionalgoldmedal
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We are excited to announce Steve's 4th interview, Behind the Glass: Soul to Soul w Steve Gleason. This interview is w the
@NFL
's, Roger Goodell. It will premiere live on our Facebook, Instagram, & YouTube pages tomorrow, July 28th, 7:30 pm CST. For more:
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You ain’t so bad yourself! You and
@sabrevaya
shook the ALS earth today. Thank you.
@TeamGleason
@EnergyCommerce
@SteveGleason
I can’t say this enough,
@SteveGleason
is simply one of the most amazing human beings on earth.
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When the ALS community joins together, it is unstoppable. The ALS Disability Insurance Act was signed into law by the President yesterday after overwhelmingly passing both Houses of Congress! Team Gleason is proud to have joined in this fight to see it law.
#NoWhiteFlags
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Thank you! We are beyond grateful to you for helping us continue to empower people living with ALS! We are so thankful to our donors, partners, vendors, and ALS families for being a part of our team.
We hope your Thanksgiving was filled with kindness, love, and gratitude!
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It’s been 3 years since we lost Will.
——-
Senseless and tragic don't come close to capturing my feelings on the Will Smith murder. Love you Will.
-SG
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Louisiana area ALS people/families, please let us know your status after the impact of Hurricane Ida. We realize power & cell service are off or limited and we are assessing how we can provide assistance or guidance. If you have an emergency, please message us here.
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Happy Father's Day to all the dads living with or caring for someone with ALS. We only captured a few here, but we hope you have an incredible day!
#DadsDay
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@bsw5020
@iamalsorg
Bravo. We are 8 years in and are still in donated space (although bursting at the seams), have 8 employees, and manage to serve the ALS community across 50 states and other countries.
#Commitment
#NoWhiteFlags
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There are no words to accurately express our sadness over the loss of Leah Chase. Her profound impact on an entire generation has had a lasting effect we are forever grateful for.
Peace Miss Leah.
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Look for
@SteveGleason
and Michel Varisco on
@RealSportsHBO
in February!
@HBO
spent time at the Congressional Gold Medal ceremony and Jon Frankel did an updated interview with them in New Orleans.
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🖤💛🖤💛 thanks y’all!
Welp. That was fun. Thank you players, coaches.
@Saints
- Thank you New Orleans!
I've been tweeting all day. Boy, are my eyes tired. Here is Michel greeting me post game.
#Rebirth2020
Out.
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@SteveGleason
will receive the Congressional Gold Medal tomorrow, January 15th at 3pm EST. The ceremony will be at the US Capitol in Statuary Hall. You can watch the ceremony live on
@SpeakerPelosi
's Facebook page:
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We're thrilled to surprise a lifelong
@chiefs
fan, Craig Fuchs, with Superbowl tickets! Craig Fuchs from Kansas City and his family will attend the Super Bowl as part of the Team Gleason Foundation Adventure Program. Fuchs was diagnosed with ALS in 2022.
@KendallGammon
@SSJWHB
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Happy Birthday to our Executive Director, Paul! No one multi tasks like Paul as evidenced by our last staff meeting where we celebrated his upcoming birthday. And yes, our staff spans from under 1 to over 70 years old.
#HappyDayPaul
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No white flags, Brian!
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Check out
@drewbrees
in a Team Gleason T-shirt!
#DefendTeamGleason
Even in a parade,
@A_kamara6
and
@drewbrees
can always find each other. Watch the new
#NFL100
commercial before
#SBLIV
kickoff.
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We love you, SG!
I'm headed to the ER for the first time in 3-4 years. I haven't been in the hospital for more than a few hours in 5 years.
I've had relentless hiccups for 5-6 days, and they think it may be developing early signs of pneumonia.
We shall see! So much Gratitude for my team.
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🚨 Without his seat elevator, Dave would no longer be able to safely reach the right height to work at the kitchen counter or cook at the stove.
Photo: Dave M., Whiting, NJ
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ALS pushes the limit in all who it impacts, but with passion and purpose, we move the line. This community continues to change the game.
