th_Redd
@robynasaldino
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Following
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149
Statuses
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She/Her, Sober, #LongCovid , AuDHD, CPTSD, effective resource-sharing. We are all we have. #CovidIsNotOver
New York, NY
Joined February 2015
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Pinned Tweet
Having
#LongCovid
and being
#homeless
can easily be a death sentence in this country. We need to address both, NOW. Don't ignore us.
1/
@froglet80
There are upwards of 36M Americans with LC. We’re 2-3x more likely to experience evictions or foreclosures, which leads to more severe disease or death. We already have a disease that is destroying our T cells and people experiencing homelessness are already at risk.
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I AM FUCKING FED THE FUCK UP WITH MOTHERFUCKING SELFISH PIECES OF SHIT GOING INTO PUBLIC SPACES AND FORCING THEIR INFECTIONS ON THE REST OF US. IT IS IRRESPONSIBLE AND “PERSONAL CHOICE” DOESNT EXIST WHEN IM FORCED INTO A SPACE WITH A SICK PERSON WITH NO CHOICE.
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My antivax, surgical-mask-sometimes, right-wing dad (wasn’t always that way), told me earlier he had COVID last week and coughed so hard he broke a rib. Late-60’s. Very athletic. Eats well. Doesn’t smoke, occasionally drinks. Rarely sick until flu last month (tested x4).
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🧵I want to highlight how bad the healthcare crisis is in NYC right now. Not going to name the ER I went to bc the staff was amazing and many were in N95s. This is a failure of a population that refuses to take basic daily precautions such as implementing clean air measures
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Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC. Fuck the CDC.
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I suggested his wife get an antibody test also to make sure she didn’t have an asymptomatic infection. I’m going to email his wife tomorrow and talk to her about everything again, and about long covid. He was open and didn’t minimize at all. Very worried. And so proud of him. ❤️🩹
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She died last night.
#CDCKills
My grandmother has been hospitalized now 3 days, post-fall. Age >100. Required sutures on a deep 2” laceration above her left eye. Broken pelvis.
Wait for it…
She tested + for COVID 24 hours after admission.
She was - upon admission.
#CDCKills
#CovidIsNotOver
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Short 🧵
I want to take a moment to express how much rage I felt when I learned this. I knew that there had been various global wastewater samples in Dec 2019, and I knew that it was present in Wuhan in Oct 2019, but THIS...the timing, specifically.
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Many people don’t understand aerosols so I’ll make it really simple:
-spread like smoke
-hang in the air
-can move around in the same hotel/apartment buildings to different floors
-can be left in a room by someone who was there before you
-YOU CAN’T SEE THEM
#ResistSARS2
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My grandmother has been hospitalized now 3 days, post-fall. Age >100. Required sutures on a deep 2” laceration above her left eye. Broken pelvis.
Wait for it…
She tested + for COVID 24 hours after admission.
She was - upon admission.
#CDCKills
#CovidIsNotOver
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Unless I’m wrong, this wave is going to peak 7-14 days after New Years? Which means in 3-4 weeks, many people will think they’re in the clear, but they’ll only be starting their Long Covid journey.
Healthcare is going to collapse in 2024. We aren’t prepared for this.
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This is why I'm taking part in the upcoming
#LCDC
event. This is why I'm fighting so hard against anyone who says
#LongCovid
isn't real. I was a dancer, a gymnast, a rock climber, a teacher, and so much more.
#LongCovid
stole EVERYTHING and I'm not going to let it steal my life.
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and he said they already have air purifiers in the house and all the windows have been open and his wife wore an N95 while he was sick and she didn’t get sick (and tested!). We talked about radical resting, and post-acute labs. He didn’t fight me on any of it.
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He then told me that he already has N95s and will be wearing them moving forward, that his wife has been on top of that. And that he has a nasal spray (it was Flonase - I gave him recs for a better one and he’s going to get it), and I told him about CPC mouthwash,
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WHAT HAVE WE BEEN TELLING YOU?!
What the ACTUAL FUCKING FUCK do you think “viral persistence” is?!
Why do you think we want ANTIVIRALS?!?!
Clinical trials wasting $$ on exercise and antidepressants while we die of VIRAL PERSISTENCE.
