👉 Early diagnosis and mental health matter. 1 in 4 people with NF wait over 4 years just to get diagnosed. And 71% say it affects their mental health. Let’s raise awareness, shorten the wait, and support emotional well-being. 💙. #CureNFwithJack #NFawareness #MentalHealth

A huge thank you to Mike Flynn and Izzy for hosting the 2nd Annual Swing with Izzy Cure NF Golf Classic in support of CNFWJ! 💙. Thanks to their incredible efforts, $30,000 was raised to support families impacted by NF. We’re beyond grateful. 💫. #CureNFwithJack #SwingWithIzzy

🎆 Happy Fourth of July from all of us at CureNFwithJack! Today, we celebrate freedom, family, and the incredible community that continues to stand with us in the fight to #EndNF. Wishing you a safe and joyful holiday!#IndependenceDay #CureNFwithJack

It’s so exciting connecting with science leaders, nonprofit changemakers, and passionate advocates all coming together to drive impact! 💙.🦋 Shoutout to Penny’s Flight Foundation! Don’t miss their Fam Jam on 6/28! #spreadyourwings #EndNF. #CureNFwithJack

At the Children's Tumor Foundation Conference, where over 1,000 were in attendance, we had the privilege of hearing directly from the incredible scientists leading the charge on the Biomarker Project. #Collaboration #Dedication #CureNFwithJack #EndNF

NF doesn’t just affect the body, it impacts confidence, connection, and everyday life. That’s why awareness matters. When we know better, we can do better. #CureNFwithJack #NFStrong #EndNF

Stay in the loop with the latest updates, research breakthroughs, and ways you can make a difference in the fight against Neurofibromatosis. Subscribe to the CureNFwithJack newsletter and join the movement for a cure! Click the link in to subscribe

We’re excited to share that our Co-Founder & CEO, Beth O’Brien, will be speaking on a panel at the CTF Summit! This panel kicks off the NF Summit. View the full agenda at #CureNFwithJack #CTFSummit #NFStrong #collaboration

At CNFWJ, advocacy isn’t just something we talk about, it’s something we do. 💙 Like, share, or save this post!. Advocacy is a verb and we’re committed to this fight. #CureNFwithJack #NFStrong #EndNF

Illinois friends, we need you THIS Saturday! 💙 CNFWJ is honored to be the beneficiary of the 2nd Annual Swing with Izzy Cure NF Golf Classic . Every swing supports CNFWJ’s mission to find a cure. Can’t attend? Donate or sponsor! 👉 Register now:

Calling all businesses! 📢 Partner with CureNFwithJack as a Corporate Ambassador and make a year-round impact. 📧 Email development@curenfwithjack.com to get started today!.#CureNFwithJack #CorporateGiving #EndNF

Today is World NF Awareness Day💙💚—a day to honor the strength of those living with neurofibromatosis and to raise our voices!. At CNFWJ, we stand with families impacted by NF every single day—but today, we shine even brighter. Wear blue. Share a story. Be the voice.

By becoming a CNFWJ Ambassador, you commit to giving monthly—providing steady, reliable support for the research we fund. Be the reason we keep going. Join us & visit #CureNFwithJack #NFAwarenessMonth #Ambassadors #NFStrong

May is also Mental Health Awareness Month, and at CNFWJ, we recognize that NF affects more than just the body—it impacts the heart and mind, too. 💚💙. This month, let’s break the stigma and lift each other up. Mental health matters—always. #CureNFwithJack #NFAwarenessMonth

A CNFWJ Ambassador? 💙 It’s someone who shows up every month for families affected by NF. Ambassadors commit to giving monthly, helping us fund research and bring hope to those who need it most. Visit to join today!. #CureNFwithJack #NFAwarenessMonth

We’re cheering on @pennysflight as they gear up for their upcoming FAMJAM event! 🦋 Please attend this wonderful event if you can! . Get tickets at #CureNFwithJack #PennysFlightFoundation #Collaboration #EndNF

May is NF Awareness Month, and we’re kicking things off by opening the doors to our CNFWJ Ambassador Program! 💙. Our Ambassadors are monthly supporters who help us amplify awareness and fund NF research all year long. Become a CNFWJ Ambassador today!

We’re honored to be featured in @childrenstumor 2024 Impact Report! 🎉 👉 Swipe to see how we’re making an impact together! Read the full report here #CureNFwithJack #CTFImpact #StrongerTogether #YearOfCollaboration

We’re extremely grateful for doctors like Dr. Walker, whose compassion, understanding, and unwavering dedication to finding a cure for NF1 give our community hope and strength every day. #CureNFwithJack #NFStrong #TogetherForACure

🎓💙 Join us in celebrating Luke’s graduation! . Help us honor his journey by sending a message of encouragement, love, or congratulations by May 1st to beth@curenfwithjack.com. Let’s show Luke just how proud we are of him! 💌🎉. #CureNFwithJack #NFStrong