Ady Barkan
@AdyBarkan
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Fighting for social justice. Co-Executive Director, @BeAHero . Husband to @rachael_scar , Abba to Carl & Willow. Paralyzed by ALS. Author: Eyes to the Wind.
Santa Barbara
Joined September 2009
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Pinned Tweet
Hi all, this is Ady’s wife, Rachael. I’m devastated to share the news that Ady has died from complications of ALS. You probably knew Ady as a healthcare activist. But more importantly he was a wonderful dad and my life partner for 18 years. [1/4]
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Cornel West needed only 39 seconds to persuade Tucker Carlson to explicitly embrace democratic socialism.
Tucker Carlson finally met Jesus, turns out it was Cornel West the entire time.
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.
@SteveScalise
,
These are not my words.
I have lost my ability to speak, but not my agency or my thoughts.
You and your team have doctored my words for your own political gain.
Please remove this video immediately. You owe the entire disability community an apology.
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I got to do genuine childcare yesterday. For fifteen minutes, I held her while the rest of the family ate dinner. Pretty fulfilling. I didn't know if I would ever get that chance.
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Took me 36 years to get a spot at the DNC. Took Willow only 9 months.
My
#DemConvention
speech.
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Fuck you.
There should be no place in politics for language like this. Pointing out that the President also speaks crudely is no defense. We should be better.
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I just learned that last night after the Senate vote, peaceful protesters in the gallery were telling personal stories about how this bill will hurt them and their families.
And Republican Senators were laughing at them.
It explains everything.
They do not see our humanity.
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The massive scandal about Republican senators trading on coronavirus intel didn't even last one news cycle.
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You know what help mitigate coronavirus?
1. Medicare For All
2. Paid Sick Days
3. A smarter fucking president.
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I'm stoned for the first time in ages.
It's good to be back.
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Just realized that today is five years since my diagnosis with ALS. I'm glad to be with you.
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I CAN WALK!
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She spent 27 years in the minority, dissenting.
She spent 4 years trying to outlive this presidency.
She died fearing for our democracy.
The next chapter is up to us.
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.
@JoeBiden
is everything Trump is not. He has turned loss into purpose: the purpose of public service.
Although he & I have different perspectives on the world, winning this election is essential.
Then we can continue our struggles for justice with a compassionate president.
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Thank you,
@ewarren
. You are right: this health care system is unconscionable. My family needed
#MedicareForAll
yesterday.
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@BernieSanders
has done more than anyone else to build the movement for
#MedicareForAll
.
He has reshaped American politics. Reshaped what we think is possible. Reshaped how we dare to dream.
But, of course, it's not about him. It's about us.
And I'm all in.
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Tonight , Democrats in Congress are stepping the fuck up -- for immigrant youth, for kids who need healthcare & for our movement.
Bravo,
@NancyPelosi
.
Bravo,
@SenSchumer
.
You give America 10 more months of this & we will give you a
#BlueTsunami2018
.
Winning feels so good.
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Kavanaugh must be removed from the Federal Judiciary.
Please RT if you want a member of the House to file Articles of Impeachment on Monday.
Brett Kavanaugh used materials stolen from Democratic senators to advance President Bush's judicial nominees. He was asked about this in 2004, 2006 and this week. His answers were not true.
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I'm getting arrested in DC today because I'll give every ounce I have left to stop the
#GOPTaxScam
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Today I’m excited to endorse
@NancyPelosi
for Speaker of the House of Representatives.
It’s really important that all progressives push to elect her in the coming weeks, for 3 good reasons.
Short thread below.
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If you're unhappy, please sign this petition from Jewish Voices For Peace urging Congress to pass HR 2590.
It would stop the use of US dollars for war and apartheid
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An update on my health.
It’s been increasingly hard for me to breathe on my own, so I’m going to the hospital for a pretty big surgery tomorrow.
I am getting a traecheostomy. Heavy times for our family.
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Really,
@JeffFlake
?
I feel like decency lost when you ignored my pleas, raised American families' taxes, & took away health insurance from 13 million people just to enrich developers & hedge funders.
But I know that for you words don't need to be backed up by action.
This mug was left at my door today. Thank you. What a thoughtful Christmas gift.
#DecencyWins
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My ALS has progressed to the point where I now need full-time care, and it costs our family $9,000 per month. My family needed
#MedicareForAll
yesterday.
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My son is 3. He negotiates over everything. Aggressively.
He makes outrageous opening offers.
He reopens settled topics.
He walks away from the bargaining table.
I am so proud.
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@SenatorCollins
I'm just a young man
And my story's being told.
You have squandered your resistance,
For a pocket full of mumbles,
Such are promises.
All lies and jest,
Still a Senator hears what she wants to hear
And disregards the rest.