#LongCovid
"Hidden COVID virus found nearly two years after infection"
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I’m done not having access. I’m done not being able to do the things I used to do. I have a massive network. We all do. We all know providers, friends that teach fitness classes, teachers, etc. I’ve begun reaching out to them and asking what it would take to add masked services.
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THERE ARE NO FDA-APPROVED NASAL SPRAYS FOR COVID.
Nasal sprays w/FDA Warning Letters:
🚩Covixyl - 2/24
🚩CofixRx - 4/22
🚩Nasitrol - 1/22
🚩Xlear - 7/20 (Sued by the FTC 10/21 for violating the COVID-19 Consumer Protection Act)
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Ok…wild thought…hear me out:
What if…
We test the cows for
#H5N1
BEFORE we ship them out of state?
Yeah? Maybe?
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FUCK YOU ERIC ADAMS. “If a person refuses to remove their mask that right there should cause you some sense of alarm.”
Our respirators protect us from LIFELONG PERSISTENT VIRUS THAT CANNOT BE CLEARED FROM OUR BODIES. You sound sick as hell, btw. THAT should alarm you.
We are fighting retail theft in New York City with every tool available. Join me in Harlem for an important announcement that will help us bust even more retail and bodega bandits.
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Have you delayed/avoided
#healthcare
bc of lack of masks/telehealth/safe providers/vaccine access etc?
1) Comment below with your experiences.
2) If I did a survey to try to gather more accurate data from our community, would you participate?
#COVIDisNotOver
#BringBackMasks
Yeah, this. I used to want to maximize my health and minimize potentials for serious illness.
Now I'm just trying to avoid needing healthcare because there's no place more dangerous for the immunocompromised than a hospital or doctor's office.
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And until we have treatments, upgraded air quality, legislation that protects us, mitigations, a cure…until we have a quality of life, some real hope and a future that resembles something we’re looking forward to being in…
I’m not stopping.
11/11
#LongCovid
#ResistSARS2
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What we are doing is not sustainable in the sense of “find other ways immediately to care for yourself at home in every way.” Learn to manage IVs. AEDs that charge off your phones. Nursing courses via Red Cross. Whatever you can do, do it. We’re here now.
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It means that it was already spreading, mutating, while our gov't was playing pretend (and failing), AND LEARNING NOTHING. From Jan to Aug 2019, US nat'l, state, local, private, and public orgs participated in an exercise dubbed "Crimson Contagion," a mock influenza pandemic.
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+ wearing KN95/N95 respirators + using vaccines to prevent more severe cases where possible + staying home when sick + testing if symptomatic or exposed.
I went to the ER with a pulse ox below 50. Tried to avoid it but my kidneys are bad today. I’m dehydrated. 2/
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Said they needed to review aerosol spread. Said I am disappointed I have to save my own life.
Still no oxygen at this point.
After 4 hours, I went home. Infection risk too high. Student doc never found extra tubing. People sick everywhere.
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I agreed that I would use oxygen via nasal cannula and then stick a Readimask over it, hopefully sealing the areas around tubing 🤞
Tried to tell me if I was on oxygen, COVID risk was minimal. Didn’t have the energy to explain this was wrong. Said they were misinformed.
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I don’t have the energy for this. I don’t have the energy to share this. To fight for myself. To fight with all of you. To fight for all of us.
But I’m going to do it anyway. Doing it means I end up in the ER, pulse ox under 50, kidneys refusing to function, body screaming.
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CW: police violence
I also want everyone to see how these explosive devices ignite. NYPD shot them into Hamilton Hall at Columbia last night. They can cause serious bodily harm/can be lethal in close quarters.
COPS TURNING THE ENCAMPMENT INTO A WAR ZONE. THIS IS FUCKING INSANE. 20 FLASHBANGS IN A ROW.
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Another 35 mins. 2nd monitor confirms shit pulse ox. 46 now.
I laugh. “Long Covid is a bitch, appreciate you wearing an N95.” Child-doc is unamused.
Suggests I’ll need oxygen, wants me to take off my N95 to look at my face.
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I packed EVERY ITEM on my list, including an air purifier, N95s, RATs; brought Tylenol, Meclizine, Imodium, Tums; labeled all my meds for Capitol security; showered; did laundry; slept a bit; remembered cords; and I’m not going to miss my bus.
