MPN Research Foundation
@myMPNRF
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Work with patients, researchers and industry to convey vital info to help move therapies forward @MPN_RF
Joined December 2017
For news and resources on research on #MPNs, please follow @MPN_RF and sign-up for our monthly e-newsletters at https://t.co/gepwniSC3i. This handle is no longer active.
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Our work on structural racism & AML outcomes is out in @BloodJournal! This was a Chicago-wide collab led by Dr. Abraham & @Irumkhan_hem. The big takeaway - structural racism accounts for almost all of the survival disparity in Black & Hispanic pts #leusm
https://t.co/UfTsaM3i8G
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Hot off the press!! So excited to follow this research and see the impact it will have on #mpn research and treatments!
Congrats to @jyoti_nangalia and her research team on this exciting publication! We are proud to be a funder of this important work through a 2019 MPN Challenge award!
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ICYMI vital patient insight into living with an #MPN
The Voice of the Patient report on MPNs has detailed insights about living with #ET #PV & #MF to help biopharma & @US_FDA keep patient perspective top of mind during drug development & #clinicaltrial design. Check it out at https://t.co/kTjCV2fd3i.
#mpnsm
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👉👉👉Our new paper just out in PubMed: Ruxolitinib re-treatment in patients w/Myelofibrosis 🙌 Acta Haematologica @KargerPublisher | https://t.co/6hDa2QeT9A | @AaronGerds @doctorpemm | #MPNSM
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The Voice of the Patient report on MPNs has detailed insights about living with #ET #PV & #MF to help biopharma & @US_FDA keep patient perspective top of mind during drug development & #clinicaltrial design. Check it out at https://t.co/kTjCV2fd3i.
#mpnsm
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Dr. Richard T. Silver discusses using interferon in the treatment of myeloproliferative neoplasms (MPNs) and a related 3-year global initiative led by the @MPN_RF where he serves as an advisor. Full interview: https://t.co/tx208dTWin (cc: @TargetedOnc) #MPNsm
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So great to see these results presented at #ASH21!! Thank you to all researchers, clinicians and patients for doing your part to move research forward toward better options for patients!
ICYMI Monday’s 10:30am #ASH21 oral session hosted by @MPN_RF funded @mullallylab and @mpnlab (formerly funded) was packed with MPN research developments. 3 of the 6 presentations featured work in labs funded by MPNRF! #mpnsm
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Thanks to @ASH_hematology and mentorship from @GabyHobbs for the opportunity to present our work on #mpnsm and responses to covid vaccination at #ASH21 !
So proud of @joanhowMD for presenting our study looking at response to COVID vaccination in MPN patients! https://t.co/RZOIsfLp8j
#ASH21 #mpnsm
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#ASH21 #MPN #CD123 in #myelofibrosis, Great talk and another option for refractory patients, notice median #survival 26.6 months @doctorpemm @AYACOUB7. Congrats!
#ASH21 #MPNSM oral session #2 @AYACOUB7 @doctorpemm ; #Tagraxofusp in patients with R/R MF. #CD123 #SL401 @MrinalPatnaik @JoeKhouryMD #BPDCN #leusm
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Heads up! All #mpn researchers - don't miss this opportunity for funding through FDA's grant program. #mpnsm Please RT and share with colleagues.
Got applied research ideas? Get #researchfunding from #FDAOncology. We support applied research on: rare cancers, pediatric cancers, health equity, cell/gene therapy, safety, trial designs, & more. Submit quad chart & whitepaper by 1/21/2022. Learn more: https://t.co/VqEcdd5Is1
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Congrats to @PedsHemeDoc and all MPN Heroes! Thank you for your clinical and research leadership and the compassion you show to #MPN patients and their families!!
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Heads up!! TODAY is #GivingTuesday Please support research towards better treatments for #MPN patients by supporting @MPN_RF Be one of the 100 to help us unlock $80,000!
Several MPNRF Board Members have committed to personally contribute $80,000 if 100 people donate TODAY. Be 1 of 100 by making a donation at https://t.co/6ZRQ4DA6i5. Together, we advance MPN research! #MPNsm #GivingTuesday
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Several MPNRF Board Members have committed to personally contribute $80,000 if 100 people donate TODAY. Be 1 of 100 by making a donation at https://t.co/6ZRQ4DA6i5. Together, we advance MPN research! #MPNsm #GivingTuesday
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Breaking MPN news for Polycythemia Vera! Ropeg INFa2b (Besremi) approved for therapy of PV! Great news for #MPNSM community! #Pharmessentia @MPN_RF @MPNVoice @MPN_Hub @mpnadvocacy @doctorpemm @UTHealthSAMDA
onclive.com
The FDA has approved ropeginterferon alfa-2b-njft for use as a treatment in patients with polycythemia vera.
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Today we approved a new treatment for polycythemia vera, a rare blood disease that causes the overproduction of red blood cells. This is the first FDA-approved option that patients with this disease can take regardless of their previous treatment history. https://t.co/EnXPmM1i0D
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PV patients. Check out these 10 Quick Facts regarding RoPEG INF (Besremi) for PV. 10 facts MPN patients need to know about FDA approval of Ropegylated int... https://t.co/m5HjqP8rIk via @YouTube @doctorpemm @jjkiladjian @harrisoncn1 @UTHealthSAMDA #mpnsm
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We are excited to announce our 2021 MPN Challenge awards! Each of the 5 research projects will be funded up to $200K over 2 years. 🔬 Learn about the researchers & the focus of their research at https://t.co/xe3uzW8ILV. We are grateful to @LLSusa for co-funding a grant. #MPNSM
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Why do some people with ET, PV & Primary MF respond dramatically to interferon while others have no benefit, or become resistant over time? A new report on our 3-year Interferon Initiative provides insights. Learn more at https://t.co/x8jBMl4Icv
#MPNsm #MPN
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