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MPN Voice Profile
MPN Voice

@MPNVoice

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Following
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MPN Voice supports people with rare blood cancers called myeloproliferative neoplasms (MPNs). We offer information, give emotional support and fund research.

Joined March 2011
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@MPNVoice
MPN Voice
9 hours
The vlogcast features Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, discussing the new study on thrombosis risk in MPN patients using QRISK3 Score. Dr Harrington explains the research the team at Guy’s Hospital have done to see if a new way of
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@MPNVoice
MPN Voice
2 days
Save the Date: 15 November 2025. We’re heading back to London for the MPN Voice Living with MPNs Day—a powerful day of connection, learning, and hope for anyone affected by Myeloproliferative Neoplasms (MPNs). Whether you're living with ET, PV, or MF, supporting a loved one, or
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@MPNVoice
MPN Voice
2 days
Join us in Inverness for a powerful day of connection, learning, and support at the MPN Voice Patient Forum. 🗓️ Date: Wednesday 3 September 2025 🕥 Time: 10:30 AM – 4:00 PM (arrival from 10:30–11:00 with complimentary refreshments) 📍 Venue: UHI House, Old Perth Road, Inverness,
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@MPNVoice
MPN Voice
14 days
EXCLUSIVE MERCH ALERT: Be the Voice, Wear the Message! 🔥. Step up in style for the MPN Voice 2025 Walk to Support Challenge with our LIMITED-EDITION T-SHIRTS crafted to inspire, unite, and amplify awareness for rare blood cancers like MPN. 👕 Why They Matter.These tees aren’t
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@MPNVoice
MPN Voice
15 days
LEVEL UP YOUR WALK TO SUPPORT! Join Our Team Treks!. Did you know that alongside our flexible #WalkToSupport2025, some of the MPN Voice fundraising team are taking on organised trekking challenges this September as part of Blood Cancer Awareness Month and around MPN Awareness Day
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@MPNVoice
MPN Voice
17 days
🎉 500 Strong and Growing. Thank You, Young MPN Community! 🎉. We’ve just hit an incredible milestone: 500 members in our Young Patients Network Facebook group!. This isn’t just a number it represents 500 young people (aged 40 or under) who’ve chosen to show up, speak out, and
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@MPNVoice
MPN Voice
21 days
In this vlogcast, Neil shares his personal journey living with a MPN, beginning with his diagnosis of ET in 1994 and progressing to MF in 2023. He speaks candidly about the emotional and physical toll of his MPN, his experiences with treatment, and the ongoing decision-making
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@MPNVoice
MPN Voice
21 days
WALK TO SUPPORT 2025: YOUR JOURNEY, YOUR IMPACT!. 🗓️ Join our FLAGSHIP event this September during Blood Cancer Awareness Month & MPN Awareness Day (Sept 11)!.YOUR WALK, YOUR WAY:.- Set your OWN distance - every step counts!.- Walk DAILY or spread it throughout the month.- Bring
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@MPNVoice
MPN Voice
1 month
REGISTRATION NOW OPEN!.Friday 7 November 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch).Venue.Victoria Hall, Norfolk Street, Sheffield, S1 2JB.THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE.This forum, with presentations from the haematology
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@MPNVoice
MPN Voice
1 month
REGISTRATION NOW OPEN!. Friday 3 October 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch). Venue. The Royal Station Hotel, Neville Street, Newcastle-upon-Tyne, NE1 5DH. THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE. This forum is an
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@MPNVoice
MPN Voice
1 month
REGISTRATION NOW OPEN!. Friday 19 September 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch). Venue. Crowne Plaza Hotel Chester, Trinity Street, Chester, CH1 2BD. THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE. This forum, with presentations
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@MPNVoice
MPN Voice
1 month
REGISTRATION NOW OPEN!. Wednesday 3 September 2025, 10.30 am – 4 pm (arrival/registration from 10.30 – 11 am with complimentary refreshments). Venue. UHI House, Old Perth Road, Inverness, IV2 3JH. (located on the Raigmore Hospital campus). THIS IS AN IN-PERSON FORUM NOT
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@MPNVoice
MPN Voice
1 month
MHRA approves pharmaand GmbH’s Pegasys® (peginterferon alfa-2a) as a treatment for eligible patients with the myeloproliferative neoplasms (MPNs) blood cancers polycythaemia vera (PV) and essential thrombocythaemia (ET). 💙First MHRA approval of an interferon alfa as a
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@MPNVoice
MPN Voice
1 month
Raising Awareness — One Step at a Time 🌟 From bake sales and treks to abseils and heartfelt patient stories — your voices have echoed across the last year, and this image says it all. As September approaches, we’re gearing up to launch the MPN Voice Walk to Support Challenge -
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@MPNVoice
MPN Voice
2 months
🌍 It's not too late - Wherever You Are, You’re Not Alone. Join us online for the next MPN Voice Global Forum — bringing our international community together for the very latest in MPN care and research!. 🗓️ Thursday 3 July 2025 🕕 6–7:30 PM (BST) 💻 Live & Online – Free to Join
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@MPNVoice
MPN Voice
2 months
Calling All MPN Patients and Supporters!. Join us in Nottingham on Tuesday 5 August 2025 for an uplifting MPN Voice Patients' Forum—a chance to connect, learn, and feel empowered in a warm and welcoming space. 🕐 When: 1–5 PM (arrive from 1 PM for a complimentary buffet lunch)
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@MPNVoice
MPN Voice
2 months
Our Young MPN Patient Forum on Saturday was a huge success! 💥. 👥 Over 30 young people living with an MPN attended our first ever forum dedicated to young patient experiences and challenges🎙️ we were fortunate to hear talks from specialist clinicians, nurses, researchers, and
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