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CureNFwithJack Profile
CureNFwithJack

@curenfwithjack

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A nonprofit organization whose mission is to find a cure or effective treatment for neurofibromatosis through the funding of research. #EndNF

Alpharetta, GA
Joined April 2010
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@curenfwithjack
CureNFwithJack
17 hours
🎉 Welcome ICP Atlanta as the first official Corporate Ambassador for CureNFwithJack!. We're thrilled to have their support in accelerating research and raising awareness for NF. 💙 Together, we're proving that purpose-driven companies can help change lives. #CureNFwithJack
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@curenfwithjack
CureNFwithJack
3 days
Nearly $4 million raised—and we’re just getting started. CNFWJ has proudly funded almost $4M in NF research, both on our own and alongside other NF-focused organizations. Join us in the fight to end NF 💪. #CureNFwithJack #EndNF
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@curenfwithjack
CureNFwithJack
9 days
From powerful sessions to heartfelt conversations, the Children’s Tumor Foundation Summit and Conference reminded us just how strong and united the NF community really is. We walked away inspired, connected, and more determined than ever to #EndNF. Let’s keep the momentum going.
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@curenfwithjack
CureNFwithJack
15 days
📣 Mark your calendars!. The Atlanta Golf Classic returns on Monday, October 27, 2025 at Iron Horse Golf Club! Get ready for a day of swings, sunshine, and supporting a powerful cause. 🗓️ Save the date and stay tuned—registration opens soon!. #AtlantaGolfClassic #CureNF #AGC2025
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@curenfwithjack
CureNFwithJack
23 days
We are so honored to have this extraordinary person dedicating his professional life to improving the lives of all affected by NF. Thank you Dr. Gutmann!. Join us in celebrating this well-deserved recognition! . #CureNFwithJack #NFResearch #NFStrong
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@curenfwithjack
CureNFwithJack
25 days
👉 Early diagnosis and mental health matter. 1 in 4 people with NF wait over 4 years just to get diagnosed. And 71% say it affects their mental health. Let’s raise awareness, shorten the wait, and support emotional well-being. 💙. #CureNFwithJack #NFawareness #MentalHealth
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@curenfwithjack
CureNFwithJack
1 month
A huge thank you to Mike Flynn and Izzy for hosting the 2nd Annual Swing with Izzy Cure NF Golf Classic in support of CNFWJ! 💙. Thanks to their incredible efforts, $30,000 was raised to support families impacted by NF. We’re beyond grateful. 💫. #CureNFwithJack #SwingWithIzzy
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@curenfwithjack
CureNFwithJack
1 month
🎆 Happy Fourth of July from all of us at CureNFwithJack! Today, we celebrate freedom, family, and the incredible community that continues to stand with us in the fight to #EndNF. Wishing you a safe and joyful holiday!#IndependenceDay #CureNFwithJack
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@curenfwithjack
CureNFwithJack
2 months
It’s so exciting connecting with science leaders, nonprofit changemakers, and passionate advocates all coming together to drive impact! 💙.🦋 Shoutout to Penny’s Flight Foundation! Don’t miss their Fam Jam on 6/28! #spreadyourwings #EndNF. #CureNFwithJack
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@curenfwithjack
CureNFwithJack
2 months
At the Children's Tumor Foundation Conference, where over 1,000 were in attendance, we had the privilege of hearing directly from the incredible scientists leading the charge on the Biomarker Project. #Collaboration #Dedication #CureNFwithJack #EndNF
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@curenfwithjack
CureNFwithJack
2 months
NF doesn’t just affect the body, it impacts confidence, connection, and everyday life. That’s why awareness matters. When we know better, we can do better. #CureNFwithJack #NFStrong #EndNF
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@curenfwithjack
CureNFwithJack
2 months
Stay in the loop with the latest updates, research breakthroughs, and ways you can make a difference in the fight against Neurofibromatosis. Subscribe to the CureNFwithJack newsletter and join the movement for a cure! Click the link in to subscribe
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@curenfwithjack
CureNFwithJack
2 months
We’re excited to share that our Co-Founder & CEO, Beth O’Brien, will be speaking on a panel at the CTF Summit! This panel kicks off the NF Summit. View the full agenda at #CureNFwithJack #CTFSummit #NFStrong #collaboration
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@curenfwithjack
CureNFwithJack
2 months
At CNFWJ, advocacy isn’t just something we talk about, it’s something we do. 💙 Like, share, or save this post!. Advocacy is a verb and we’re committed to this fight. #CureNFwithJack #NFStrong #EndNF
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@curenfwithjack
CureNFwithJack
2 months
Illinois friends, we need you THIS Saturday! 💙 CNFWJ is honored to be the beneficiary of the 2nd Annual Swing with Izzy Cure NF Golf Classic . Every swing supports CNFWJ’s mission to find a cure. Can’t attend? Donate or sponsor! 👉 Register now:
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@curenfwithjack
CureNFwithJack
3 months
Calling all businesses! 📢 Partner with CureNFwithJack as a Corporate Ambassador and make a year-round impact. 📧 Email development@curenfwithjack.com to get started today!.#CureNFwithJack #CorporateGiving #EndNF
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@curenfwithjack
CureNFwithJack
3 months
Today is World NF Awareness Day💙💚—a day to honor the strength of those living with neurofibromatosis and to raise our voices!. At CNFWJ, we stand with families impacted by NF every single day—but today, we shine even brighter. Wear blue. Share a story. Be the voice.
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@curenfwithjack
CureNFwithJack
3 months
By becoming a CNFWJ Ambassador, you commit to giving monthly—providing steady, reliable support for the research we fund. Be the reason we keep going. Join us & visit #CureNFwithJack #NFAwarenessMonth #Ambassadors #NFStrong
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@curenfwithjack
CureNFwithJack
3 months
May is also Mental Health Awareness Month, and at CNFWJ, we recognize that NF affects more than just the body—it impacts the heart and mind, too. 💚💙. This month, let’s break the stigma and lift each other up. Mental health matters—always. #CureNFwithJack #NFAwarenessMonth
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@curenfwithjack
CureNFwithJack
3 months
A CNFWJ Ambassador? 💙 It’s someone who shows up every month for families affected by NF. Ambassadors commit to giving monthly, helping us fund research and bring hope to those who need it most. Visit to join today!. #CureNFwithJack #NFAwarenessMonth
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