Thinker, Sailor, Joker, Wry.
@BleakHowes
Followers
2,005
Following
1,852
Media
4,170
Statuses
45,844
'Any one question can be more explosive than a thousand answers.' Jostein Gaarder. From Darkness, Advancing Perception
Australia
Joined June 2017
Don't wanna be here?
Send us removal request.
Explore trending content on Musk Viewer
Rayados
• 49553 Tweets
DAHYUN
• 41925 Tweets
Clippers
• 34878 Tweets
ネルフェス
• 26637 Tweets
DwiTUNGGAL PRABOWOGIBran
• 21179 Tweets
FokusKERJA FokusSIAPKAN
• 20384 Tweets
#デレステGWCP後半
• 16358 Tweets
Gerson
• 13063 Tweets
ペンラ8000円
• 10104 Tweets
Last Seen Profiles
Pinned Tweet
Writer, Thinker, Joker, Wry. (Change refreshes my soul)
Showcase of personal disability and
#disability
history content on
#Australia
#BleakHowes
#DisabilityMatters
#HumanRights
#DisabilityRights
#MedicalHistory
#NEISvoid
#I_Human
2
42
28
⚡️ “Our lives with Hidradenitis Suppurativa” by
@sewoHJR
We have
#Hidradenitis
Suppurativa (HS). HS is a painful inflammatory skin disease. We may need your help, compassion & encouragement to talk openly about our lives with HS.
4
53
71
@JessieTG1997
@somebadideas
@CelerySorbet
A better idea may be for media outlets to pay the author of the tweet they have embedded.
2
0
60
"In contrast to the construct of biosecurity—the securing of collective life against risk—necrosecurity paradoxically imagines the deaths of vulnerable others as a means of managing shared existential dangers."
This was written more than a year ago. All the knowledge and insight exists to describe and understand what is happening. But knowledge and insight are no match for evil.
25
189
576
0
13
26
@VictorianCHO
told Drive host
@Raf_Epstein
: "my heart is in my throat every morning when I'm checking the numbers."
Masks could be solution to the "see-saw" of locking down and easing up in Victoria
4
5
20
5
13
25
@heylauriestark
@audendum
It's a little weird but Shakespeare mentions plague ln Lear overtly but it's clear he's being metaphorical not literal
1
2
24
@BigBadDenis
One day we will look back on these times and wonder why citizens like
@BigBadDenis
care more about public health than our governments. Thank you Denis.
1
2
22
Top Influencers of
#Dermatology
👉
@JMGardnerMD
@MPLEEMD
@julianconejomir
@allobe86
@Histopatolomon
@VKazlouskaya
@Pathologists
@HENRYY_MD
@mydermpath
@Dr_Jukic
Without Awareness Of
#HidradenitisSuppurativa
Diagnosis Is Impossible.
via
@symplur
7
5
21
'I spotted a small sign on the whiteboard:
The whole world is short-staffed.
Be kind to the ones that showed up.'
1
9
20
#HidradenitisSuppurativa
is a recognised component of some
#AutoInflammatory
(AI) diseases. HS itself may be an AI disease.
#AutoinflammatoryAware
@RACC_UK
@AAlliance_SAID
@IFAiArthritis
@PeriodicFeverUK
@AutoinflamMonth
@AIArthritisDay
@FMFandAID
@ImmunAID_EU
@_ERNRITA
Hidradenitis suppurativa is an autoinflammatory keratinization disease: A review of the clinical, histologic, and molecular evidence
0
23
58
0
8
18
@ArtistAffame
@AusUnemployment
Each two weekly appointment makes me physically ill.
There is no way to prepare for the strange behaviour from providers.
Today the office manager introduced me to a new consultant by saying 'Rob is the one that yelled at us'.
A lie. I quietly said I have never yelled at you.
0
6
17
@damiencave
@mdavisqlder
I don't mind when journos get fiery on real issues, but this is just embarrassing.
0
2
17
HS is Timeless.
