Crohn's & Colitis Foundation
@CrohnsColitisFn
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Following
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Media
3,171
Statuses
18,177
Our Mission: To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.
United States
Joined January 2009
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Last Seen Profiles
@fred_guttenberg
Hi Fred- you may want to check out the Facebook Live video chat we did with
@IBDMD
&
@andrewbgrossman
which discusses
#COVID19
and
#IBD
. You can watch it here: . And if you have specific questions, please feel free to DM us or contact
@IBDHelpCenter
.
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73
575
Thank you
@theawkwardyeti
for nailing it with this comic- who can relate?
#IBD
#Crohns
#UlcerativeColitis
3
76
343
The future of IBD monitoring: a biosensor device that can measure inflammation biomarkers in sweat in real time.
#IBDInnovate23
12
31
326
Our thoughts & prayers are with Seven Bridges’ family as they cope with his passing. For many patients,
#ostomies
are life-saving appliances. We must continue to break the stigma that surrounds them in order to create deeper understanding & acceptance.
21
136
279
Lexie Brown, WNBA star from LA Sparks shares her battle with Crohn's disease. Thank you for your courage and for representing the IBD Community! Read her full story here:
4
58
226
Actor and
#Crohns
patient
@TylerJamesWill
is on his way to being
#FullyVaccinated
against
#COVID19
. During
#NMHM2021
, Tyler is encouraging others to be
#VaccineReady
.
6
25
195
Fatigue in IBD affects about 50% of patients in remission and over 80% of patients with active disease. Despite some patients reporting that fatigue can be more debilitating than IBD itself, it is often under recognized.
#CCCongress24
6
42
204
28 years ago today,
@PearlJam
released its debut album, Ten, one of the highest-selling rock records ever. It's fitting that today we're releasing a special
@PopSockets
from the band's lead guitarist &
#IBD
patient
@MikeMcCreadyPJ
!
(1/2)
📸: Karen Loria
4
22
199
Our statement on access to methotrexate for IBD patients following Roe v. Wade overturning.
3
123
191
Did you catch
@katelyn_ohashi
's viral gymnastics routine this past weekend? It was awesome for so many reasons (skills!) but what made it even more special is all that she's experienced as an
#ulcerativecolitis
patient. Check it out!
3
62
183
Last month,
@laurenlapkus
won $500,000 for the Foundation on
@millionairetv
. We sat down w/her recently to thank her for choosing us as her charity of choice, learn about her love of game shows, & discuss her involvement w/
#CampOasis
. Watch the interview:
3
10
136
Who spotted our Catalyst for Online Community Engagement award recipient
@GutlessGlamour
this
@Aerie
campaign? Way to go Gaylyn, breaking down
#IBD
&
#ostomy
barriers!
2
27
137
Mrs. Bush appeared in radio & television public service announcements for the Foundation, helping to raise national awareness of
#CrohnsDisease
and
#ulcerativecolitis
. Our thoughts and prayers are with the entire Bush family.
1
29
136
.
@DJ_DFunk
had the worst finish of his golf season the year he was dx w/
#UC
. But w/help of his doctors, nutritionist, coaches, & teammates, he pushed through- just weeks ago he made his professional debut, finishing in Top 20 at
@usopengolf
. Read more:
3
15
134
1
29
134
Read how
@Larrydn22
, power forward for
#LA
@Lakers
, learned to cope w/fatigue & blossomed in the
@NBA
:
#IBDvisible
11
39
116
Way to go
@laurenlapkus
winning $500,000! You had us biting our nails there!
@MillionaireTV
7
22
123
#Crohns
&
#UC
are
#invisibleillnesses
that can create physical & emotional challenges for patients. We asked the
#IBD
community what their biggest challenges are that they face while living with IBD. Here's what they had to say.
#IBDvisible
#CCAwarenessWeek
0
76
113
"Paying for
#Crohns
treatment in America is more stressful than my symptoms." Who can relate to Annalise's experience?
