New from SPAGN: Roger Explores natural therapies. What to trust, what to skip, how to spot red flags, and why some proven cancer drugs started in nature. Read: https://t.co/6nIjh97Bbe #Sarcoma

September is desmoid awareness month. #Desmoid #awareness Fact 1- Patient education Desmoid tumors are rare tumors They are not cancers. #desmoidawarenessmonth

SPAGN stands with @DTRFoundation for #DesmoidTumorAwarenessMonth. Desmoid tumors are rare, non-metastatic soft tissue tumors that can be locally aggressive and disabling. Learn more: https://t.co/J6uZ7i5e3o #RareDisease #SarcomaAwareness

Today marks the end of #SarcomaAwarenessMonth. Thank you to everyone who participated in this year's #KnowYourNormal campaign! We look forward to sharing insights, welcoming new members, and diving into planning for next year right away. - The entire team at SPAGN

In our final video from the #KnowYourNormal series: Maggie Cameron of @EHEfoundation tells her story of how her sarcoma diagnosis was discovered while undergoing routine scans for a different medical condition! #SarcomaSignsAndSymptoms #SarcomaAwarenessMonth

People living with #EHE are vital to EHE research. If you are planning a surgery or transplant, consider donating your tumor tissue to the EHE Biobank. 📩 To learn more, email biobank@fightehe.org #EHEbiobank #epithelioidhemangioendothelioma #sarcoma #patientpoweredresearch

Janet's daughter was 12 years old and she noticed her limping. They thought she simply tripped over a root. But when home remedies didn't reduce the swelling, they sought further answers. This is their story.

We are stronger together. SPAGN is a network of nearly 70 national patient advocacy groups specializing in different subtypes of sarcomas. Do you represent a sarcoma advocacy group? Visit https://t.co/zv9apORTLK to learn more about membership. #SarcomaAwarenessMonth2025

Namuwonge's first symptom was an unexplained swelling on her right leg. She had never heard of sarcoma before her diagnosis. Hear her story and follow the Uganda Alliance of Patients’ Organizations(UAPO) for more! #KnowYourNormal #SarcomaSignsAndSymptoms #SarcomaAwarenessMonth

Today is #WorldHeadAndNeckCancerDay. David’s sore throat turned out to be cancer, and his story shows how important it is to listen to your body. Early detection saves lives. Watch. Share. Raise awareness. We stand with every patient. #C4C #DavidStory #HeadAndNeckCancer

My name is Megan, and I was diagnosed with chondrosarcoma at 23 years old. I spent nine months pushing for answers. Learn more: https://t.co/lwgXIfr8nq #SarcomaAwarenessMonth #SAM2025 #KnowYourNormal #Support #UntilTheresACure

Angelika Sandakly of @Infosarcomes shares the story of her son's first symptom that led to his sarcoma diagnosis. #KnowYourNormal #SarcomaSignsAndSymptoms #SarcomaAwarenessMonth

Sarcomas can be isolating, but you are not alone. Three tips: 1️⃣ Find a patient support group near you at https://t.co/mQpBMy7Jgh 2️⃣ Join patient support groups on social media 3️⃣ Share your story, what questions to ask, and what worked for you. #SarcomaAwarenessMonth2025

Rare, but never alone. Tonight, we light up the world for sarcoma. #SarcomaAwarenessMonth

Our friends at @CureSarcoma have coordinated the #LightUpForSarcoma campaign for years. Now, it's going global. Join our members & post a photo of local landmarks and homes lit up with yellow to bring awareness to these rare cancers. You are not alone. #SarcomaAwarenessMonth2025

Look back on your sarcoma journey and think of the people who never let you walk alone. Tag them and share one thing they did that carried you through. SPAGN’s member groups across the globe create a support network for thousands.💛 #SarcomaAwarenessMonth2025 #RareButNotAlone

Annie of the @NLMSF (National Leiomyosarcoma Foundation) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee. #KnowYourNormal #SarcomaAwarenessMonth2025

Marloes found a lump in her breast and expected breast cancer. A quick referral and specialized testing identified that she was in fact a Phyllodes sarcoma patient. Hear her story. #KnowYourNormal #SarcomaAwarenessMonth2025

Brazil still faces serious challenges in sarcoma care. But global collaboration is helping close the gap. For patients and families, it’s also a reminder: Sarcoma may be rare, but you are not alone. Our latest blog: https://t.co/z2up1bNZBz #SarcomaAwarenessMonth #KnowYourNormal

If a lump is growing, even if painless, ask for imaging. If bone or soft-tissue pain wakes you at night or lingers longer than a month, push for an answer. These red flags can lead you to a critical early diagnosis. #SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms 2/2