Flare. Recover. Repeat.
#HidradenitisSuppurativa
.
It's like someone put my spirit
in a holding cell and now it
has been bailed on it's own recognizance.
2
9
14
Three text messages from disability service provider (APM) reminding me of an appointment tomorrow, the last to advise it will be a phone meeting. I will be turning my phone off.
Federal Govt & APM must have an exemption from being human?
@AusUnemployment
#covid19vic
1
5
12
@MackayIM
The inescapable truth is that (at least for the duration of a pandemic), scientists are rock stars. Keep smiling Doc.
0
2
13
#HidradenitisSuppurativa
(HS) is a serious, morbid inflammatory disease that can reduce your lifespan. More importantly HS can strip happiness from your life faster than a toxic reply on social media. Much more importantly HS can stifle and suffocate your spirituality.
0
7
10
I wasn't ready for the
#FirstWave
. But I bought a cloth mask today at the pharmacy. I'm ready now for what comes next.
#PPE
#COVID19
@SpenceSebastian
@thetracilords
@therogercross
1
3
12
The Secret of Emu Field: Britain’s forgotten atomic tests in Australia; so much information remains classified. via
@SatPaper
0
5
11
One of the best written things about
#HidradenitisSuppurativa
Awareness I have ever seen: from Carmen Chan, Queensland, Australia (2018).
2
8
10
Is there any other painful disease on the planet where I can have it for over 20 years and NEVER have ANY doctor of mine even THINK to OFFER pain relief? They shoot horses don't they?
#Dermatology
#Medicine
#HidradenitisSuppurativa
1
7
8
I feel very conflicted right now.
Can't decide which to watch first.
New season of
@ExpanseOnPrime
or
New season of
@lostinspacetv
Fuck It.
I just have have to hear
@SAghdashloo
curse again like there is no tomorrow.
Belter loader gonna want it.
1
4
11
Dr. Gaius Baltar may well be 'narcissistic, self-centered, feckless and vain', but he remains one of my most favourite characters of all time.
@jamescallis
@SYFYWIRE
2017
1
6
11
Blood dries up
Like rain, like rain
Fills my cup
Like four seasons in one day
#ThomasH
übner AKA
#Clueso
#AngusandJuliaStone
#CrowdedHouse
#Melbourne
#HidradenitisSuppurativa
0
7
8
#CoronavirusOutbreak
NOW trending at number One of 1189 disease hashtags via
@symplur
.
Thank you to the top influencers for July:
@ACTINOSProject
@DrJaneMunro
@an_leavy
@covidbaseau
@YouAreLobbyLud
@MackayIM
@Justamelbkid
@CrabbBrendan
@Mike_Honey_
@ProfPCDoherty
#COVID19Aus
2
4
10
@DarylTractor
Very disturbing and very weird but thank you for sharing.
I get the sense that those who say they are not worried are the ones among us who may be the most worried.
I will not be socialised to care less about people during dark, challenging times.
0
1
10
can I just say that over the years more has been published on SHH (hidradenitis suppurativa) by surgeons than dermatologists. They deserve a little love, don't ya think?
#JustSaying
3
1
10
#HidradenitisSuppurativa
(HS) triggers deep sadness.
I've survived with HS, Depression & Anxiety since 1996.
Some people with HS DON'T survive-this needs to change.
#WorldMentalHealthDay
#WMHD2019
#SuicidePrevention
@RANZCP
@AustPsych
@AUMentalHealth
@anzmha
@SANEAustralia
2
6
7
mmm... 'raises awareness' and educates doctors at the same time. Probably worth a million Rt's. What say you HS people on twitter?
Do you see patients with hidradenitis suppurativa? Enhance your understanding with this CME as it dives into epidemiology, presentation, pathophysiology, treatment, and emerging therapeutics.
0
34
80
3
3
9
.