#NoWhiteFlags
Fighting a terminal illness drains every facet of us. In this fight we are all equal, linked by our known end and our determination to avoid it. We are pushed beyond our limits. We bend, flail, but we must not break. The future will be beautiful. And we will be here to see it.
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As a foundation, we are often humbled by the opportunity to have some of the most intelligent, innovative, and dedicated individuals working alongside us for the betterment of the ALS community. Philip Green is certainly no exception.
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Next episode of Behind the Glass: Soul to Soul with Steve Gleason and guest Satya Nadella, CEO of Microsoft
Tune in Tuesday, July 14th at 7:30pm CST on IG, FB or YouTube
#soultosoul
#satyanadella
#stevegleason
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On this day 4 years ago, the
@SteveGleason
Act passed! The law ensured all people who needed communication devices could not be denied access, nor denied access to all the tools they provide.
#NoWhiteFlags
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The Congressional Gold Medal has been approved and we are getting closer to having Congress bestow
@SteveGleason
with their highest honor.
#CongressionalGoldMedal
#KeepExploring
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Proud to stand, sit, and roll with the ALS community in support of Act for ALS!
#NoWhiteFlags
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5 years ago today Team Gleason pulled off the World’s Largest Ice Bucket Challenge
#icebucketchallenge
#teamgleason
#stevegleason
#saints
#awesomeainteasy
#nowhiteflags
#ALS
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13 years ago today. Where were you?
Join us this Saturday at Champions Square for
@GleasonGras
and help celebrate this moment and raise funds for Team Gleason!
#NeverPunt
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Thank you so much for providing me with this Speech Generating Ipad. As a (retired) educator for over 50 years, I love engaging and sharing thoughts and ideas.
Being able to communicate is so very important to me.
This device allows me the freedom to continue to engage.
THANKS!
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@SteveGleason
& Team Gleason had a great visit w
@OchsnerHealth
's new Neuroscience Department space. The team used the Oculus VR headset to explore a spine in 4D visuals. We're always excited to see new technologies that could benefit the ALS community.
#KeepExploring
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B-52 bombers escorted by F-15 fighter jets flew over New Orleans today to honor Louisiana's essential workers during the coronavirus pandemic. Our friend Kevin Kolb captured them as they flew over the Rebirth Statue at the
@MBSuperdome
#Rebirth
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We're excited to share that
@QuantumRehab
has entered into a multiyear sponsorship with Team Gleason which includes a commitment that no person living with ALS goes without power seat elevation such as iLevel®.
Learn More:
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Such a great video that includes incredible words by friend and extraordinary human,
@drewbrees
Such a great video from Steve Gleason’s Congressional Gold Medal ceremony!
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10 years ago on
#SuperBowSunday
@peter_king
shared
@SteveGleason
’s story. That day was a turning point for Team Gleason.
Watch it ->
#nowhiteflags
#SuperBowl
#ALS
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Despite the cancellation of the Apple Cup,
@WSUCougars
’,
@SteveGleason
, &
@UW_Football
’s,
@pjgreen
, challenged each other’s Alma Maters in a competition to raise funds for Team Gleason & people living w ALS. May the best school win! Go to to compete!
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Be one of the 1,500 donors to donate to
#teamgleason
so we can continue to provide leading edge technology, equipment, care services and life changing adventures for people living with ALS.
#GiveNOLADay
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Thanks Oklahoma and Montana!
Hey Utah, S Dakota, Oklahoma, Alaska, Wyoming and Montana! What gives? So far - 44 states, Canada & the UK have all shown up to help
@TeamGleason
& ppl w ALS. Help us fix the map. Tell your friends in these states!
#AllFifty
#GiveNOLA
Donate here -
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Team Gleason is excited to assist Carole with her communication device after her diagnosis in March of 2022. This communication device gives Carole another level of independence by preserving her voice and communication skills.
📸: Carole M., Murrieta, CA
#teamgleason
#als
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"This disease teaches you what’s important and what’s not important quickly. I don’t have time to waste on things that don’t matter. This trip mattered, seeing my mom mattered, and seeing my siblings and family mattered. I couldn’t ask for anything more."
