Physios For ME
@PhysiosForME
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A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Joined June 2019
We've added more information about our new book to our website, including answers to some frequently asked questions 👇👇 https://t.co/bOxfSIS2fR
physiosforme.com
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We've just published a pre-Christmas update on our work over the last few months. Wishing everyone a peaceful break and see you all again in the new year 💜 https://t.co/KJJSNkq2tT
physiosforme.com
Before we take a short break over the holidays, we thought we’d share a few updates on our work over the last few months. ResearchThis remains one of our main focuses and there’s a lot going on,...
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https://t.co/trcxbc8qtN A reminder to hcps - please fill out this survey before Xmas if you are living with #LongCOVID or #ME - esp need radiographers, paramedics, orthoptists, prosthetists, podiatrists and dentists thanks @PhysiosForME
physiosforme.com
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This is part one of her interview - part two will follow in 2026. Thanks Natalie! https://t.co/CiKDgFkmpS
chroniclivingtherapy.com
Natalie Hilliard Natalie is a physiotherapist and one of the co-founders of the UK-based organisation Physios for ME. This small organisation has punched above it its weight since it was founded,...
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Great to see Natalie from our team sharing important information about how she supports people with ME and Long Covid
Natalie Hilliard from @PhysiosForME shares: ⭐️ how her interest in #MECFS and #LongCovid developed ⭐️how she supports patients ⭐️what therapists need to know to support patients affected by these conditions Link in next tweet...
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It's not too late to order our book for Xmas! We are still really proud of the reviews and are so pleased that #pwme and all #hcps have found it useful not just #physios. @PhysiosForME
@thecsp @WorldPhysio1951
https://t.co/7VEzAf4wfU
physiosforme.com
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1/2: Driving discovery: The ME Association invests £1.1m into pioneering research programme! We are incredibly proud to unveil news of our latest investment into ground-breaking research to help world-leading scientists uncover shared pathways between ME/CFS and Long Covid.
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https://t.co/trcxbc8qtN 150 responses in 2 weeks. Thank you all for completing. Just a reminder that it is open until 31st Dec and it allows for pacing (can save responses and cont at another time). Please share widely. Still some professions not reached @PhysiosForME
physiosforme.com
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111 responses in one week. Thank you all. We have received responses from over 20 professions. A few professions not reached yet - Dentist, Chiropodist/podiatrist, Hearing aid practitioner, Orthoptist, Paramedic, Radiographer. Please share widely thanks. @PhysiosForME
🚨New survey alert 🚨 The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME All information can be found on the landing page here. https://t.co/40dHE5sBry
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71 responses in 4 days. Thank you to all hcps who have answered the survey so far. Please keep sharing. You can stop and restart the survey so it does allow for pacing. Thank you for all your insights, so valuable. @PhysiosForME
🚨New survey alert 🚨 The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME All information can be found on the landing page here. https://t.co/40dHE5sBry
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Looking forward to presenting at the Chartered Society of Physiotherapy conference on Friday in Newport. If you're there come and say hi. Time for more advocacy and education about #ME/CFS and #LongCOVID @PhysiosForME @thecsp
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. @PhysiosForME : An international survey exploring the experiences of healthcare professionals living with Long COVID (with post-exertional malaise) and ME/CFS - closes 31st December at 6pm https://t.co/Z79wpr5w3Y
#MECFS #LongCovid #HealthcareProfessionals
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🚨New survey alert 🚨 The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME All information can be found on the landing page here. https://t.co/40dHE5sBry
physiosforme.com
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Clague-Baker et al (2023). Home-based testing protocol to measure physiological responses to everyday activities in ME: a feasibility study This study, funded by the ME Association's Ramsay Research Fund, tested whether we can measure ME/CFS symptoms during normal activities at
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Except the items listed in this table are all still “exertions” in the sense of requiring homeostatic adjustment. Thinking about how body systems must balance and rebalance in response to some type of loading is a more helpful and expansive way to think about the phenomenon.
5) The table below shows triggers included in the questionnaire and how common these are. It's notable how many are not directly related to exertion, such as cold, positional change, noise, foods, chemicals, etc. (Not sure if it's an improvement to include all of these).
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@Nature Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome by Davenport @C_Scheibenbogen Zinn @marydimmock Stone Tronstad Fluge Bergquist Stevens @davidtuller1 Behrends Van Ness @Huisarts_Vink & Nacul
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Further information on our newest paper can be found here: https://t.co/Ti4Qj1bdsA (end)
physiosforme.com
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We worked with a great team: @sunsopeningband @HarryLeeming and patient experts. Collaboration with the ME community has been central to all our research projects - we learn from the best! (4)
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89% were still using heart rate monitors after 8 weeks, and 66% after 6 months. No significant drop in activity level after the introduction of heart rate monitors, which appears to contradict concerns that this method of pacing will cause people to become over cautious. (3)
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As this is a feasibility study, no conclusions can be drawn about the data itself; the outcome is whether this protocol is feasible. Key points found: The protocol (using home-based testing) was feasible with no adverse events (2)
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