@ltomas_aragones
@hidrosadenitis
@Idrosadenite
@PsychoDermUK
'These [
#HidradenitisSuppurativa
] patients often feel isolated and stigmatized, they suffer in silence and their suffering is usually invisible to others.' ESDaP 2017 Congress
0
7
9
I want a life without HS.
Preceded by medical compassion that does not make me suicidal.
Preceded by a medical treatment that does not strip me of dignity.
Preceded by a community of HS people not preoccupied by BULLSHIT.
Too much to ask?
#HidradenitisSuppurativa
2
4
9
1998 Survey of global people with
#HidradenitisSuppurativa
identified: Delayed diagnosis, pain. isolation, stigma, depression, lack of effective treatments, antibiotic resistance & much more.
#HSAwarenessWeek2020
It is now 22 years later. Time is ticking away.
1
4
9
Hurley staging of
#HidradenitisSuppurativa
Hurley 1- Nobody cares.
Hurley 2- We could do surgery if we cared but instead we will give you random drugs & hope for the best
Hurley 3 -shit we should have operated 15 years ago!
#HsSatire
1
14
8
People of all sexes and races get
#HidradenitisSuppurativa
.
There is more than two sexes. A lot of us are of mixed race.
People with HS are all different. Different risk factors.
Different comorbidities. Different diets. The list is endless.
Diversity can be unifying?
0
11
8
@AusUnemployment
@Asher_Wolf
Since first lockdown I have had an undercurrent of creeping, insidious, thoroughly unnecessary anxiety about this issue. This system was inhumane & uncertain before the pandemic. Does anyone take this government seriously anymore? 'Please Sir, can I have some more anxiety..'
0
1
9
.
@UN
@WHO
@Refugees
@UNESCO
@bjemec
@MAParnellHS
People with
#HidradenitisSuppurativa
(HS) have an inherent dignity and inalienable rights. People with HS have both the right to and need of, freedom, justice and peace.
#MillionsHidingHS
1
7
7
Do you have lumps and bumps under the arms, groin and bum that come & go?
Do they look like these pics?
If so, please seek medical help.
#HidradenitisSuppurativa
#PublicHealth
#Australia
#NewZealand
#HumanRights
#Dermatology
3
13
9
.
@erinmaochu
@MAParnellHS
@figshare
2019 Erinma Ochu; Michaela Parnell; Megan Hardeman: Educating the next generation of researchers on open and collaborative data sharing. figshare. Paper.
#Figshare
#HSActionTogether
#HidradenitisSuppurativa
0
7
9
If I had a penny for every time that I couldn't fucking spell
#HidradenitisSuppurativa
I'd have enough money to call somebody who actually gave a shit.
2
2
9
#HidradenitisSuppurativa
may be triggered by smoking, brainwashing, small-talk and incomprehensible pick-up lines.
1
3
7
.
@AsteroidDay
Lifetime odds of dying from a local meteorite, asteroid, or comet impact
1 in 1,600,000 (Nelson 2014)
Risk of dying from a large, global asteroid or comet impact
1 in 75,000 (Nelson 2014)
Chance of getting
#HidradenitisSuppurativa
1 in 100
0
10
8
@ratman023
@ThatEricAlper
Yup. The Insider. Whole movie. Lisa Gerrard, Pieter Bourke & Massive Attack.💯
0
1
7
Wendy Bowles Georgia, US 2001. "We may have been told that if we kept ourselves cleaner or shaved or didn’t shave or lost weight or quit smoking .. sometimes shaming us into believing we caused our disease"
#HidradenitisSuppurativa
1
6
8
Disease hashtags currently trending via symplur:
#SARS
#coronavirusoutbreak
#Coronavirus
#MMSM
#VWD
#HIV
# 23 Letters
#LiverCancerAwarenessMonth
#BCSM
#LCSM
#lymsm
#pwme
#ChildhoodCancer
#Flu
#COVID19
0
8
8
13 OTHER REASONS WHY I LOVE TWITTER:
1. In 2017, I suspected Twitter was an under-utilised platform for
#HidradenitisSuppurativa
advocacy, peer to peer support, and for nurturing community relationships between doctors and people with HS
3
2
6
0
0
9
"What is HS?" is rarely a question I lose sleep over.