Please clap?
#HELPLongCovid
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Have an infection spreading across my face from wearing a mask for 12+ hours and the condensation from the cold weather/warm breath.
So I go, and it takes 2 hrs to even be seen. Pulse ox monitor shows 48. Med student says that’s “abnormal” and searches for different monitor.
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“Over my literal dead body. I’m allergic to Cipro, Amoxicillin is fine. Thank you.”
Says I’ll have to take my N95 off. I say I came to get help, not to get COVID.
We move on. They go to look for oxygen tubing, as there is none in the makeshift area we are in.
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When this crash ends my pulse ox will come up. I’ll find antibiotics online I guess. Hydration…idk but I’ll figure it out. I can start my own IV if I can get supplies or I have a freezer full of pedialyte popsicles. They make me feel like shit but better than kidney failure.
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Less than a month after Crimson Contagion ended, the first SARS-CoV-2 sample was documented in Italy.
Between the first sample in Lombardy, and the day my home state imposed a 2-week stay-at-home order, 183 days passed.
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#CovidIsNotOver
#CovidIsAirborne
#StayHomeSaveLives
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They failed the exercise for a variety of reasons, and while this is touched upon in the film "Totally Under Control," here are a few: 1) access to funding - both availability and shortages of, 2) communication between agencies, 3) clarity regarding leadership, and
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The mock threat, originating in China, was designed to test the capacity and response of the federal gov't and 12 states. There were numerous exercises, ending in a hands on, in-person 4-day event that took place from August 13-16, 2019.
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4) sharing of timely/accurate data. I've attached the full PDF that was so kindly released through a Freedom of Info Act request for the Crimson Contagion After-Action Report.
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There are going to be more and more real-life implications that people really don’t understand as a result of repeat SARS-CoV-2 infections. Multiple times a week, I have to yell “something’s burning!!” to let my neighbor know it’s time to check on the oven.
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@Liebchen59
Yep. Called me to tell me Merry Xmas, sounded awful, didn’t even try to hide that he was hoarse. I asked how long he’d been sick, and he said he had COVID last week, it was “sh*t, I mean…I coughed so hard I broke a rib. I felt it, I don’t wanna cough now, hurts like hell.” 😢
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I’m not asking for the moon. I don’t think we will get an entire gym to implement masks again. I want one instructor to offer a fully masked (N95+) fitness class with HEPA, or a zoom option for a preexisting class. I want docs to mask and have HEPA.
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What happened to the doctors that went into medicine “to help people” ??
Did you give up? Decide it’s more important to be liked? Change your minds along the way? Realize that you went into medicine for the title?
Guess what? You aren’t popular. We don’t like you. 1/
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Made it to DC for
#LCDC
. Traffic wasn’t terrible. Am absolutely exhausted. Will take more pictures tomorrow.
(Don’t comment on the KN95/seal. I’m sleeping in it and we have other precautions in place. An N95 breaks the seal when I sleep in it also.)
#LongCovidAwarenessDay
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I don’t think we will change everything. I don’t think we can at this moment. I think people have become too opposed to this. But I want options. An hour of grocery shopping, masked. I’m using the phrasing “vulnerable populations.” Anyone who wants this option should have it.
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@LadyChuan
Noooo. I took Jet Bus from NYC to DC 😭 much better experience and worth the money. UV and HEPA onboard. Only 14 seats. Neither of my trips were full. One person coughing on trip back. Sniffly attendant going up, asked to mask, gave kn95, was super pleasant and wore it.
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Highlight of my fucking day, btw. Put your mask on your face and leave it there.
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I’ll post some templates for letters/emails this weekend. We have nothing to lose. They already aren’t masking. The worst they can do is say no. I’m focusing on providers I know, that have more inclusive policies in place, and that offer telehealth and accept govt insurance.
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WTF are we even doing?! Pasteurization isn’t just about “making milk accessible.” It kills bacteria that can lead to tuberculosis, brucellosis, typhoid fever, listeriosis, diphtheria, among others.