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As we all get ready for the replay of the 2006
@Saints
Domecoming game on Monday night...
I dug into the
@wdsu
video vault.
This clip is from the day after the historic game.
I asked
@TeamGleason
about why he was the perfect player to make that play that meant so much to so many.
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Thanks to all at
@WSUSpokane
who helped launch this vision! It’s extraordinary to see the
@SteveGleason
Institute for Neuroscience Adaptive Technology Center come to life. “Until there is a cure, technology can be that cure.”
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One year ago today,
@SteveGleason
accepted the Congressional Gold Medal in the U.S. Capitol alongside congressional leaders, honored guests, & friend/birthday boy,
@drewbrees
. It was a day when everyone came together to honor Steve and all with ALS. cont.
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7 years ago today Team Gleason’s Machu Picchu Adventure started.
@SteveGleason
@KevinSwan_
@sfujita55
#awesomeainteasy
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Team Gleason is in this fight and supports advancing funding and access for ALS therapies. While our mission is to support those living with the disease, our goal is for treatments and cures that would ultimately put us out of business. Congress, it’s time to
#ActforALS
Congress must advance the
#ACTforALS
quickly! Today,
@LesTurnerALS
and 19 other advocacy orgs sent a letter to
@SpeakerPelosi
,
@GOPLeader
,
@FrankPallone
, and
@cathymcmorris
urging them to pass the legislation ASAP. Read our letter at
#ALS
#NMD
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How long does it take you to scratch your nose?
Probably .5 seconds...
For people with ALS, like Ruby, scratching your nose takes more effort.
Watch as Ruby uses her eyes to type on her speech generating device, asking Alexa to turn on her nose scratcher.
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Tropical Gleason IPA is back! Had a whole lot of fun taste testing this week. Be sure to purchase yours from
@portorleansbeer
before it’s gone!
Head to Port Orleans on Sunday for Tropical Gleason IPA beer release party for the
@saints
game.
#teamgleason
#saints
#portorleans
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We are saddened to hear about the passing of Donna Britt. She was and will always be an extraordinary voice for Louisiana and for all those living with ALS. She will be profoundly missed.
Donna Britt, the face of WAFB-TV until stricken with ALS, died peacefully this morning at home with family around her
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Congrats to our friend,
@drewbrees
. Drew is a great man, father, team mate, quarterback, and all around great human.
#NoWhiteFlags
Drew!
#ESPYAwards2019
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Please know Steve & all of us at Team Gleason are acutely aware that he received this honor with every person who has or ever lived with ALS. Congress has acknowledged Steve, but as importantly, they have acknowledged ALS. Now, let's turn that into further action.
#NoWhiteFlags
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We have only played a small role in this family's journey with ALS, but they have taken the "No White Flags" mantra to a new level. From the cake to the Team Gleason lapel pins, ALS continues to meet its match with more extraordinary humans!
#NoWhiteFlags
#Congrats
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Hey
@UW
&
@WSU
! Check out a challenge between
@pjgreen
&
@SteveGleason
on which school can raise the most $ for Team Gleason to help ppl living w ALS. You have until the
@Boeing
Apple Cup on Nov. 29th to show what you're made of! Details at
#MoreThanAGame
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There are too many to thank, but without the Sheehy family,
@PMS4ALS
@BoogSciambi
& all sponsors & attendees, we wouldn't have raised over $250K on May 30 - June 1st in NYC at the Sheehy Gala & Softball Classic. Funds raised directly impact the lives of ppl living w ALS.
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The annual Mt. Strachan Hike in Canada to support Team Gleason last week was a huge success! There were over 20 people who climbed the 5000 feet summit in support of people with ALS and Team Gleason. Thanks to Strachan Liberman & the Liberman family & their friends.
#NoWhiteFlags
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The Congressional Gold Medal will be presented by
@SpeakerPelosi
,
@senatemajldr
,
@SenSchumer
&
@GOPLeader
,
@BillCassidy
and
@PattyMurray
, and Representatives
@SteveScalise
and
@RepRichmond
. Speaking for Steve will be friend and former teammate,
@drewbrees
.
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