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Project ALS Profile
Project ALS

@ProjectALSorg

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Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and, ultimately, a cure for ALS.

New York, NY
Joined January 2010
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@ProjectALSorg
Project ALS
4 years
To the Project ALS Family: We are proud to announce that prosetin, a novel ALS drug candidate developed at the Project ALS Therapeutics Core at Columbia, has been acquired for commercial development by a new company, ProJenX. Read the press release here:
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@ProjectALSorg
Project ALS
2 months
Most importantly, the workshop laid the foundation for a new era of collaboration. Read the full workshop recap to see how Project ALS and the Packard Center are reshaping ALS research through partnership, innovation, and urgency.
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@ProjectALSorg
Project ALS
2 months
For scientists working to understand how ALS begins and progresses, developing better lab-based models is essential. Over three days, participants shared new findings, pressing frustrations, and bold ideas to push science forward.
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@ProjectALSorg
Project ALS
2 months
This question brought together more than 40 researchers this spring, as Project ALS and the Robert Packard Center for ALS Research co-hosted a workshop in Washington, D.C. The focus was one of the field’s toughest challenges: modeling ALS using human neurons in the lab.
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@ProjectALSorg
Project ALS
2 months
ALS affects motor neurons, the critical nerve cells in the brain and spinal cord that enable movement. But these cells can’t be biopsied to study in a lab. So how can we investigate what is happening to a motor neuron inside a person living with #ALS?
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@ProjectALSorg
Project ALS
6 months
To learn more about the NIH budget and grant-making process, visit or Project ALS remains committed to full transparency as this situation unfolds, and to our mission: finding a cure for ALS.
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@ProjectALSorg
Project ALS
6 months
. rely on for access to potential therapies. We urge you to contact your local representatives—people living with ALS, and anyone affected by disease, deserve better. The @alsassociation has created a resource to connect you with your Members of Congress:
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als.quorum.us
Join ALS Advocates and Take Action!
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@ProjectALSorg
Project ALS
6 months
The NIH is the vital ecosystem within which the United States has become a global leader in healthcare and drug development. The proposed cuts threaten critical preclinical and clinical research, and would disrupt the entire drug development pipeline that people living with ALS. .
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@ProjectALSorg
Project ALS
6 months
While Project ALS research currently remains on track, it will be extraordinarily difficult to keep pace with our progress if the planned cuts to NIH become reality.
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@ProjectALSorg
Project ALS
6 months
Thanks to NIH funding, Project ALS has been able to take a laser-focused approach to ALS research programs and the pursuit of ambitious blue-sky initiatives.
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@ProjectALSorg
Project ALS
6 months
Project ALS is concerned by proposed cuts to the National Institutes of Health (NIH). Science is our most powerful tool in the fight against disease. NIH funding— over $47 billion annually— has been vital in advancing ALS research, including at the Project ALS Therapeutics Core.
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@ProjectALSorg
Project ALS
9 months
RT @PootPoot: Today ONLY if you purchase any item from the website, a portion of proceeds from your order will go directly to @ProjectALSor….
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@ProjectALSorg
Project ALS
9 months
Discover the critical work shaping the future of Project ALS research at our Town Hall. Join us as we discuss emerging disease models, motor neuron rejuvenation, and the development of potential therapies for ALS. Sign up for the virtual town hall today:
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@ProjectALSorg
Project ALS
10 months
Join us Nov. 14th at 11AM for The Alex and Jaci Hermstad Rare Disease Trailblazer Series. Hear from patients, families, advocates, and scientists working together toward a future free of ALS. Register:
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@ProjectALSorg
Project ALS
1 year
Join us on October 22nd at City Winery NYC for An Evening with Aaron Lazar—a night of music, laughter, and inspiration to benefit Project ALS Research. 🎤✨ Doors open at 6:30 PM!. Join the experience today:
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@ProjectALSorg
Project ALS
1 year
Project ALS Core's Dr. Tulsi Patel is such a great example of women kicking some serious a**. Dr. Patel was at Gordon Conference, an international research forum, in Tuscany Italy this week repping Project ALS. Get your @HerALSStory collab tee:
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@ProjectALSorg
Project ALS
1 year
Project ALS recognizes the US Department of Defense for its critical ongoing support of ALS research. Did you know that service members are more likely to get ALS? . Learn more:
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@ProjectALSorg
Project ALS
1 year
With no cure, it can be hard to have hope for a future free of ALS. Project ALS understands this frustration. Our Director of Research, Valerie Estess, discusses the 26-year journey of Project ALS and what's next in our research efforts:
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@ProjectALSorg
Project ALS
1 year
RT @PootPoot: Just 2 days left on this. Proceeds from each slab are benefiting @ProjectALSorg and thanks to your support our donation will….
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@ProjectALSorg
Project ALS
1 year
This friendship and this video are so incredible. Thank you @MandyBell02 and @SlangsOnSports for spreading so much awareness and being such an inspiration. Give toward #FistBump4ALS today: Baseball is the best!.
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fundraise.projectals.org
It’s also...  the day Lou Gehrig's streak ended, a month to MLB's Lou Gehrig Day, AND during ALS Awareness Month.  Let’s raise as much awareness and money in the next month as we can  with the...
@MandyBell02
Mandy Bell
1 year
The most important thing I’ve ever done and will ever do. Please, everyone take a second to understand just how inspiring @SlangsOnSports is.
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@ProjectALSorg
Project ALS
1 year
Celebrate #LouGehrigDay by purchasing the @RotoWear Baseball is the Best tee and the @SlangsOnSports limited edition card slab illustrated by @PootPoot. Let's strike out ALS. Get your limited edition items today:
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