#IBD
#UlcerativeColitis
7
31
111
We extend our sympathy and condolences to the family of Brayden Smith, an ulcerative colitis patient and Jeopardy! champion who according to reports died due to complications following surgery to treat his IBD. (1/8)
10
11
110
Thank you to the 100+
#IBD
advocates who met with legislators on
#CapitolHill
today about
#steptherapy
reform & medical nutrition!
#IBDinDC
6
25
104
We are pleased to announce the appointment of our new
#CC360
Deputy Editor,
@DCharabaty
! Learn more about Dr. Charabaty and the
@IBDJournals
editorial board here:
16
11
107
Thrilled to kick off
#CCAwarenessWeek
a little early w/the unveiling of
@Saints
linebacker
@Michael_Mauti
's cleats for
#MyCauseMyCleats
! We're honored he chose to help raise
#IBD
awareness w/his cleats. Read more about his
#myIBD
story:
Photo:
@Saints
2
51
103
Tomorrow kicks off
#CCAwarenessWeek
! How will you be raising awareness this year? See all the ways you can get involved & help raise awareness of the impact of
#IBD
on
#mentalhealth
by visiting
#myIBD
2
53
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We are excited to announce that our new Chief Scientific Officer,
@moss_md
, will join the Foundation in September! Dr. Moss is a clinician-scientist who has focused his career on IBD, and he will oversee all of the Foundation’s research, education, support, and advocacy efforts.
9
10
105
Today is
#WorldIBDDay
! Throughout the day we will be sharing information and facts about
#IBDBeyondBorders
.
1
78
97
It’s the first day of
#CCAwarenessWeek
! Today, we are focusing on the theme of “I want you to know what IBD is.” Here are some fast facts about
#CrohnsDisease
and
#UlcerativeColitis
. How do you respond when people ask you “What is
#IBD
?”
#IBDVisible
2
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97
Love this 💜💜
#IBDVisible
#CCAwarenessWeek
Government House is illuminated for Crohn’s and Colitis Awareness Week to raise awareness on behalf of the millions of Americans living with inflammatory bowel disease.
#CCAwarenessWeek
#IBDVisible
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3
15
99
@SweetKaos26
@nickcarter
You can still
#partyonabike
even if you aren't in Vegas. Check out all of the spin4
#crohns
&
#colitis
cures events on our website:
1
16
90
Who watched
@usopengolf
last weekend? If you did, you might have seen some
#IBD
awareness in action!
@DJ_DFunk
, an IBD patient from Indiana, competed in his first
#USOpen
just weeks after graduating from college. Congratulations to Dylan on your Top 20 finish!
0
11
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.
@EW
poking fun at
#WorldIBDDay
& comparing it to
#BeyonceDay
. One might be a joke, but
#Crohns
or
#UC
isn't.
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On this day in 1967, Irwin and Suzanne Rosenthal, William and Shelby Modell, and Dr. Henry Janowitz founded the organization we know today as the Crohn's & Colitis Foundation. Today we celebrate 54 years of research, advocacy, support, and education for patients with
#IBD
.
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11
92
5 million people worldwide live w/
#IBD
. Educate someone during
#WorldIBDDay
.
#CCFAinAction
#UnitedWeStand2016
1
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Up to 86% of
#IBD
patients with active disease have fatigue, and 41-52% of IBD patients with mild to inactive disease have fatigue.
#CCCongress23
.
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23
91
Rates of anxiety and depression are about twice as high among
#IBD
patients than in the general population. Anxiety and depression symptoms are linked to more hospitalizations and increased risk of surgery.
#CCCongress23
3
23
89
We know that there’s a lot of information in the news a/b
#coronavirus
& you may be concerned.
@ibdgijami
(
@umichgihep
) &
@gastrodocmattar
(
@medstarguh
) helped us understand what
#COVID19
is & how it may impact
#IBD
pts. Read more on our
#IBDvisible
blog:
1
59
88
Vaccinated
#IBD
patients were less likely to have a severe case of
#COVID19
, be hospitalized, or die as a result of their infection.
