Every day, desmoid tumor patients live in the gap— between diagnosis & answers, outdated care & new possibilities, research & the funding it needs. ✨ This is where you come in. You can #FillTheGap. Donate today: https://t.co/SU9ec00gdk #DTRF #DesmoidTumorAwareness

🎥 Watch the video of the week “Desmoid Tumor Patient Panel on Lived Experience” with three patient panelists from the 2025 Int'l Research Workshop: https://t.co/yuz28s21QU #DTRF #desmoid #desmoidtumor

🎥 Watch the video of the week “The Association of Pain With Function for Adult Patients With #Desmoid Tumor: Findings From the Desmoid Tumor Research Foundation Natural History Study” with Kelly Mercier, PhD from the 2025 Int'l Research Workshop: https://t.co/jiPbJxtbns #DTRF

🆕 25+ new articles from June, July, and August have been posted on the Published Research page on our website at https://t.co/9mMDn8IWaa. Thank you to @mgkumar82 for helping us collect these important articles. 🔗 https://t.co/SZFmyFRSJ3 #desmoid #DTRF

📢 We’re proud to share that the Desmoid Tumor Research Foundation (DTRF) is featured in Newsweek's article: “Research Moves Slowly. Rare Diseases Don't—So Patients Aren't Waiting.” Share and read the full article here: https://t.co/pyvMhwSFB6 #DesmoidTumors #DTRF #desmoid

Register for our upcoming education webinar entitled, “Pregnancy and Desmoid Tumors." This webinar is hosted by the DTRF with expert guests from @DanaFarber and @BrighamWomens. Register here: https://t.co/JI5T0I3MzA #desmoidtumorawareness #DTRF

✨Thank you for an incredible Desmoid Tumor Awareness Month (DTAM)! Keep DTRF's efforts going for years to come by making a donation today: https://t.co/wgaLdCTGlg Thank you again to our Desmoid Tumor Awareness Month sponsor, @Immunome , for their ongoing support!

Special thank you to @NorthwesternMed for hosting us!

💜 Thank you to everyone who attended and participated in the 2025 DTRF “Together We Will” Weekend in Chicago! We are grateful to our Presenting Sponsor, @SpringWorksTx , for supporting this incredible Weekend.⁠ #desmoid #DYTRF #desmoidtumors

📣Did you know? Desmoid tumors are NOT benign. 🔗 Learn more about their classification here: https://t.co/cPK5bW6TQI Special thank you to our Desmoid Tumor Awareness Month sponsor, @Immunome, for their support. #DTAM #DTRF #desmoidtumors #desmoid⁠

📢 We’re proud to share that the Desmoid Tumor Research Foundation (DTRF) is featured in Newsweek's article: “Research Moves Slowly. Rare Diseases Don't—So Patients Aren't Waiting.” 📰 Share and read the full article here: https://t.co/1nsjvOtf0N #DesmoidTumors #DTRF #desmoid

✨️ We are getting so close to our favorite weekend of the year! Online registration closes in 5 days on Sept. 7th. 🎟️ Register for the "Together We Will" Weekend to attend the Int'l Research Workshop in Chicago, IL on Sept. 12th here: https://t.co/byvf60qL1P. #desmoid #DTRF

💜 September is Desmoid Tumor Awareness Month (DTAM)! 🎉 Congrats to Cassandra Hernandez, winner of our first-ever DTAM Logo Contest! Her inspiring design represents the strength, resilience & unity of the #Desmoid community. 👉 Learn more: https://t.co/DCGoKFwO9M #DTRF

💻 Want the latest in #desmoid tumor-related news? Subscribe today to receive our monthly Clinicians & Researchers eNewsletter: https://t.co/TswyCfJccM #Desmoid #DesmoidTumor

The European Commission approved Ogsiveo® (nirogacestat) as the first treatment for adults with progressing #desmoid tumors: https://t.co/GlE668Ee1O Thank you to the @SpringWorksTx team for their dedication to the desmoid tumor community.

✨ The DTRF is excited to welcome Sally Augdahl to its Board of Directors. Sally starting raising awareness and funds for desmoid tumor research when her youngest son, Gabe was diagnosed with a desmoid tumor in 2021. 🔗 Learn more: https://t.co/aOZ2PmndCw #DTRF #desmoid

✨️ Meet DTRF Int'l Research Workshop Featured Presenter: Mushriq Al-Jazrawe, PhD, Scientific Director, High Throughput Sciences, Koch Institute for Integrative Cancer Research at MIT 🔗 Learn more and register here: https://t.co/byvf60qL1P⁠ ⁠ #DTRF #desmoid

⚡️30% off 2025 "Together We Will" Weekend registration today! 🎟️ Register for the "Together We Will" Weekend in Chicago, IL on Sept. 13th here: https://t.co/byvf60qL1P. ⁠Use promo code FLASHSALE30 for 30% off by 12:00 midnight ET. #DTRF #desmoid

💡Connection is at the core of the DTRF’s strategy each year. Our staff convenes #desmoid tumor groups biannually from around the globe for a virtual, roundtable meeting. 🔗 If you run a patient group in your country, email us at info@dtrf.org for more information.

✨️ Meet DTRF Int'l Research Workshop Featured Presenter: Cristabelle De Souza, PhD, Stanford University School of Medicine 🔗 Learn more and register here: https://t.co/byvf60qL1P⁠ ⁠ #DTRF #desmoid