EHEfoundation Profile Banner
The EHE Foundation Profile
The EHE Foundation

@EHEfoundation

Followers
360
Following
222
Media
554
Statuses
747

The leading global advocacy and research organization for epithelioid hemangioendothelioma (EHE)

Joined April 2016
Don't wanna be here? Send us removal request.
@EHEfoundation
The EHE Foundation
4 hours
🚨 The 2025 EHE Research Grants Cycle is now open!.The EHE Foundation is funding innovative basic, translational, and clinical research that advances understanding & treatment of #EHE, an ultra-rare sarcoma. 🗓️ LOIs due Sept. 1, 2025. 🔗 Guidelines:
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
2 days
Community is a critical part of your care. Rare sarcomas, like #EHE, can be incredibly isolating, but you do not have to go through this on your own. We may be rare, but we are NOT alone. 💛❤️. #SarcomaAwarenessMonth2025 #epithelioidhemangioendothelioma #sarcoma #EHEawareness
Tweet media one
0
0
1
@EHEfoundation
The EHE Foundation
3 days
🔆 Post a photo of local landmarks and homes lit up with yellow to bring awareness to sarcomas. This event is a beacon of support for all those living with sarcoma, for those missing a loved one, and for those waiting for answers. You are not alone. 🌍. #SarcomaAwarenessMonth2025
Tweet media one
0
0
2
@EHEfoundation
The EHE Foundation
6 days
❤️💛 Happening Tomorrow: EHE Support Group.Whether you’re living with EHE or your loved one is, you are welcome here. These sessions are intended for adults aged 18+ who understand and experience the challenges of the disease. Register:
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
11 days
The EHE Foundation proudly supported @sarahemcmullan, a PhD candidate in the @thelamarlab, with a 2025 Fellowship Travel Grant to attend the YAP/TAZ and TEADs: At the Crossroads of Cancer workshop in Telluride, CO. #epithelioidhemangioendothelioma #EHE.
Tweet card summary image
fightehe.org
The EHE Foundation is proud to support the next generation of scientists working to unlock the mysteries of epithelioid hemangioendothelioma (EHE). Recognizing the importance of academic and scient...
0
0
0
@EHEfoundation
The EHE Foundation
12 days
☝️ One Week Away: EHE Support Group.Whether you're newly diagnosed or have been living with EHE for a while, you’re not alone. Virtual EHE Support Groups are here to help you connect, reflect, and heal together. Register now to join us:.
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
13 days
We connect people affected by #EHE with the global experts who study and treat this disease, united in a shared mission to unlock answers and discover effective treatments. We fund research and provide educational resources about EHE. Learn more:
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
18 days
Have you had a liver transplant or resection for #EHE? Your experience matters. By sharing your journey in the EHE Global Patient Registry, you’re contributing to critical #EHEresearch and helping others facing similar decisions. Join the registry today:
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
19 days
🌟 EHE Support Group Registration is Open 🌟 .🗓 Upcoming Dates:.Wednesday, July 23, 2025 | 12:00–1:00 PM ET.Wednesday, August 27, 2025 | 12:00–1:00 PM ET.Wednesday, September 17, 2025 | 12:00–1:00 PM ET.👉 Learn more and reserve your spot today: #EHE
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
19 days
🟡 Drop that selfie in yellow! Let’s fill up the feed with sunshine so no sarcoma or #EHE patient feels alone. Tag us @EHEfoundation and use #SarcomaAwarenessMonth2025 and tell us who you’re wearing yellow for. #WearYellowWednesday #SarcomaAwareness
Tweet media one
0
1
3
@EHEfoundation
The EHE Foundation
20 days
Sarcoma and #EHE diagnostics are challenging! Many patients require multiple consultations to get the right diagnosis, causing delays in appropriate treatment. Take action to get an expert second opinion from a pathologist experienced in sarcoma. #SarcomaAwarenessMonth2025
Tweet media one
0
0
1
@EHEfoundation
The EHE Foundation
21 days
Considering a liver transplant or surgery? You can make a lasting impact on #EHE research by donating tissue to the EHE Biobank. 👉 Contact the EHE Biobank today to learn more. Call 1-877-460-4240 Ext. 2 (toll-free US) or email biobank@fightehe.org. #EHEbiobank
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
25 days
Through bold research funding, global collaboration, and patient-powered initiatives, the EHE Foundation is bringing hope and momentum to the #EHE community. Help fuel progress toward better outcomes and a brighter future. Support EHE research today:
Tweet media one
0
0
2
@EHEfoundation
The EHE Foundation
26 days
🌻 Next Wednesday, let's flood feeds with yellow to show people sarcoma and #EHE fighters they’re seen. Snap something yellow 🟡, tag us (@EHEFoundation) and let’s paint timelines yellow!. #SarcomaAwarenessMonth2025 #SarcomaAwarenessMonth
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
28 days
We congratulate Drs. Harvey and Tang for the publication of this in-depth review of the scientific progress and drugs in development, some of which are being investigated in #EHE. Read more here: #hippopathway #epithelioidhemangioendothelioma #sarcoma
Tweet media one
0
0
1
@EHEfoundation
The EHE Foundation
28 days
🌻 Did you know? Epithelioid hemangioendothelioma (EHE) is just one of over 100 rare sarcoma subtypes recognized by the World Health Organization. #SarcomaAwarenessMonth2025 #epithelioidhemangioendothelioma #ultrararesarcoma #EHEFoundation #EHEcancer #justlive #sarcoma
Tweet media one
0
2
3
@EHEfoundation
The EHE Foundation
1 month
New and existing locations for Vivace Therapeutics' Phase I study of VT3989 in EHE: . 📍UCSF, CA - ✨ NEW Location.📍MSKCC, NY.📍MD Anderson, TX.📍Dana-Farber, MA.📍Mass General, MA. Additional Info:.
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
1 month
A class of drugs called #TEAD inhibitors is showing promise for people with #EHE. You may be wondering what TEAD inhibitors are and how they work. Learn all about them and how they work in EHE:
Tweet media one
0
0
0
@EHEfoundation
The EHE Foundation
1 month
Whether you’re living with #EHE or your loved one is, you are welcome here. These meetings are intended for adults aged 18 and above who understand and have experienced the challenges of the disease. There’s still time to register:.
Tweet media one
0
0
0