#CCCongress22
5
15
86
Happy
#WorldIBDDay2022
from the team at our national headquarters in New York City! We'd like to thank all of the IBD patients, healthcare professionals, and community members who have helped us say
#GameOverIBD
today.
2
15
83
Happy
#PresidentsDay
! Did you know that our 34th president had
#IBD
? President Eisenhower had
#Crohns
& even had a bowel resection in 1956 due to an obstruction. Learn more:
0
42
82
What an incredible role model
@JakeDiekman
is for
#IBD
patients!
Great win today. Even better time after the game meeting Grant!! What an amazing young stud. So tough and courageous.
#ibd
#awareness
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901
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80
We're proud to stand with 15 national health organizations in urging all U.S. Senators to VOTE NO on the
#GrahamCassidy
bill.
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Researchers in Spain have developed an electronic nose prototype that can distinguish between
#Crohns
&
#ulcerativecolitis
, & tell whether disease is active. We're excited to see new tech applied towards the goal of dx
#IBD
more quickly & precisely in a pt friendly manner!
2
21
72
Abigail was diagnosed with
#Crohns
1 year ago. After steroids and biologic therapy failed to treat her
#IBD
effectively, she underwent surgery on her 19th birthday and made
#IBDVisible
in a belated birthday photoshoot to honor the strength she has shown in the past year.
2
4
75
On
#InternationalWomensDay
, we celebrate the female clinicians, researchers, & members of the
#IBD
community who are making a profound impact on the lives of patients. Tag a woman in IBD who inspires you! (1/2)
5
9
78
Thank you
@cedmull30
for sharing your story and raising
#CrohnsDisease
awareness! This is a great video that we know will inspire countless people living with
#IBD
.
Today, Cedric Mullins shares a very personal story for the first time.
Mullins was baseball's only 30-30 player last season, and he did it while battling Crohn's disease.
@cedmull30
|
@CrohnsColitisFn
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719
3K
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Living with
#IBD
can cause not only physical but also mental pain. In fact, rates of
#anxiety
&
#depression
are higher among IBD patients as compared with the public. Have you ever dealt with anxiety, depression,
#stress
, or embarrassment with your disease?
#SpillYourGuts
10
14
76
Half of all Americans suffer from a
#chronicillness
, yet the Administration has issued rules to allow some plans to discriminate against pts w/
#preex
conditions. RT if you believe all pts deserve access to quality, affordable
#healthcare
. It’s time to
#DefendPreex
.
1
83
76
Today is
#WorldIBDDay
- a day when the entire
#IBD
community comes together to
#StepUp4IBD
and raise awareness of and familiarity with
#Crohns
&
#colitis
. Around the world, IBD patients often face obstacles to accessing treatment. (1/3)
0
39
73
THANK YOU to everyone who helped raise awareness of
#Crohns
&
#ulcerativecolitis
during
#CCAwarenessWeek
! By standing together, we reached more than 1 MILLION PEOPLE on social media during the week. Together, we will unite to care and cure
#IBD
!
#myIBD
0
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70
The staff & volunteers of the Foundation mourn the passing of former First Lady Barbara Bush. Mrs. Bush was a longtime supporter of the Foundation, getting involved after her youngest son Marvin was diagnosed with
#ulcerativecolitis
in 1985.
0
22
74
2
31
73
Tomorrow kicks off
#CCAwarenessWeek
! What will you be doing to raise awareness and increase familiarity with
#Crohns
&
#ulcerativecolitis
? There are lots of ways you can get involved - check out our website and help make
#IBDvisible
:
0
38
73
We learned today that Japan Prime Minister
@AbeShinzo
will be stepping down from his position due to the challenges of managing his
#ulcerativecolitis
. Our thoughts are with him as he focuses on his treatment and recovery.