☠️It can be deadly to eat unpasteurized dairy products. Don’t do it.☠️
Today, we signed legislation that allows the sale of raw milk within the City's jurisdiction. This will help local vendors sell dairy products at our farmers' markets and stores, and make a big difference for folks who benefit from its nutritional elements.
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@ShadowXLaw1
Have you ever heard of SARS-CoV-2? It destroys your T-cells and then you have no more immune system, and “a cold” puts you in the ground.
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🚨Our
#COVIDCautious
and
#COVIDConscious
communities are in crisis. We've delayed/avoided healthcare over the last 3 1/2 years due to a lack of
#COVIDSAFEProviders
. Our community members need primary care, dental care, eye care, preventative care, scans, exams, and labs!!
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Delta pushed for the decreased isolation period. I’d say they’re at fault for a hell of a lot more than holiday rebooking.
As folks across America fly home for the holidays, this year, they'll have peace of mind knowing 9 of the largest airlines now guarantee free rebooking and hotels if they're at fault for a cancellation or delay.
My Administration challenged them to do better. And they did.
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I don’t have a device with a screen big enough to accommodate what this is going to look like in January.
New York State covid hospitalizations approaching double what they were a month ago.
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Guess I should’ve specified. This is the first of three shipments of Rapid Antigen Tests from the federal stockpile that are going to be distributed throughout NYC for free. Secured through an organization and shipped to my home. 14,848 covid tests 🧪🦠
#CovidIsNotOver
Ask and they shall be delivered…everyone involved knows how much effort this has taken, and how much more there still is to do. Still have 21 more boxes arriving over the next couple weeks, but a HUGE THANK YOU to the people that have given time to this project this far 💜
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Well. Stayed in DC an extra day and it was so worth it. The crash is going to be so rough but that’s a tomorrow problem. This was one of the best experiences I’ve had in so, so long. I truly have hope. Also got to be here for 5+” of snow. Pics to come.
#LongCovid
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When was the first time you got infected with something that resembled we later named “SARS-CoV-2” ?
Was in Jan 2020? Feb 2020? Mar 2020 or later?
Or was it in 2019 that the cough, fatigue, headache, etc hit you?
Leave a comment - when, and details?
#PrePandemic
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@neverending_ish
@DonEford
I stand corrected, the full study is here:
There were wastewater samples popping up all over the world by December 2019, and September 12, 2019 was the earliest documented SARS-CoV-2 positive sample.
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@DYork1979
I would assume so. And to suggest that it is only 3M and not other brands would be shortsighted and potentially harmful, in my personal opinion. They have excellent fit test results, and they’re made of the same material that most respirators are made of.
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@nsfbr
I should clarify: he’s had his childhood and primary mRNA series, but then decided he wasn’t getting any more and was letting his “God-given immune system” work. I’d almost convinced him to consider NVAX when he got sick. Now he’ll have to wait, but I think maybe he’ll do it.
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@LazarusLong13
This is a crime. It’s come up before, and legal firms - depending on the state - will tell you that the person can be held criminally liable, but depending on whether or not you can prove that person infected you (obviously you can), they may/may not be held civilly liable.
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3 air purifiers, door seals, kn95s INSIDE my apt, haven't left in 6 days. My neighbors have managed to give me both COVID + Strep. WE SHARE THE AIR.
Hoping this infection doesn't kill me. The last one very nearly did.
GFM:
PayPal/Venmo:
@RobynTheRedd
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@mavisclare
We gave stimulus payments (UBI), which allowed so many to meet basic needs. We expanded healthcare and SNAP, and other benefit-related low-income programs and grants, which put food on tables, kept lights on, filled prescriptions.
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#LongCovid
is really fun. 30/10 recommend. Just hand-washed some laundry because I can’t afford to pay for it, and now my back is on fire and I threw up blood again. Spectrum called me 8x to tell me they’re disconnecting my internet. Seriously. Everyone should try this.
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Your title isn’t shit.
You’re doing harm each and every single day that you go to work unmasked. You’re doing the very thing you took an oath not to do.
We don’t want you as providers. We don’t think you’re fit to do your job. We think you should care, just a little bit. 2/
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Just watched a reporter in Times Square bareface-breathswap with the crowd, and then LAY DOWN ON THE FUCKING GROUND and do the worm...so I'm not worried about JN.1 anymore. I'm worried about whatever super variant they just created. We can call it NY.E 🤮
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We aren’t asking that much.
