Neurofibromatosis Young Investigators Forum
@NFYIForum
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Supported through independent educational grants from Alexion and SpringWorks Therapeutics
Baltimore, MD
Joined April 2021
Thank You for Attending! 🙌. A huge THANK YOU to all the HCPs & oncology experts who joined us LIVE for today’s symposium on NF1-PN management & MEK inhibitors!. ➡️ What was your #1 takeaway from today’s event? Let us know! 👇. @AngelaHirbe @armstrong_ae.
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RT @CEC_Onc: "Readiness to transition to adult care is very individualized. Some patients are ready early, others, particularly with cogni….
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RT @CEC_Onc: "Current data suggests that long-term ejection fraction decrease reverses after coming off the MEK inhibitor and doesn't precl….
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RT @CEC_Onc: "Pain tends to be the greatest indication for MEKi treatment in adults." - Dr. Angela Hirbe
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RT @CEC_Onc: "Patients with NF1-PNs on MEK inhibitors need to have ongoing ocular and cardiac monitoring." - Dr. Amy Armstrong https://t.co….
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"The initial referral to the neurologist was critical.".Sarah Neale, Patient Advocate, speaking at a CEC Oncology symposium session on MEK Inhibitors in Neurofibromatosis Type 1: Latest Advances and Real-world Applications in NF1-PN Management. …
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RT @CEC_Onc: "Not everyone with a PN needs treatment. Observation is OK in the absence of morbidity, but shared decision making with the p….
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"We shouldn't underestimate the impact of mild developmental delays on the well-being of the child.".-Dr. Angela Hirbe.
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🔴STARTING IN 15 MINUTES.MEK Inhibitors in Neurofibromatosis Type 1. 🥼 @AngelaHirbe @armstrong_ae.📍 Kentucky International Convention Center | Room: Ballroom B | Louisville, KY.🔗 #NF1Treatment #HCPsLive #OncologyUpdates #NF1Care.
ceconcepts.com
Neurofibromatosis type 1 (NF1) treatment options and management strategies are evolving, and the multiplicity of near- and long-term clinical manifestations makes diagnosis and management of the...
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RT @CEC_Onc: We’re Live in 1 hour—Join Us! 🔴. We’re officially LIVE here at CEC Oncology—tune in now to explore how MEK inhibitors are cha….
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RT @CEC_Onc: Getting ready for a dynamic discussion on MEK Inhibitors in Neurofibromatosis Type 1 at the KY Int'l Conv. Ctr, Ballroom B at….
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We’re Live in 1 hour—Join Us! 🔴Tune in for MEK inhibitors are changing the game for NF1-PN treatment!. 🥼 @AngelaHirbe @armstrong_ae.📍 Kentucky International Convention Center | Room: Ballroom B | Louisville, KY.🔗 #NF1Treatment #HCPsLive #NF1Care.
ceconcepts.com
Neurofibromatosis type 1 (NF1) treatment options and management strategies are evolving, and the multiplicity of near- and long-term clinical manifestations makes diagnosis and management of the...
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RT @CEC_Onc: Follow us to our session on MEK Inhibitors in Neurofibromatosis Type 1 at the KY Int'l Conv. Ctr, Ballroom B at 12:15 TODAY!….
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Today’s the Day! 🎉 Join us TODAY at 12:15 PM EST -Live symposium on MEK inhibitors in NF1-PN management. 🥼 @AngelaHirbe @armstrong_ae.📍 Kentucky International Convention Center | Room: Ballroom B | Louisville, KY.🔗 #NF1 #OncologyLive #HCPs #NF1PNCare.
ceconcepts.com
Neurofibromatosis type 1 (NF1) treatment options and management strategies are evolving, and the multiplicity of near- and long-term clinical manifestations makes diagnosis and management of the...
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TOMORROW! ⏳.MEK Inhibitors in Neurofibromatosis Type 1. 🗓️ Date: May 8, 2025.🕛 Time: 12:15 PM EST.📍Kentucky International Convention Center | Room: Ballroom B | Louisville, KY.🔗 #NF1PN #OncologyEducation #HCPs #NF1Care.@AngelaHirbe @armstrong_ae.
ceconcepts.com
Neurofibromatosis type 1 (NF1) treatment options and management strategies are evolving, and the multiplicity of near- and long-term clinical manifestations makes diagnosis and management of the...
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RT @rtsundby: Do you have 🔬 or a review on #NF1 in prep? Tell us about it! @jfrpundavela @kylenago & I are thrilled to Guest Edit @CurrentO….
mdpi.com
Special Issue in journal Current Oncology: Neurofibromatosis Type 1 (NF1) Tumor Spectrum
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RT @NBCIBlackChurch: Opioid Early Career Scholar Program..An intensive multi-day opioid REMS initiative in Pain Management..Register To….
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RT @zaidheartsci: @CEC_Onc @PGrivasMDPhD @DanielPetrylak Must-attend for oncologists and urologists! Excited to expand my knowledge on ADCs….
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Congratulations to our 2024 Distinguished Young Investigator, @chelseakotchmd of @ChildrensPhila!. #makenfvisible #endnf #MedEd #MedTwitter #MedX #NFYIF2
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Congratulations to our 1st place Postdoctoral Researcher winner, Marie-Lena Schmalhofer, MD of @UKEHamburg!. #makenfvisible #endnf #MedEd #MedTwitter #MedX #NFYIF24
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