1
17
71
Happy
#NationalDogDay
! Reply to this tweet with a photo of your furry friends who help support you in your IBD journey 🐕🐩
27
7
71
Today the Foundation held a rally outside of United Healthcare’s Minnesota headquarters to protest UHC’s expansion of prior authorization for most endoscopy and colonoscopy procedures on 6/1. We were joined by
@AmerGastroAssn
@AMJGastro
@College
@IAFaccess
@ColonCancerCoal
4
26
71
1
2
70
"I proposed to Jenny at the Take Steps walk to show her that I will always support her and be by her side. I wanted to take a day that already means so much, a day when she feels most empowered and connected, and make it one she'll never forget."-Anthony
3
7
68
Thank you to the patients, caregivers, volunteers, healthcare professionals, researchers, donors, partners, and everyone else in the
#IBD
community for your support and partnership over the past 51 years - we won't stop our work until we find IBD cures!
1
19
69
Happy
#NationalDoctorsDay
to all of the amazing
#IBD
doctors! We are so appreciative for all you to to support
#Crohns
&
#ulcerativecolitis
patients.
1
21
70
We’re working with the Mark Cuban Cost Plus Drugs Company, a public benefit corporation, to increase awareness about accessing IBD medications at a lower cost.
@CostPlusDrugs
offers some IBD medications at significantly lower cost than other pharmacies.
6
23
68
Congrats
@JakeDiekman
on being awarded
#CCFA
's President's Leadership Award! You're an incredible advocate for
#IBD
patients.
#gutitout
2
15
68
It's officially
#CCAwarenessWeek
! Share why you're making
#IBDvisible
in just a few simple steps and create your custom infographic here: Use
#CCAwarenessWeek
and
#IBDvisible
to see posts from the IBD community all week long!
0
35
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We can’t wait to have
@nickcarter
of the
@backstreetboys
#partyonabike
with us in Vegas next Friday! Nick, thanks for using your
#power2cure
! VIP teams raising $2,500 or more will also get a meet & greet. Learn more -
Not in Vegas?
1
20
66
Wondering what goes on in an IBD research lab?
@DrJordanAxelrad
, an
#IBD
researcher &
#Crohns
patient, recently showed us around his lab in NYC. To learn more about IBD research, join us live on Facebook at 6 p.m. ET with our CSO Caren Heller.
#CCAwarenessWeek
#IBDVisible
3
17
66
We're loving this feature from the
@TODAYshow
about Nicole and her journey with
#Crohns
: "I wish people realized it's a very intense disease that appears invisible."
1
23
66
Sometimes images convey how you're feeling better than words can. What's your favorite meme or GIF to help explain what it's like to live with
#IBD
to others?
14
9
64
I am one of more than 1.6 million Americans affected by
#IBD
. Learn more about
#myIBD
during
#CCAwarenessWeek
.
1
51
63
We need YOU to be
#IBDvisible
during
#CCAwarenessWeek
! Visit our website to find out all the ways to get involved:
2
61
59
"My sickness has made me stronger...I like to tell folks who are newly diagnosed with IBD to hang in there. You can do amazing things with your life despite the horrible diseases" -
@sonyagoins1
3
14
64
We'll take great ways to kick off
#WorldIBDDay
for $1000, Ken.
We're honored to have been included in last night's Jeopardy game!
4
19
63
Join
@CrohnsColitisFn
&
@NFL
linebacker &
#UC
patient
@Michael_Mauti
for a
#WorldIBDDay
Twitter chat on 5/19 from 12-1pm EST.
1
27
61
Aaron showed me that regardless of my disease I was still adored and loved by so many people. He helped me build my confidence and to find joy in pursuing the things I once loved
#WhyITakeSteps
0
9
63
4
4
61
1
40
61
We're making a big splash on
#WorldIBDDay
& announcing that Olympic swimmer
@KathleenBaker2
is our new
#TakeSteps
national ambassador! Watch her talk a/b how she manages
#IBD
while traveling the globe. Form your team today:
#IBDBeyondBorders
#IBDvisible
1
15
62
For every day of
#CCAwarenessWeek
, there is a new way for you to make
#IBDvisible
! Join us Dec. 1 - 7 as we raise awareness of
#CrohnsDisease
and
#UlcerativeColitis
and advance our mission to find cures and improve the lives of people living with
#IBD
.