Hmmmm.
But the fighter still remains.
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You promised us you were only voting yes because you had a guarantee this would be law by January.
We warned you that you were being played.
You voted yes.
They reneged on their promise.
Are you a fool or a liar?
And doesn't Maine deserve a Senator who is neither?
Alexander, Collins statement on bills to lower health insurance premiums:
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I'm being admitted to the hospital tonight for the first time since I was 13.
I got pneumonia because, most likely, I aspirated food or liquid.
This is how ALS works. It gets worse and worse. Life becomes harder and harder. Even fun becomes more arduous.
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I have ALS. It's hard for me to breathe lying flat in bed.
My doctor prescribed me a Trilogy breathing assist machine, which would solve the problem (for now).
But my insurance,
@healthnet
, just denied coverage, calling it "experimental."
It is totally normal standard of care.
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This is how they destroy our democracy.
The Postal Service has informed states that they’ll need to pay first-class 55-cent postage to mail ballots to voters, rather than the normal 20-cent bulk rate. That nearly triples the per-ballot cost.
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You’re telling me, young man. You’re telling me.
Treat every election like it’s the last one you’ll ever have.
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The debates aren’t giving us the healthcare conversation we need.
So we asked the presidential candidates to talk to me about their plans and their personal stories.
Coming soon….
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I was arrested by Capitol Police for sitting peacefully, eight times.
These rioters get escorted out to freedom?
Sergeant at Arms says they expect it to take half an hour or an hour to clear the Capitol.
They have protestors contained to one area and are just working on getting them out.
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We may disagree, but healthcare is far too important to
@JoeBiden
and I to not have this conversation. Mr. Vice President, you're the only candidate who hasn't agreed to sit down with me.
When I'm back from my surgery, let's talk.
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Starting the journey from CA to DC for my testimony at the
#MedicareForAll
hearing on Tuesday. It's hard with ALS, I won't lie. Even in this massive wheelchair they still check me at security!
See you soon.
#BeAHero
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Prediction:
This season, some creative NFL players will find a way to protest white supremacy while standing.
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Thank you all for your kind messages! Privileged to say that I am home with Carl and
@rachael_scar
.
@JoeBiden
, my invitation still stands. We may disagree, but if you want to be president, you'll have to have some hard conversations.
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The great Stephen Hawking has died, after thriving for 5 decades in spite of the crazy disease that's destroying my body.
In red
#PA18
, a pro-worker Dem has won by arguing that greed is destroying our economy.
I'm going to sleep inspired by both, ready to fight to my last day.
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It was so special to see you today,
@ewarren
. I told her that she is showing people what a racial and economic justice agenda looks like; shaping public discourse.
She said, "well, we do it together."
Indeed. I'll be thinking of her words tomorrow.
#MedicareforAll
#BeAHero
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Things I Miss:
Pulling socks over my feet
Eating cereal before bed
Slicing garlic, sautéing onions
Washing my hair
Unlocking the door
Turning pages
Dressing my son.
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We have a growing anti-semitism problem in America.
@IlhanMN
is not part of it.
@lindasrsour
is not part of it. They are allies of mine and of Jews across this country who are fighting for peace, racial justice, immigrants’ rights, and the defeat of fascism.
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@BeaHero
Ady fought for the 24/7 care he needed to be home with us until the end of his life. It’s impossible to thank his incredible caregivers enough for their labor and care, which allowed us to live as a family through Ady’s health challenges. Everyone should have that chance. [3/4]
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#CorkerKickback
exemplifies what Americans find disgusting about politicians.
By retiring
@SenBobCorker
freed himself from need to cater to Trump.
He promised he wouldn't vote for a deficit increase.
Then traded his leverage for cold hard $$$.
Corruption is shameful.
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Senator, thank you for listening to my story, engaging my arguments, and offering kind words. Your words have been potent all year. But now baby Carl and I need you to back them up with your votes. This is your moment. Be America's hero.
I enjoyed the conversation, Ady. We won’t always agree, by I admire your courage and knowledgeable advocacy.
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My (in utero) baby girl just stretched her legs and gave my hand a solid kick.
I can't wait to meet her in a few short weeks.
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So Ted Cruz, John Cornyn, WSJ, and right wing trolls are all coming after this campaign. A campaign powered by 40,000 small dollar donors. Started by a dying guy with ALS begging not to be kicked off healthcare and hundreds of Mainers begging to be heard. We will not be silenced.
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Hag sameach!
The flame by my name means that I'm Jewish, and that I believe that my liberation is tied to yours.
In 2020, let's struggle arm in arm to defeat bigotry and oppression around the world.
We shall overcome.
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As a man dying from one, I know that brain disease is no fun. What's happening to
@realDonaldTrump
's brain is sad, scary & dangerous. For him, his family & the world.