We want you to respect our decision not to die. We want you to not forcefully infect us with a deadly pathogen.
We want you to wear a mask. We want you to do no harm.
You can help by wearing an N95. It’s easy.
Don’t be a bad doctor. Mask up. /3
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Wanted to wait until after LCDC and didn’t want to detract from other things that I felt deserved to be focused on last week, but this has been on my mind.
March 13, 2024 was 4 years
#sober
for me. I stopped drinking the day CA shut down in 2020.
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I want a
#RespiratorMandate
for all healthcare facilities and providers- including pharmacies, pharmacists, techs, and other staff in these related facilities. I don’t want to be given med refills and vaccines by a coughing, bare-faced person. It’s negligent.
#ResistSARS2
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COVID SPREADS OUTSIDE. I still have N95s/KN95s available and rapid tests for anyone in NYC that needs them. Disabling your comrades isn’t cool.
NOW: After rallying in front of the Paulson Center at NYU, protesters in NYC have taken to the streets and are currently marching west on Houston Street
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@k1llstreakz
Gotta be honest…would ask HIV/AIDS docs what they’d suggest. With T and B cells wiped out, opportunistic infections presenting, and docs refusing to acknowledge LC, she might get closer to useful treatment with that approach than just having docs go “we’re trying everything.”
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Usually I feel like there is something, some resource, some sort of…anything. An option.
Not tonight. Tonight I have 7 BinaxNOW tests that are entirely useless. Invalid. Unusable. I’m out of money, time, patience, energy. We do not have the tools.
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1/2 - Template for Healthcare Provider Letter
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@hope_rebel94
@laurenancona
I agree completely! And our public officials at the time assigning racial slurs to the virus really should’ve been hate crimes. I can’t believe how poorly everything was handled and we just let it happen.
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Oh, my posts are scary? They’re triggering? You don’t want to see all this bad stuff everyday?
YOU’RE GOING TO FUCKING HATE HAVING
#LONGCOVID
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@drseanmullen
@Novavax
@Costco
Respond with, "Actually, you're not. My medical provider determines what exactly makes me immunocompromised, and you are not my medical provider. I am not obligated to discuss that information with you."
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🚨STOP USING CUE TESTS🚨
5/10/24: The FDA issued a notice to Cue and all consumers to THROW AWAY Cue test strips. The company made changes to their tests and they may be producing false results.
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Ok. So just consider for a minute:
The argument for repurposing ART drugs for C19 is two-fold here:
1. ART significantly increases the lifespan of the average HIV patient. Not a month or two, but DECADES.
2. ART PREVENTS new HIV infections - as much as 96% effective.
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@DonEford
I don’t think it’s a huge secret or that it’s unknown. They’ve sequenced it and been transparent about the fact that it was traced back to the Military Games in mid October, but the first case officially recorded by the govt was Nov 17.
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@pot8um
100% can smell it beforehand. Would love to see a poll on ND v NT and smelling rain v not smelling rain. Sort of expect a fair overlap between ND and being able to smell rain.
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I almost threw my phone at the fucking wall. There is not enough rage in the universe to fix this mess.
“‘Occasional’ positive COVID-19 tests”…
Asymptomatic infections are NOT HARMLESS.
#CDCKills
again.
@CovidDataReport
@TODAYshow
The way they bury the lede, and even then present these details as if they're unrelated.
"sudden cardiac arrhythmia"
"'occasional' positive COVID-19 tests"
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2/2 - Template for Fitness Instructor Letter
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I am sitting in a hotel in Washington, DC, considering my options.
1) Call
@GavinNewsom
repeatedly?
2) Break something?
3) Go outside and scream and kick snow?
FUCK. IF I HAD ANOTHER DAY HERE ID TAKE A MEETING I WAS OFFERED TOMORROW BUT I FUCKING HAVE TO GO HOME. GODDAMNIT.
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For the 3rd time just a few weeks, my landlord decided they'd unlock my door without warning. Today, they brought along 2 ppl from ConEd. All 3 were COUGHING and SNEEZING, and my landlord was SHOUTING at me, "You MUST let us in for just 5 min!!" ...
