Janet Stockley-Pollard
@1968jsp
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I believe that life is for living. Everyone is special and I will always do what I can to help others
Joined November 2021
https://t.co/5KbnrwhWqR
@oacsireland @OACSCharity @ValproateUK @facsaware @PSCommissioner @BBCNewsnight @edwardjsault @Channel4News @thismorning @loosewomen When are the government going to listen, if not to us, then our children??
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Final NHS performance stats before the #generalelection2024 📊 The elective waiting list increased this month to 7.6 million - higher than this time last year and much higher than the 2019 election (4.6 million). Read @TheKingsFund's response:
kingsfund.org.uk
Siva Anandaciva, Chief Analyst of The King's Fund, responds to the latest NHS performance statistics.
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Great news that High Court threw out the new protest laws. In 2013 we protested outside MHRA and they brought us in to discuss shortly after. Direct action was our last resort. Photo courtesy of Warwick Sweeney @CarolineLucas @DianaJohnsonMP
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Followers of Infact have signed up to a Trust run by 3 private individuals. Other groups want money to held in a neutral body. You may register (or unregister) here until the @PSCommissioner develops a full redress scheme or contact the PSC directly. https://t.co/DIFwFLCyDk
docs.google.com
Send your contact details to help our cause, join our membership and receive news updates.
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Busy day filming in London with families impacted by sodium valproate, including one family from #WestSussex. Find out why they now see hope on the horizon on @BBCSouthNews at 630pm with @DavidSouthTV
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Today, we attended parliament for the Hughes Report. It recommends redress for those harmed by Sodium Valproate and Mesh.@PSCommissioner @mariacaulfield
@firstdonoharm
#valproate #epilepsy
#disabilities @redress
https://t.co/EJa38bmzo2
janet4kidz.wordpress.com
My life changed in so many ways when I became a mum, 25th April 1988, but not in the way you would expect…. I remember when I was fell pregnant unexpectedly I went to my GP. I wanted to know …
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https://t.co/QhsRgdRyCn Powerful testimony from Karen Buck on the heartbreaking harm caused to her children by #valproate #redress
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It is good to see that new regulations mean people should finally be able to make informed choices.. @PSCommissioner @OACSCharity @oacsireland @ValproateUK @facsaware @CLapidge @karenbuck1234
@edwardjsault
New information uncovered by @HSJ on the continued prescribing of valproate without adequate warnings shows how ineffective the current regulations are - it is the government that holds responsibility for valproate exposure in pregnancy
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@MHRAmedicines Please can Everyone get behind the Families harmed by Epilepsy Medication #Valproate 20,000 plus Children Harmed in the UK alone, need power of the people to get #Redress from the UK Gov. See why https://t.co/dZSBiN0iPL…
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The government told us that is what benefits are for...another battle in an already difficult life..Karen you were so brave @karenbuck1234 @PSCommissioner @OACSCharity @oacsireland @CLapidge @ValproateUK @ShaunLintern @BBCSouthToday @Jeremy_Hunt @wesstreeting
"I shouldn't have to face my little girl in that bed every day fighting for her life" All four of Karen Buck's children were born with disabilities after she was prescribed sodium valproate whilst pregnant. She tells #Newsnight how difficult life is for her and her children.
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Just a reminder of the ongoing struggle for understanding of FVSD and the battle behind the smiles of the victims for justice
OACS are looking forward to seeing @bbcsouthtoday TV program in a few weeks. How #Valproate impacted 2 families.2 Young Men talk about the devastation of passing Transgenerational harm of Valproate to their Children @PSCommissioner @karenbuck197150 @ShaunLintern @Janeinthejam
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@DonnellyStephen @roinnslainte Great thanks to @janemoore__ @thejournal_ie @conwaywalsh Reporting on the #Valproate historical #injustice to Irish women.. Six months on, chairperson yet to be appointed to #inquiry into drug that causes #birthdefects
thejournal.ie
The inquiry into the historical licensing and use of the drug in Ireland was approved by Cabinet in July last year – but still has not begun.
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Read my evidence to the health select committee's evaluation of government progress on meeting patient safety recommendations at
committees.parliament.uk
Written evidence submission publications for Health and Social Care Committee.
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Bridget Coyle is the worst harmed children from sodium valproate. She is bed bound and severely brain damaged needing constant care. Her mum Karen, whose epilepsy led to daily seizures, had to get a solicitor to fight for her own PIP: "It was the worst experience of my life" 6/8
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Branwen Mann, 28, also had to fight for her PIP payments despite her permanent diagnosis of fetal valproate spectrum disorder, a recognised condition by the NHS. She fears how her and her sister will cope when her mum is no longer around; 5/8
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Sodium valproate was given to thousands of women with epilepsy since 1970s, when risks to their babies were kept hidden from them by drs and regulators. 4 in 10 babies are born wth severe learning disabilities, autism and physical deformities. 4/8
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Steve Pollard, pictured below has had to go to multiple @DWPgovuk tribunals for his children where they have to justify their existence. "The way they question you, it’s like they don’t believe most of what you say. They make you feel like you’re lying." 3/8
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Sodium valproate is a drug mainly used to treat epilepsy. But taking the drug when pregnant can cause serious harm to unborn babies - and it's estimated to have harmed 20,000 children in the UK. File on 4 investigates - tonight on Radio 4 at 8pm. https://t.co/xyfZSSkryC
bbc.co.uk
File on 4 investigates the drug Sodium Valproate and its impact on thousands of children.
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Important announcement - please share this video with your friends to spread the word. x
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@RoyalFamily Her Majesty The Queen, thank you for your service & dedication to your country.
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