Sheena Chew, MD
@sheenachew
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Dedicated to taking care of and developing treatments for people with ALS | @MGHneurology and @Harvardmed | Tweets my own
Joined February 2009
Stay up to date on news about the HEALEY ALS Platform Trial, and the impact COVID-19 will have on it, here: https://t.co/SXTtp0zHiG
@MeritCudkowicz @PaganoniMDPhD @GSVLab
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To hear us talk about it, you’d think a hospital was only populated with doctors and nurses... sometimes we will add on mention of “and other staff.” We can’t care for a single patient without those “other staff.” Here are a few (thread).
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The Healey Center for ALS has received approval from the U.S. Food & Drug Administration (FDA) to proceed w/administering 3 proposed drug regimens in the HEALEY ALS Platform Trial – the first trial of its kind for ALS. @MeritCudkowicz @PaganoniMDPhD @GSVLab @sheenachew @bsw5020
#MGH's Healey Center and its collaborators are one step closer to accelerating therapies for people with #ALS. Read the full press release here. https://t.co/FoTQ0kHLEa
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This whole thread is worth reading. This is the way to think about drug development.
Today: "The Patient-Scientist's Mandate" — how the work we do to develop a drug for prion disease is informed by Sonia's perspective as a patient at risk. There are 3 ways that we sometimes diverge from other scientists.
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The hustle (and persistence and innovation) and is strong in these two. Glad to have them on the team fighting #ALS #MND. Congrats again @justin_klee @JoshuaBCohen1
Most drugs for ALS fail in testing. But this one, hatched by two fraternity brothers who came up with the idea in their Brown University dorm, worked, @PaganoniMDPhD says. A terrible disease, an unlikely drug discovery story. @AmylyxPharma
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We will change the world. We will #EndALS and unlock #CuresForAll. We will do it together. For the incredible friends and family we still carry with us in this fight and for every person battling a neurodegenerative disease today.
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Congratulations and thank you to the pALS who participated, and to @PaganoniMDPhD, @MeritCudkowicz, @AmylyxPharma, @justin_klee, @JoshuaBCohen1!
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!!!!! After decades of failed trials in #ALS #MND we have the first successful trial in the US, and second worldwide in a few years! And done using a patient-centric trial design! The momentum is building for #CuresForAll! This is just the beginning of the wave! What a day!
BREAKING: @AmylyxPharma has announced that treatment with its investigational agent AMX0035 (Elybrio) resulted in a statistically significant slowing of disease progression in patients with #ALS compared with placebo. https://t.co/ZMDV7A0scz
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Congrats to the winners of the inaugural Healey Center Award for Innovation in #ALS #alssymp @MGHNeurology @MeritCudkowicz
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Join @FTDunitBoston Speech and Language Team tomorrow, Dec 6th at 11:00AM EST for our first Learning Livecast, More Than Words: Understanding Primary Progressive Aphasia. #PPA #speechtherapy #ENDFTD #FTD
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Proud to share our new study https://t.co/aiHMFfrw0p assessing the neuroprotective effects of cromolyn sodium in an ALS mouse model. Thank you to @ProjectALSorg, the co-authors, and collaborators! @RudyTanzi @MeritCudkowicz @PaganoniMDPhD @lehoang306 @MGHNeurology @MGH_RI
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New ALS gene discovered thanks to 12,000 research participants who generously donated DNA samples and hard work from @AmmarAlChalabi research group. The more we know about #ALS #MND disease mechanisms, the better
Studying the genes of about 12000 people we have found a new #ALS #MND gene, DNAJC7. The DNAJC7 protein helps other proteins fold into the correct shape, and helps clear damaged proteins. When this goes wrong proteins build up in nerve cells and they die. https://t.co/KfBshyLDll
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Are you one of the many pALS who had genetic testing this year? Grab your genetic test report and sit down with Jennifer Roggenbuck, Genetic Counselor @OSUWexMed, this Fri. at 1 PM EST to discuss what it all means. Click here to register for the webinar: https://t.co/9ynBXwCQf3
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FYI, the Les Turner Symposium on #ALS is open to scientists, clinicians, pALS, cALS, general public. For those of you who are interested, the link to registration is in @DrOzdinler's tweet below! Options to attend in person or live stream.
https://t.co/uKSAd07iF9 Dear friends, especially friends who are in Chicago, please register for the Les Turner Symposium on ALS and NeuroRepair. Students, scientists please submit your abstracts, share your research.A Cure will not drop from the sky, we will develop it together
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Excited to be at #ANA2019 and present on the HEALEY ALS Platform Trial, the first trial of this kind in #ALS #MND. Please stop by at the poster session tonight and don’t miss the plenary on Tuesday- @MeritCudkowicz @MGHNeurology @MGH_RI
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Congrats @MeritCudkowicz on this important and well deserved award #ANA2019 - don’t miss her plenary talk on Tuesday! Exciting progress in #ALS #MND #clinicaltrials ! The HEALEY ALS Platform Trial will launch in 2020 @NEALSConsortium @MGHNeurology
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After being diagnosed two years ago, Brian Wallach founded and launched the “I Am ALS” organization, raising millions for research and leading the charge for increased federal funding directed towards ALS. @mollymhunter has this week’s Sunday Closer.
today.com
Two years after Brian Wallach was diagnosed with ALS, the former Obama White House lawyer is vowing to go all in to find a cure. NBC’s Molly Hunter has this week’s Sunday Closer.
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We are delighted to host Professor Robert H. Brown, the Vice Chair of the Department of Neurology at UMass Medical School at @kingsmnd @UMassBoston
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Nonstop from #NEALS19 to Boston for the @MGHNeurology Research Retreat. @GSVLab presents interesting signaling and metabolic pathways that are disrupted in #ALS #MND. Look out for their talks and posters at #SfN19 as well! @PaganoniMDPhD @MGH_RI @KNicholsonMD @MeritCudkowicz
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