MPN Research Foundation
@MPN_RF
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We’re a global research foundation stimulating research in pursuit of new treatments, & eventually a cure, for PV, ET, & MF. #mpnsm
Chicago, IL
Joined October 2010
GLP-1 drugs like Ozempic may reduce risk of MPNs & MDSs — two rare blood cancers. Retrospective data from 1.6M+ T2D patients offers new research clues. Study by @ClevelandClinic 's Dr. Abhay Singh in @JAMANetworkOpen . Dr. Singh interview:
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How is a patient registry different from a treatment trial? A treatment trial tests new therapies in your care to see if they are safe and effective. A registry is an observational study, collecting information about health over time helping researchers understand larger trends.
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Blazing-fast image creation – using just your voice. Try Grok Imagine.
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MPN researcher and PV patient Tyler Parsons, PhD, applies his unique, dual perspective to the forthcoming MPN PROGRESSion Registry. Tyler's dual role on the Steering Committee and Patient Engagement Advisory Council (PEAC), ensures the patient voice remains central to research.
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Cancer researchers are mobilizing the immune system against the CALR mutation in MPNs. 💉 Testing peptide vaccines. 🧬 Engineering mutant CALR-specific CAR T cells. 🧪 Developing bispecific antibodies. #CALRmutation #MPNresearch #Immunotherapy #RareCancer #CancerImmunology
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Proud to support this Blood cover study, funded in part by @MPN_RF, uncovering CD24 as a target to restore neutrophil clearance & prevent myelofibrosis. #MPNResearch #BloodCancer
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Don’t miss our upcoming webinar! MPN Pathways: Empowered Voices in Research - Session 5: Patient & Caregiver Voices in Research . 🗓 Thursday, August 14 | 5–6 PM CST . 🔗 Register now: . #MPN #PatientAdvocacy #MPNVoices
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It is “crucial to identify who will benefit from transplant,” says MPNRF-funded expert Dr. Méndez-Ferrer. A new machine learning model might predict which #myelofibrosis patient benefits most from stem cell transplant. Try the new tool:
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August is Make a Will Month — the perfect time to protect what matters most and plan for the future. This year, consider including MPN Research Foundation in your will, trust, or estate plan. Link to: Planning Toolkit |
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The August edition of ‘“Under the Microscope’” hit your inboxes at 5PM CT today! .Join our community today to receive these stories and so much more with this link:
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🎲 In the game of cellular health, some people start a few steps closer to cancer. MPNRF’s 2020 Pilot Grant helped fund Zhao et al., which found rare inherited mutations in CTR9 increased risk for MPNs ~10x. #MPN #cancerresearch #hematology .#MPN DiseaseProgression
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Thousands of employers match charitable donations made by their employees, but most people never take advantage of it. It only takes a minute to see if your employer matches - check today: . . #EmployerMatch #DoubleYourDonation #MPNResearch
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Don’t miss MPN Pathways: Empowered Voices in Research webinar - Patient & Caregiver Voices in Research. 🗓 Thursday, August 14 | 5–6 PM CST . Explore how patients & caregivers can partner with researchers to influence meaningful change. 🔗 Register now:
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Ned’s journey led him from uncertainty to clinical trial he found through the MPNRF Clinical Trial Finder. Read Ned's story: . Search trials: #MPNResearch #ClinicalTrials #MPNPatientVoices #FindYourTrial #Myelofibrosis #ET
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🧬 Essential thrombocythemia (ET) isn’t one-size-fits-all. Genetic mutations like JAK2, CALR & MPL impact platelet levels, clot risk & treatment. Genetic testing = better care decisions. Know your mutation, know your path. #MPNAwareness #GeneticTesting #ET
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🏆 Big moment for MPNs: PV research took the plenary stage at #ASCO2025. Dr. Andrew Kuykendall presented VERIFY trial results on rusfertide: . ✓ 62% maintained Hct <45% .✓ Better symptom control .✓ Fewer skin malignancies . #MPNs #PVawareness #Rusfertide #VERIFYtrial
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Patients and caregivers play a critical role in shaping the future of MPN research. Join us for an empowering session exploring how your voice can influence every stage of research & drug development. Register now:
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Dr. Gabriela Hobbs, MD repurposes clinical trials that better serve patients. Learn how she’s turning every tissue sample into progress. 📖 Read the Spotlight: . #MPNs #PatientCenteredCare #Hematology #IIT #TranslationalResearch @MPNResearch
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The Leukemia & Lymphoma Society (LLS) & MPN Research Foundation unite to provide clinical trial nurse navigation support. Get support today: #MPNs #ClinicalTrials #Hematology #Oncology #PatientSupport #MPNRF #LLS
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📣 MPN Pathways: Empowered Voices in Research Webinar .Session 5: Patient and Caregiver Voices in Research . 🗓 Aug 14 | 5–6 PM CST . Featuring Patty Spears, BS, FASCO – leading cancer research advocate. 🔗 Register: . #MPN #PatientAdvocacy #MPNVoices
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MPNs are dynamic — new symptoms, changing blood counts, spleen enlargement. Even subtle shifts may raise the risk of disease progression, which looks different from patient to patient. Symptom tracking matters. #MPNs #RealWorldEvidence #Myelofibrosis #PV #ET @MPNResearch
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