0
40
63
Sources of trauma in IBD:
- uncontrolled or prolonged pain
- repeated uncomfortable or painful procedures
- hospitalizations
- surgeries
- highly negative interactions with care providers
- exposure of intimate parts of the body to strangers
#CCCongress23
1
15
59
Happy Halloweekend! Are you dressing up this year? Let us know what your costume will be.
2
8
61
Brief look at the
#IBD
treatment pipeline and what’s in the works. Lots of potential new treatments in the works - very exciting!
#cccongress21
5
17
61
.
@JordanAxelrad
's career path was influenced by his experience being diagnosed with Crohn’s at 19. He now treats patients at
@nyulangone
who, like him, are living with a lifelong debilitating digestive disease. Read Jordan’s full
#myIBD
story:
2
16
60
(1/4) There are not enough public restrooms in America. In Michigan, a person with ulcerative colitis was recently denied access to an employee restroom at a local business, which led to them having a bowel accident in public.
6
15
59
14
284
953
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15
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Women with
#IBD
may face challenges throughout their disease journey, including concerns about having children, attractiveness, feelings about their body, & feeling alone.
#CCAwarenessWeek
#myIBD
0
23
60
The Crohn's & Colitis Foundation contributed to the reporting for this article about Christopher McNaughton, a UC patient who fought back against his insurance company when he was notified that his insurer was not going to cover his medication.
4
18
59
Having
#IBD
& a job can be challenging at times. Most individuals can work; however, some patients find they struggle to manage IBD & their job. There are federal & state laws that protect people w/IBD in places of employment. Learn more:
2
19
59
TY to everyone who raised awareness w/us during
#CCAwarenessWeek
! We were blown away by the # of people who courageously shared their story, created an infographic, & more. You made a huge impact in raising awareness of
#IBD
's impact on
#mentalhealth
& all walks of life.
#myIBD
0
14
56
Meet today's
#OstomyOctober
feature -
@LondonHarrah
: "I will continue to fight through obstacles that I am faced with and set the best example that I can for my son on how to be strong and fight for what you believe in."
#OstomyDayUSA
0
7
57
"I can’t tell [Crohn's] I’m having a hellish week at work, or that I’m still trying to get to know this guy so could it please just hold off a few short weeks. I don’t get a break, and honestly, neither do the people in my life." Read Hannah's story:
1
20
59
What do
#IBD
& basketball have in common? Find out on 9/1 during Twitter chat with
@Lakers
power forward
@larrydn22
!
2
25
54
We love meeting
#IBD
advocates! Thanks for visiting
@RebeccaZamolo
& for all you do for patients with
#UC
&
#Crohns
!
http://t.co/Um4d6dG2T5
1
17
55
It's
#CCAwarenessWeek
! Join our
#IBDvisible
photo challenge to show the invisible ways
#IBD
affects pts & their loved ones. Post 1 photo per day using the topics in photo. Tag us and use the IBDvisible hashtag to be part of the larger conversation!
2
35
58
The impact of
#Crohns
&
#ulcerativecolitis
extends far beyond just physical symptoms- it can have an impact on your emotional health as well. Check out these seven stories from
#IBD
patients discussing how having it has affected their
#mentalhealth
.
#HCSM
2
35
52
.
@MikeMcCreadyPJ
is ready to
#Spin4cures
in
#Seattle
! We'll be live on Periscope from there in 10 min.
0
17
55
Today is
#WorldIBDDay
! What better way to take
#IBDBeyondBorders
than to learn from patients in
#Australia
,
#Brazil
,
#Canada
,
#China
,
#India
,
#Kazakhstan
,
#Poland
, the
#UK
, and
#Zimbabwe
about what it's like to have
#IBD
in their country:
#IBDvisible
2
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