I'm no doc. But ask psychiatrists/neurologists. They are unequivocal. He has dementia.
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I may be dying, but I'm not going quietly. I shot this ad to support
@hiral4congress
, who is running in
#AZ08
. The election is April 24th.
Help me share my story with a donation of $24. We'll show this ad to voters across the district: .
#BeAHero
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As my voice has gotten weaker, more people have heard my message. As I lost the ability to walk, more people have followed in my footsteps...
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Can you believe it? My insurance company,
@healthnet
, did it again!!!
Two weeks after denying me a ventilator because it was "experimental," they denied me access to the brand new FDA-approved ALS drug.
So I paid them a visit. It was totally mind-blowing.
'I want to help the American people see just how broken this system is.' — This man with ALS was denied life-saving treatment. So he confronted his health insurance company to find out why
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Just passed, 96-1!
Congratulations to the many people who have worked so hard to achieve this historic victory!
The Senate is currently voting on a bill to eliminate the five month waiting period for people with ALS to receive Social Security disability benefits.
So exciting!
Once it passes, the House needs to send it to the President asap.
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Hey
@SpeakerRyan
,
Mark my words.
If you try to undermine Medicare, Medicaid, or Social Security, the American people will rise up in a tsunami of Resistance bigger than anything you saw in 2017. And we will take your job.
Yours,
Ady
P.S.
Merry Xmas you mean-spirited Grinch.
Congress has left a conservative imprint on the courts, taxation, regulation and the environment. Next up: poverty programs.
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To every candidate who doesn’t support
#MedicareForAll
: I had to sue my insurance company to cover my ventilator. I pay $9,000 per month in medical bills. How will you fix that?
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They said to use their words against them, so we will.
We will hold them accountable to their words, no matter how they may try to squirm, wriggle, and weasel their way into grabbing more power.
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Grateful for the kind United workers, especially
@DorisGunnell
, who helped me get on and off the plane yesterday. Traveling with ALS takes a village. I’m lucky to be here traveling around DC today with my friends and comrades. Stay tuned
#MedicareForAll
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I pay $9,000 per month for the cost of full-time care,
@JoeBiden
. I'm grateful for the Affordable Care Act, but the status quo is broken. We need
#MedicareForAll
.
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I got arrested (again) today.
I did it in solidarity with the brave women who have led the movement against sexual violence for decades.
It cannot be their struggle alone. In this moment, we must join together to
#StopKavanaugh
. He is unfit to serve.
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Are you outraged, scared, or triggered by what Donald Trump and his supporters are saying about
@IlhanMN
?
Join me in donating to her campaign TODAY so they can pay for a security detail or anything else she needs to stay safe & stay in Congress.
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I filmed this message to
@MeghanMcCain
and her father
@SenJohnMcCain
- Please take a look and share.
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I am deeply disappointed in
@SpeakerPelosi
for her failure today.
When AIPAC and its army try to silence criticism of the immoral, illegal, inhumane occupation by screaming about anti-semitism and claiming that nobody may ever talk about how the Israel lobby...
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To anyone that wonders how we will pay for
#MedicareForAll
: remember that we already pay more per person on health care than any nation on Earth.
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“The work of democracy is about trying to do together what we cannot do individually. And so for me the best way to escape my disintegrating body is to engage in this collective struggle.”
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I'm stoned for the first time since last night.
It's really good to be back.
I'm stoned for the first time in ages.
It's good to be back.
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I got to sit down with my friend
@BernieSanders
. I got to thank him for his sacrifice and his leadership in our movement.
He reminded me of the long struggle we are in. He reminded me that we will win.
Tonight, I feel hopeful. Tomorrow, I testify.
#MedicareForAll
#BeAHero
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.
@SpeakerPelosi
is the most powerful & effective Speaker of my lifetime. She uses her power to build a more just & equitable America everyday. She fights for the people of
#CA12
-- on healthcare, workers rights, our democracy, and more. I am proud to endorse her for reelection.
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Every NBA player is getting tested, no problem. But this poor man? Nope.
He gave his wife CPR as she died after contracting coronavirus. Officials won't test him
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This is disgusting.
Bibi created this crisis because he was days away from losing power. Everyone in Israel knows this. Bibi is committing war crimes. And President Biden is cheering him on.
Unconscionable.
Today the President spoke with Israeli Prime Minister Netanyahu, reaffirmed his strong support for Israel’s right to defend itself against rocket attacks from Hamas and other terrorist groups in Gaza, and condemned these indiscriminate attacks against Israel.
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I can’t walk. I can barely talk. And I haven’t got much time left.
I’m throwing myself into this midterm because it is so important to my son’s future.
