Now posting my third iteration of a collection of testimonies from patients with ME/CFS & Long COVID detailing how massively environments have affected them. How many more do I have to collect before researchers & advocacy groups take them seriously? Probably infinity? @OpenMedF

Uninstalling Twitter for a while. P.s. people that spend their time gossiping about others should get a life and mind their own business.

Life can be unimaginably difficult some days. Having a chronic illness makes it so much harder, but even without that, it can still be pretty shitty. All my life, I’ve put in 100% effort into everything I do. I put 100% into my career, I put 100% into the advocacy work I do, and

i hate having a body, it's so high maintenance. shower this, eat that, drink this, sleep that, it's all very stupid

“Poisoned”… >__> Maybe there’s a reason people keep using this word

I'll be watching. This is incredible work that needs more attention. We need more minds like this attacking our worlds biggest problems. Thank you for what you're doing @DrPatSoonShiong

Being a scientific researcher in 2025 is SOOOO different than it used to be. It’s no longer just spending your time locked in a room running little experiments. It’s almost like a political position. Your title carries POWER. When you speak, people LISTEN. Your work determines if

Can medicine please advance past pharmaceuticals already? Peptide therapies Exosome therapies Cell therapies Blood filtration Ultrasonic lymphatic clearance Literally anything but pharmaceuticals.

Scars from four months of poison ivy and mosquito bites, living outside 24/7 to avoid indoor air exposures. Feet full of blisters from walking 5 miles a day through crippling fatigue and muscle weakness to try to build stamina. No one can ever say I didn’t try to get better.

@MichaelPelusoMD @microbeminded2

I don’t understand why it’s so hard for some people to apologize. I saw a neurologist a couple of times and I needed him to review some medical testing, to which he agreed to and we made a follow up appointment. Come time for the appointment, he had no idea what it was for, even

Day 94 of zero tolerance to indoor air quality. Arms so cold it feels like ice in my veins. Still no researchers will investigate the role of environmental factors in chronic illness. #mecfs #multiplechemicalsensitivity

Does this mean people will start listening to my tweets? 🤔 https://t.co/3lDhT7VkHM

I’m seeing way too much brainwashing from the pharmaceutical industry, causing people to think that pharmaceutical interventions are the only way to treat viral persistence. How about treating it by ending the ongoing attack on the immune system by eliminating chronic exposure

@cstroeckw Persistent infections are important but so is environmental toxicity, and the latter has been pretty substantially neglected

1/ New study tested blood from ME/CFS patients for 185 human viruses. Result: healthy controls had more viral DNA than patients (Unexpected). Only Varicella Zoster Virus (VZV) appeared more often in ME/CFS, hinting at possible reactivation in a subgroup. Let’s break it

By now everyone is aware that disruptions with the gut micro biome is significantly correlated with chronic disease states. Well, what about the environment’s microbiome? There are countless types of microorganisms that normally populate our forests and air and soil. However,

Almost like it’s an anatomical problem and not a biochemical/mitochondrial one….

Isn’t it crazy that this isn’t even 1% of symptoms and yet no doctor can identify or test for this disease?

@_bjv__ @scott_scientist I have ANS dysfunction when breathing bad air - smoke, perfume/s, pollen, new plastics, etc. No ANS dysfunction when am able to breathe clean air.

Abnormal breathing patterns… What, like the body doesn’t like the quality of air it’s breathing in?