Open Medicine Foundation
@OpenMedF
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OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
California, USA
Joined December 2012
OMF Collaboration Investigates Molecular Basis of Post-Exertional Malaise (PEM) 👉 Read more from Dr. Moreau: https://t.co/J8rBEkGbPz. Key findings: ➡️ After a mild stress challenge, #pwME showed a sharp drop in haptoglobin (Hp) levels, while healthy controls did not. (1/2)
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This November, for National #FamilyCaregiversMonth, we’re joining forces with @PlzSolveCFS, @BatemanHorne, and @MEActNet to highlight resources, events, and community support for caregivers. Together, we’re stronger, and united in care. Follow and share using #UnitedForME.
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In #MECFS, there’s evidence that microglia are activated more often than in healthy people, which contributes to #neuroinflammation. OMF’s CRC at Uppsala is analyzing microglia activity via MRI as a way of detecting neuroinflammation. 👉 Learn more:
omf.ngo
Learn how chronic microglia activation and neuroinflammation may play a key role in some ME/CFS symptoms.
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The new dev flow: create the PRD and Tech Design through agents, review and refine, then run @cursor_ai cli agent -> "implement PRD .md, Tech Design .md and Data Model .md as guidance, execute all commands until complete...good night (..and good job in advance! now get to work)"
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📊OMF's Computational Research Center & patient-researcher Martha Eckey analyzed 150+ treatments reported by 3,900+ people with #MECFS & #LongCOVID through the TREATME survey. Hear Dr. Xiao & Dr. Meadows discuss what these findings mean: https://t.co/3rkFDhU0Lp.
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🌟 Kick off a TRIPLE MATCH Fundraiser for OMF! 🌟 Follow this link to launch in as little as 60 seconds: https://t.co/aY8yl2iyND. ALL donations to your fundraiser will be tripled between November 1 -December 2, 2025! #MECFS #LongCOVID #pwME #pwLC
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November is National Family Caregivers Month. #MEAction is bringing you 2 powerful webinars! We will also be sharing social posts & resources focusing on caregiving. Webinar 1: Nov. 16 at 3 pm ET https://t.co/yCcmnytdqy Webinar 2: Nov. 22 at 3 pm ET https://t.co/1wZGmcAKG2
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Most of these YC kids dropping out of Stanford to work on AI SaaS slop come from very well off families. DO NOT let them psyop you. Go to school. Fall in love. Make friends. Laugh. Go work at a Series A/B startup. You'll learn and mature a lot.
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@seanstidston @MaxNits @Ronaldw_Davis @OpenMedF I trust the @OpenMedF team because the core researchers and key members of the organization have loved ones who have #MECFS. They are motivated and have first-hand knowledge. OMF has several centers around the globe with one goal: find answers/treatment(s)/cure.
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🌟Triple Giving November is back! From November 1 to December 2, all gifts to OMF will be tripled, up to $500,000, thanks to generous matching donors. 👉 Triple your gift today and learn about other ways to support OMF: https://t.co/34p5du1PTE.
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@HarryLeeming @visible_health @RTHM_Health Next up: video from @OpenMedF and Dr. Danielle Meadows, their VP of Research Programs and Operations.
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💙 Triple Giving November (TGN) is returning! From Nov 1–Dec 2, every dollar you give to OMF will be TRIPLED (up to $500,000) to advance #MECFS & #LongCOVID research. Learn what to expect during TGN here: https://t.co/dkScpIXuTe.
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I’m pretty sure I saw @lif3nick go up to @jakelaravia and tell him “Hold my beer” before last night’s @Lakers game
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Oxygen uptake efficiency slope (OUES) is an indicator of cardiorespiratory health. In #MECFS, OUES has been found to be decreased, which means that some people with ME/CFS consume oxygen less efficiently. 👉 Learn more: https://t.co/xkFDAND2kt
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🎓 Join us for this amazing IACC Advocacy event on Oct 31 for the IACC Case Competition at @MichiganRoss! The event unites patients, clinicians & innovators to advance care for #LongCOVID, #MECFS & #POTS. FREE to attend — register today and learn more: https://t.co/K0CJn3oW7x.
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My life is a math equation. I live every moment by this: X energy use = Y outcome. I evaluate every single tiny thing I do based on this equation, often with long, in depth analysis. Imagine being healthy, not having this equation, and just acting on every impulse w/out thought🤯
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2nd International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID 📍 Porto, Portugal or online OMF speakers will include: Linda Tannenbaum, OMF Founder & CEO, David Systrom, MD, Johanna Squires. 👉 Explore the program: https://t.co/cUF2WXh9Ow.
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October is Dysautonomia Awareness Month and today, October 25th, we recognize #POTSAwarenessDay. Among the many forms of dysautonomia, #POTS is one of the most prevalent and commonly diagnosed. 👉 Learn more about #dysautonomia and POTS: https://t.co/BvkWCoOJAh.
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On Tuesday, OMF brought together Directors from all our Collaborative Research Centers for a monthly meeting to exchange insights and advance research on #MECFS and #LongCOVID. Pictured: CRC Directors, Linda Tannenbaum, Danielle Meadows, and Maureen Hanson.
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Because of the heterogeneity of #MECFS, precision medicine is an important avenue of research into finding effective treatments. OMF’s Melbourne ME/CFS Collaboration is exploring this approach in a Personalized Treatment Trials project. 👉 Learn more: https://t.co/es9Q0V9c93.
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@ggottschalkPhD and @ProfAvikRoy are very excited to see the final version of our low dose rapamycin project published in JTR here:
translational-medicine.biomedcentral.com
Background mTOR activation is associated with chronic inflammation in ME/CFS. Previous studies have shown that sustained mTOR activation may cause chronic muscle fatigue by inhibiting ATG13-mediated...
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🎥 Recordings Available: Community Symposium on the Molecular Basis of ME/CFS 👉 Access them here: https://t.co/ajjTIxqvqz
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A signaling pathway is a series of events on and within a cell that conveys information and leads to a specific function or response. Learn more about signaling pathways and a study investigating the tetrahydrobiopterin (BH4) pathway: https://t.co/ApIw0G5U0d
#pwME #pwLC #BH4
omf.ngo
Learn about signaling pathways and why studying pathways abnormalities is important in ME/CFS research.
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