Marie-Claire Seeley
@mcseeley
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Clinical Nurse, PhD, CEO of The Australian POTS Foundation, advocate for those with POTS and LongCOVID
Adelaide, South Australia
Joined August 2011
Massive congratulations to Dr @mcseeley on award of the 2025 @thecsanz @CSANZCNC Cardiovascular Nursing Prize. For research on POTS registry. Congratulations on such impactful work - kudos! ❤️ #csanz2025.
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New 🇦🇺 data from our POTS registry: teens & adults experience POTS differently. - Teens: worse orthostatic symptoms.- Adults: more gut & bladder issues.Both report = poor QoL. Proud to author this work. 👉 @ADARC_UoA @DH_Lau @sahmriAU @AustralianPots.
onlinelibrary.wiley.com
Click on the article title to read more.
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RT @AustralianPots: 🚨 New research supported by @AustralianPots published @EurJCardNurs: Women with #POTS report worse autonomic symptoms t….
academic.oup.com
AbstractAims. This prospective, cross-sectional study aimed to identify sex-based differences in diagnostic and symptom experiences in postural orthostatic
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Proud to share our latest work showing that women with POTS experience worse autonomic symptoms and longer diagnostic delays — despite similar anxiety and health-seeking behaviour as men. Time to address the clinician-side of the equation. See post 👇.#POTS #WomensHealth.
🚨 New research supported by @AustralianPots published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use. Yet face longer diagnostic delays. Led by @mcseeley @CelineGallaghe2 @DH_Lau .🔗
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RT @SciReports: Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome a….
nature.com
Scientific Reports - Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction
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New from @Stanford_Neuro Among 491 individuals with no prior history of #autonomic disorders:.🔹 44% developed an autonomic disorder after COVID-19.🔹 75% of these had new onset POTS.
link.springer.com
Clinical Autonomic Research - Autonomic dysfunction is a common and often debilitating feature of long-COVID (LC), however, studies evaluating frequency and severity of chronic autonomic...
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RT @dysclinic: While working on a new paper, I've been re-reading old papers on #POTS: one is from Dr. Low et al of Mayo Clinic who was one….
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RT @HarrySpoelstra: Cardiovascular outcomes in long COVID-19: a systematic review and meta-analysis. 🔥Meta-analysis including nearly 10 mil….
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RT @HarrySpoelstra: Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndro….
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RT @ejustin46: REVEALING the BRAIN'S HIDDEN STRUGGLE after SARS-COV-2 INFECTION : . POTS (postural orthostatic tachycardia syndrome) Patie….
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Thrilled to share our published study on cerebral hypoperfusion in #POTS! Findings highlight key implications for clinical management and future research into autonomic disorders. Read more: @sahmriAU @CelineGallaghe2 @DH_Lau @ADARC_UoA #Dysautonomia.
Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction. 🔥Elegant and interesting Australian study on POTS/Cognitive dysfunction(56 patients). #LC. ➡️Moderate to severe autonomic
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An early Christmas present to all those with #POTS in Australia! @AustralianPots.
Big news! 🇦🇺 officially confirms a unique ICD code for #POTS – a huge win for recognition & health policy reform. 🙏to @mcseeley & @celinegallagher for tireless advocacy & @Dysautonomia & Dr Jeff Boris for paving the way in the US. #POTS #Dysautonomia.
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Love this from @CrabbBrendan @MJLScoullar “increased awareness of the biomedical basis of #longCOVID should prompt clinicians to take patients more seriously.”
insightplus.mja.com.au
Around 5–10% of people with COVID infections go on to experience long COVID, with symptoms lasting three months or more. Researchers have proposed several biological mechanisms to explain long COVID....
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Excited to present the Australian POTS Registry data at #ACTA2024! Highlighting the burden of disability & QoL impacts for those with #POTS . 🙏 for the support of @SAHMRI_Heart @AustralianPots @ADARC_UoA @UniofAdelaide @SACVRN . Let’s drive change!
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I was thrilled to receive a Trainee Award for our work on cerebral hypoperfusion in POTS at #AAS2024 Honored to highlight the connection between autonomic dysfunction and brain blood flow in #POTS @ADARC_UoA @DH_Lau @CelineGallaghe2 @sahmriAU @SACVRN.
Marie Claire-Seeley won an AAS trainee poster award! 🎉
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All PhD applicants and #POTS researchers in Australia. Applications for the 2025 @AustralianPots research grant and scholarship call close on the 20th December.
📢 Applications are open for our 2025 Research Grant and PhD Top-Up Scholarship, supporting innovative research to improve the lives of people with POTS in Australia. 💡.🗓️ Applications close: 20th December 2024. Learn more: @ADARC_UoA @SACVRN @sahmriAU.
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That’s a wrap for #AAS2024! Thrilled to have received the trainee poster prize for our work on cerebral hypoperfusion in #POTS. Grateful for the recognition and the research shared this year! @ADARC_UoA @AASAutonomic @sahmriAU @RBRCUniSA
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RT @AustralianPots: #POTS might be underdiagnosed if doctors don’t test standing response long enough. @TeamSRRaj research shows 5 minutes….
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Looking forward to presenting at the 35th International Symposium on the Autonomic Nervous System #AAS2024 in Santa Barbara! Cerebral hypoperfusion is a major issue in #POTS—targeted research & funding are essential to uncover its causes. Let’s drive progress! @ADARC_UoA @AusPOTS
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