Knocking on doors is more important & more fulfilling than almost anything else you can do. Join me.
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Because the stakes of her replacement are so enormous, we are not even taking a moment to celebrate her life and accomplishments.
Tragic.
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We need different Democrats.
More of this please! Appreciate the civil, bipartisan friendship and leadership of
@LindseyGrahamSC
and
@SenFeinstein
.
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Thank you
@ewarren
.
Your candidacy has been simply stunning: From your historic platform to your exceptional modeling of what it means to be humble and open to critique to your repeated recounting of the history of America's freedom fighters.
You have so much to be proud of.
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Being in this movement gives me strength & purpose. It allows me to make meaning out of ALS.
Struggling by your side, I can transcend my withering body. Hitching my future to yours, I can transcend this difficult day.
That is the power of solidarity. The beauty of democracy.
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Willow turned one week old a few minutes ago.
They grow up so fast.
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This is cruel and inhumane.
After Latino event I asked Buttigieg if non-citizens could access benefits of “Medicare for all who want it.” He says they could buy in, but not get subsidies. (Medicare for all legislation covers non citizens.)
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“In this country, the wealthiest in history, we do not have an effective or fair or rational system for delivering that care... High costs, bad outcomes, mind-boggling bureaucracy, racial disparities, geographic inequities, and obscene profiteering.”
#MedicareForALL
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Today, I am suing my health insurance company,
@healthnet
, for failing to provide me with full care for ALS. I should be at home spending time with my son, but instead I am here fighting.
Because he deserves to grow up with a better healthcare system than we have.
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I have received more messages of love and solidarity this week than any person deserves in a lifetime. For that I am forever grateful. And our struggle against this immoral tax scam will reach its climax next week.
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I’ve been waiting to share this with you all for a long time.
Here’s the trailer for Not Going Quietly, the documentary
@PeoplesTV
made about me, my family, and the progressive movement.
In select theaters August 12.
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The rent is due April 1st.
How are Americans supposed to pay when everyone has lost their job? Congress's checks won't arrive for weeks.
We need a moratorium on rent. And mortgage payments.
Now.
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I may be losing my voice, but I can still send a message, and I have one for
@SenatorCollins
:
If you vote for Kavanaugh we will fund your future opponent for 2020. Vote NO and
#StopKavanaugh
#BeAHero
Pledge $20.20 to this campaign and share it:
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Just now seeing that the Biden campaign issued a vile and dishonest statement against my beloved sister
@lsarsour
.
Linda is a fierce advocate for justice and freedom, and a leading antiracist and organizer against antisemitism.
The Biden campaign must retract and apologize.
Our sister
@lsarsour
is an outspoken advocate of justice for all, including the Jewish community. Smearing her and other American Muslims as anti-Semitic for supporting Palestinian human rights is predictable, despicable and unacceptable. Our political leaders must stop doing it.
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.
@SenJohnMcCain
, you and I are each in a fight for our lives right now. Your junior colleague had the integrity to listen to my story and consider my pleas. If I come to D.C. on Wednesday, will you do me the same honor?
I enjoyed the conversation, Ady. We won’t always agree, by I admire your courage and knowledgeable advocacy.
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.
@ewarren
just released her plan to fund Medicare for All. It is, I think, the greatest piece of public policy jiu-jitsu that I have ever seen.
But more importantly, it is a landmark moment in our multigenerational struggle for health care justice.
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Thank you, Bernie. For everything.
There are very few people in the country doing more to make Medicare for All a reality than
@adybarkan
. I'm proud to call him a friend and I look forward to fighting alongside him to guarantee health care for all Americans.
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When you near the end of your life,
@SenatorCollins
, you will care deeply about your legacy. Trust me, I know.
Here's the full video of Sen Susan Collins comments on Kavanaugh, whether she still supports him, whether vote should be delayed.
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I’m watching the hearing & I’m furious.
@ChuckGrassley
, your behavior is disgusting. And, unlike w/ Collins, we know where you stand.
We are launching a grassroots campaign right now to fund your 2022 opponent. If folks want to unseat you, they’ll click
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218 FTW, Madame Speaker!
We are all profoundly grateful for you,
@AdyBarkan
. Your passion for saving our health care and charting a new path for progressive change were an inspiration throughout the campaign. Your labor of love helped us win the House in order to deliver
#ForThePeople
. –NP
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The men pushing this tax bill have been breaking promises from the start. My message to
@SenatorCollins
– the cost of misplacing your trust on this bill is too great. Please vote your values and stand up for us.
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Safe and sound in our hotel in DC after a long flight. Headed to bed to rest up for a big 2 days ahead of us.
I am already feeling the power of the thousands of patients, nurses, doctors and advocates who have been fighting for this moment.
#MedicareForAll
#BeAHero
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