AFCOS Study
@AfcosStudy
Followers
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A study conducted by @StMarksFRU & @MaastrichtU aimed at developing an Anal Fistula Core Outcome Set. Email [email protected] to register!
London
Joined December 2019
Now online and open access-.AFCOS: The Development of a Cryptoglandular Anal Fistula Core Outcome Set. Published in @AnnalsofSurgery. @BowelsOfStMarks @StMarksFRU @COMETinitiative @escp_tweets .
journals.lww.com
hampers systematic evidence synthesis to identify the best treatment. Methods: This study followed guidance from the Core Outcome Measures in Effectiveness Trials initiative and consisted of three...
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Huge thanks to all participants and collaborators for supporting this project!.@nusiqbal @DrUgoGrossi @philtozer1 @debby_keller @ZimNl @IEGecim @pfclung @AikateriniLeve1 .#fistula #colorectalresearch #colorectalsurgery #SoMe4Surgery.
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RT @DrUgoGrossi: Enhancing patient-centered care by offering patients a voice 👉 the impact of cryptoglandular anal fistula extends beyond t….
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Patient input into #AFCOS was crucial, we look forward to sharing the full study soon! #colorectalresearch #colorectalsurgery #fistula #PPI #SoMe4Surgery.
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Our interviews highlighted problems in:. ❎️ Diagnosis.❎️ Communication .❎️ Expertise.❎️ After care. As well as extensive impact on #QoL and a lack of focus on patient centred outcomes.
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New: How can we improve #fistula research and clinical care? By listening to patients themselves 👇🏽 @nusiqbal @DrUgoGrossi @Dr_AlRubaiy @philtozer1 @StMarksFRU @SpringerNature.
link.springer.com
Quality of Life Research - Cryptoglandular anal fistula continues to be a subject of extensive surgical research due to the lack of effective and enduring treatments, some of which incur risks to...
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Do you have or manage pouch anal or vaginal fistula? Get involved in our sister study! 👇🏽#colorectalsurgery #colorectalresearch #IPAA #SoMe4Surgery #ilealpouch.
First round of PAVFCOS delphi study is live! Please register at @StMarksHospital @PouchRed @IA_PouchGroup @CrohnsColitisFn @philtozer1 @SueClark16 @nusiqbal @CharleneTB84
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RT @StMarksFRU: Calling all fistula warriors! Please help us complete this anal fistula quality of life score & help change the face of fis….
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RT @philtozer1: Are you a patient with a non-Crohn’s anal fistula? We are developing a tool to measure quality of life and need your input….
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The resulting shortlist was recently discussed by a panel of patients and clinicians, to determine the final Core Outcome Set. We look forward to sharing our results soon!.
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To develop the COS, outcomes reported in literature were supplemented with those derived from patient interviews, then put to an international Delphi.
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Why do we need a Core Outcome Set for cryptoglandular anal fistula?. Review of the literature highlights heterogeneity of outcome reporting in fistula research. See our open access article!. @philtozer1 @DrUgoGrossi @KSahnan @nusiqbal @StMarksFRU.
link.springer.com
Techniques in Coloproctology - Treatment for cryptoglandular anal fistula (AF) is challenging and a lack of uniform outcomes in the literature prevents direct comparison of treatments. This can be...
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Only 2 weeks left to complete AFCOS round 2! Thanks to all those who have contributed so far @DrUgoGrossi @philtozer1 @StMarksFRU @StMarksHospital @escp_tweets @EsgarSociety @my_ueg @ACPGBI.
Huge thanks to the 200+ participants who completed AFCOS round 1. ROUND 2 IS NOW OPEN! Follow the link in the email, and tell us how we can better assess treatment for anal fistula @philtozer1 @DrUgoGrossi @ZimNl @StMarksHospital @StMarksFRU @ACPGBI
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Huge thanks to the 200+ participants who completed AFCOS round 1. ROUND 2 IS NOW OPEN! Follow the link in the email, and tell us how we can better assess treatment for anal fistula @philtozer1 @DrUgoGrossi @ZimNl @StMarksHospital @StMarksFRU @ACPGBI
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Only 1 week left to register and complete round 1! @philtozer1 @DrUgoGrossi @StMarksFRU @StMarksHospital @escp_tweets @EsgarSociety @BSGAR_UK @ACPGBI @my_ueg @ZimNl @GianlucaPellino @juliomayol.
If you're a surgeon, radiologist or proctologist experienced in assessing anal fistula, please get in touch! Lnwh-tr.afcos@nhs.net
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Only 2 weeks left for registration and round 1! Get involved @StMarksFRU.@ACPGBI @escp_tweets @BSGAR_UK @EsgarSociety @DrUgoGrossi @ACPGBI_PLG @philtozer1 Thank you to all those who have participated so far!.
How do you define success in treating cryptoglandular anal fistula? We need your help with this pan- European collaborative to determine a core outcome set for Cryptoglandular anal fistula @escp_tweets @BSGAR_UK @EsgarSociety @my_ueg @ACPGBI
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RT @philtozer1: Thanks to everyone who has already filled in and to everyone who’s about to! This a great, patient centred initiative drive….
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