"Over my LITERAL DEAD BODY!"
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Think I have a PE. It’s been 4 days. Have done 2 telehealth urgent care visits and taken blood thinners that I shouldn’t take.
BP at 213/114, pulse ox 67, HR 135-162.
Still feel safer than being in an ER. Odds that I’m in the 2/3 that don’t die from this?
#LongCovid
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STOP EXPECTING YOUR GOVT TO PROTECT YOU. These are the same shit people that brought us "vax and relax" and "you do you." They left us to die. We can act surprised when they announced these asinine decisions, or we can start planning ahead and fighting back. Yeah?
#FuckTheCDC
I am devastated—I saw with my eyes what’s coming from CDC tomorrow. My sources told me on what their rationale is based. And based on what I know (epidemiologist for 20 years)—it is complete bullshit crafted on thin flimsy data. I can’t believe CDC has such incompetent leaders.🧵
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@BaneOfCovid
Send it. I’ve been fighting this fight for 2 years. The law is on your side. If they didn’t give proper written notice, (there are specific guidelines for how that notice should be issued to you and what it must include), then they’ll need to reissue it. Clock restarts.
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@drseanmullen
And CDC in the corner like, “Tis but a head cold. Get your ass into the office.”
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Is it ONLY 25% of people with definitive viral persistence, or do we just need a more sensitive test and technology we don't have yet?
#LongCovid
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2nd memorial flyer has gone up in my building. IN A WEEK. 3 ambulances here today. Used what little energy I had to yell at a barefaced EMT outside after they declined an N95. No patience left for this fucking horseshit. Put a goddamn N95 on. I won’t die for you.
#CovidIsNotOver
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@syderature
They’re radiator covers. This is actually a fairly thorough walkthrough of the way that the administration did end up handling the transition m, cleaning, and upgrades:
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I DON'T GIVE A FUCK WHAT THE GOV'T DOES AND DOESN'T WANT TO HEAR.
I'M NOT GOING TO DIE FOR THEM.
I'M NOT GOING IN A FREEZER TRUCK TO PROTECT THE COMFORT OF 6-FIGURE CONGRESSPEOPLE.
#ResistSARS2
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🧵If you aren’t wearing a mask or respirator then I don’t trust you. That’s it. You don’t care about yourself and you don’t care about others. I don’t trust you if you can’t be bothered to practice the most basic community care while Covid, TB, measles, RSV, flu, etc spread.
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@RealGayArbys
I have long covid from asymptomatic covid. I almost wish it had been symptomatic bc I wouldn’t have gone nearly two years telling myself that it was other stuff. You don’t suspect long covid when you don’t know you had covid. And you don’t seek care for it either.
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If your doctor has minimized your
#LongCovid
, I want their fucking name. Same for those that minimized mask-wearing,
#COVID19
, and related topics. I want us to send their names and practice info to every covid-informed person on this planet, as well as the Senate HELP committee.
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Post-photoshoot FULLY MASKED selfie.
Everyone wore 😷KN95 OR BETTER😷 because we all care about the health and safety of those around us!!
We even had an open conversation about the current level of COVID, and why it isn’t being made more visible.
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YOU GUYS!!!!!! It only took 26 months, 4 applications, 2 appeals, almost every day on the phone with HRA, getting a Senator involved, and idk how many appointments…but…
I’m insured 🎉
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#UCLA
encampment is not ok tonight either. Zionists have been tormenting the encampment for multiple nights - lab mice and cockroaches released, and now fireworks INTO the encampment, barricades torn down, reports of protesters being beaten and bear mace in use. Videos in QT.
Bear mace flying, folks throwing massive fireworks into the encampment, some encampment protestors were singled out and beaten
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@PplsCityCouncil
Fireworks aren't legal to possess on campus. They need a weapons permit for that.
I'd call the fire dept or report them to the arson hotline 1-800-47-ARSON if LAPD won't do anything.
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Throwing away PPE, throwing away meds, throwing away humans. What haven’t we tossed in the trash in the last 4 years?
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Spring Break season in Florida started yesterday. This CDC guideline change set everyone up for a COVID-Measles superstorm. Great.
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