Living with MPNs Day is underway 👏

Time’s running out and your voice is missing. At MPN Voice, we’re rethinking how we support people living with myeloproliferative neoplasms (MPNs). But we can’t do that without you. Whether you’ve leaned on our resources, joined an event, or quietly followed from the sidelines

What matters most to you… and what might we be missing? At MPN Voice, we’re taking a fresh look at how we support people living with myeloproliferative neoplasms (MPNs) — and we need your insight to guide us. 💬 Whether you’ve leaned on our resources, joined an event, or

“Why do I feel this way?” “Is it just me?” “What can actually help?” If you’ve ever asked these questions while living with an MPN — or supporting someone who does — this vlogcast is for you. 🎥 In his talk from the Inverness Patients’ Forum, Dr Jack Waldman explores the

Join us for Living with MPNs Day, a comprehensive, all-day event designed to support patients and families affected by Myeloproliferative Neoplasms (MPNs). This is a great opportunity to connect with leading experts, specialist nurses, and other patients to learn more about

A joy to walk with some of GSTT team MPN this morning to raise awareness of MPN and Blood Cancer! The weather was kind and after a total of 30 miles between us the coffee and croissant were welcome!! Great job team @MPNVoice @MPNSM @G_ICEMD @bloodcancer_uk

Dear MPN Voice community, We are inviting people living with Polycythaemia Vera (PV), Essential Thrombocythaemia (ET), or Myelofibrosis (MF) who have received treatment with interferons (Pegasys or BESREMi) to take part in a short, anonymous survey. This important study aims to

Now let's shine a light on Myelofibrosis (MF), the third main type of Myeloproliferative Neoplasm (MPN). Myelofibrosis is a chronic blood cancer where the bone marrow (the soft, spongy tissue inside your bones that makes blood cells) is replaced by scar tissue. This scarring

Let's talk about another rare blood cancer: Essential Thrombocythemia, or ET. It's a condition where your body's bone marrow produces too many platelets. Think of platelets as tiny construction workers that help your blood clot when you get a cut. In ET, you have an

Have you ever heard the term "Polycythemia Vera"? Most people haven't, but it's one of the three main types of a rare group of blood cancers known as Myeloproliferative Neoplasms, or MPNs. So, what exactly is it? Simply put, Polycythemia Vera (PV) causes the bone marrow to

September 11th is MPN Awareness Day! A whole day of coming together to raise our voices, share our stories, and support one another. We know the journey with an MPN can feel isolating, but on this day, we want to remind you that you are part of a powerful, global community.

We are very pleased to let you know that the recent shortage of Pegasys interferon has now been resolved, and hospitals are beginning to receive normal supplies again. While Pegasys was in short supply, some people were prescribed a different interferon called Besremi to make

@amyywoodruff striker great person (inspiring mother also jd model ) @shaunalegge captain always gives 110 percent @MPNVoice will pop the link below @bignorms @DWindass10

Help shape the future of healthcare. 🔬 You are at the heart of life-changing medical breakthroughs. The National Institute for Health and Care Research (NIHR) is on a mission to improve treatments and care for everyone, but we can't do it without you. Be Part of Research is a

🚶‍ WALK TO SUPPORT - YOU DON’T WANT TO MISS OUT! A huge shoutout to everyone already stepping up for our Walk to Support campaign. Your energy, heart, and fundraising efforts are making a real impact. We see you; we thank you, and we’re cheering you on! 👕 Our limited-edition

The video of the MPN Voice patients’ virtual forum, held on 3 July 2025, is now available to view. About EHA – a global network actively collaborating with national and international medical associations and societies, advancing haematology education across Europe. The EHA

The vlogcast features Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, discussing the new study on thrombosis risk in MPN patients using QRISK3 Score. Dr Harrington explains the research the team at Guy’s Hospital have done to see if a new way of