When will my HS end? THAT is THE question.
#HidradenitisSuppurativa
#Perception
#Perspective
#WalkAMileInMyShoes
0
1
7
12 June | Sexual impairment in patients with
#HidradenitisSuppurativa
: a systematic review | via
@TheJEADV
1
1
8
Do you have lumps and bumps under the arms, groin and bum that come & go?
Do they look like these pics?
If so, please seek medical help.
#HidradenitisSuppurativa
#PublicHealth
#Australia
#NewZealand
#Dermatology
1
2
9
Had some time lately to reflect on my feelings about having Hidradenitis Suppurativa for about 25 years 👇
0
2
6
#HidradenitisSuppurativa
: Oct. 1.002M Impressions
749 Tweets, 207Participants,
1 Avg Tweets/Hour, 4Avg Tweets/Participant
Without Awareness, Diagnosis Is Impossible. Apparently. 😎🇦🇺🇺🇳 via
@symplur
1
3
7
Do you have lumps and bumps under the arms, groin and bum that come & go?
Do they look like these pics?
If so, please seek medical help.
#HidradenitisSuppurativa
#PublicHealth
#Australia
#NewZealand
#Dermatology
#HidradenitisSuppurativa
is a disfiguring condition, which is often accompanied by embarrassment and impairs the quality of life of patients
#HSawareness
0
15
21
1
3
7
Bravo to Nacho, a courageous world traveler who raised global compassion, empathy, awareness & understanding of
#HidradenitisSuppurativa
by traversing Spain & Portugal. A timeless hero!
#HStoria
#IniciativaH
érculeS
@Hidrosadenitis
@doctormartorell
@abbvie
HT
@AFRH
En Espagne : 💜7 000Km à vélo pour faire connaître l'Hidrosadénite Suppurée (maladie de Verneuil) - Merci et chapeau bas Monsieur ! 💜
#maladiedeverneuil
#hs
#bougetonverneuil
0
2
3
0
6
7
The night can be a dreadful time for lonely people with Hidradenitis Suppurativa once their loneliness and flares have started.
(Paraphrased): 1929; Ernest
#Hemingway
; A Farewell To Arms.
#HidradenitisSuppurativa
#MentalHealth
#ChronicIllness
#Courage
1
12
7
2/3
Closing in on 5⃣0⃣0⃣ "Inborn Errors of Immunity"
in medical literature:
Will be very intersting to see if one (or more) related to SarsCov2 will be added. 🧬🦠
1
3
16
1
2
7
what if I told you that after over 20 years of co-existing with the same bizarre inflammatory skin disease, my lived experience probably would not help you?
0
2
6
"Hidradenitis Suppurativa: As Serious as a Heart Attack"
#LayDownYourHSBurden
Hidradenitis Suppurativa is Associated with Myocardial Infarction, but Not Stroke or Peripheral Arterial Diseas...
0
1
2
2
10
7
@JeremyPoxon
I doubt the AWU's position is they are okay with slave labour taking over jobs for a poverty wage, but if they are okay- they all need to be sacked.
0
0
7
Celebrate the "International Day of HS Newsletters with Very Few Subscribers" celebrated over two days in multiple time-zones.
Boost my ego and subscribe. Donate a smile to a stranger.
0
2
7
“Love and compassion are necessities, not luxuries.
Without them humanity cannot survive.”
#quote
Dalai Lama
0
4
7
Hidradenitis Suppurativa on Twitter is rarely associated with an excess use of punctuation.
1
0
7
There is what is known about hS, and there is what is unknown about hS. In between is the bS.
0
1
7
At the Instant Noodles for Breakfast, Phase of the Pandemic.
1
1
7
Bearing the burden of
#HidradenitisSuppurativa
alone for so long has damaged my soul and muted my happiness.
1
2
5