
Taylor Sundby, MD 🧬
@rtsundby
Followers
513
Following
2K
Media
69
Statuses
456
🎗️Ped-onc |#NF1, #cancerpredisposition, #raretumors, #EarlyDetection, #cfDNA & biomarkers|Proud dad|Opinions=own|#Nemours|PI@CancerInterception&TumorEvolution
Maryland, United States
Joined February 2013
1/ Can #liquidbx detect pre-malignancy & guide intervention to avert cancer before it develops? Our recent @NCIResearchCtr -@MayoClinic-@washumedicine led collaboration’s @CCR_AACR publication ( suggests that it can in #neurofibromatosis (NF1). A 🧵:.
1
7
24
RT @AmerAcadPeds: An update from Dr. Sean O’Leary on this morning’s Advisory Committee on Immunization Practices (ACIP) meeting: https://t.….
0
308
0
RT @AmerAcadPeds: More than 98% of families in this country choose to vaccinate their young children. But now, vaccine policy is being shap….
0
1K
0
RT @TiansterZhang: This moment feels surreal. The funding of cancer research must continue. Cancer is not partisan. Ask for ongoing CDMRP s….
0
18
0
The proposed Continuing Resolution bill, up for vote today, cuts Congressionally Directed Medical Research Program (CDMRP) by 57%. CDMRP is one of our nation’s most important investments in med research including #cancer (pediatric, #nf ), #autism, #substanceabuse, #chronicpain.
1
5
6
My dad @ScottSundby’s first fiction novel is out! A son, who shunned his family’s drug empire for a career in academia, is forced to use his literary talents to save the family business! .Check it out below & review on @goodreads or Amazon!.
0
1
5
Thank you @LittlestTumor , @TexasNF, NF Midwest,.Senator Tammy Baldwin, Representative Pete Stauber, and Representative Mark Pocan for hosting!.
0
0
2
It was an honor to be invited back by @LittlestTumor to advocate at the #NF Congressional Briefing today for continued funding for #neurofibromatosis research! #EndNF.
Today, at the NF Congressional Briefing in Washington, D.C., speakers from CTF, @CDMRP, @NCI, and NF patients highlighted how NF research is advancing care. We also announced the next phase of the biomarker initiative with @CureNFWithJack! #EndNF #NFResearch
2
1
8
Grateful to @ChildrensTumor and @curenfwithjack's generous support of our (@MayoClinic-@NIHClinicalCntr -@washumedicine) efforts to move our NF1 #liquidbx #cfdna assay from research to the clinic! .Read more: @jack_shern @aadel_chaudhuri @AngelaHirbe.
1
4
22
RT @CurrentOncology: 🎉New #SpecialIssue "Neurofibromatosis Type 1 (NF1) Tumor Spectrum" led by Dr. Jay Pundavela.@jfrpundavela, Dr. Kyle B.….
0
2
0
The goal is to highlight basic, pre-clinical, and clinical research shedding light on the complex tumors (#GIST, #MPNST, #PN, #glioma, #OPG, etc!) associated with one of the the most common hereditary #cancer syndromes. Focuses: #biology, #diagnostics, #prognostic factors, #tx.
1
0
0
Do you have 🔬 or a review on #NF1 in prep? Tell us about it! @jfrpundavela @kylenago & I are thrilled to Guest Edit @CurrentOncology's Special issue on #NF1! Plz share and reach out re: potential submissions! @ChildrensTumor @ntapresearch @NFYIForum.
2
3
11
RT @AliciaBach_MD: The pediatric subspecialty workforce will not be able to be sustained much longer. Our children are in trouble https://….
0
3
0
I am so thankful for the amazing #neurofibromatosis community. Advancing care for rare diseases requires #collaboration and #openscience. The #NF community embraces this reality and @sagebio.bsky.social facilities the concatenation and repurposing of rare datasets.
We owe it to patients and caregivers to make the most of rare, high-value datasets. We’ve focused on creating an open science ecosystem that takes the pain out of sharing and reusing these data. For contributors like @rtsundby @theNCI, this has meant communicating
0
0
1
RT @ntapresearch: Calling early-stage clinician scientists! Be part of the cure for #Neurofibromatosis. Join the leaders shaping #NF1 rese….
0
7
0
RT @NBCNewsHealth: Pediatricians are stunned by the possibility that vaccines proven to save kids’ lives could be banned under a second Tru….
0
2
0
RT @curenfwithjack: NF affects three times more people than muscular dystrophy, cystic fibrosis, Huntington’s, and Tay-Sachs combined—yet i….
0
8
0