Australian POTS Foundation
@AustralianPots
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Australian POTS Foundation│Non Profit Organisation. We strive to make a brighter future for those with postural orhtostatic tachycardia syndrome.
📍Adelaide, South Australia
Joined May 2022
RT @mcseeley: New 🇦🇺 data from our POTS registry: teens & adults experience POTS differently. - Teens: worse orthostatic symptoms.- Adults:….
onlinelibrary.wiley.com
Click on the article title to read more.
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🚨 New research supported by @AustralianPots published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use. Yet face longer diagnostic delays. Led by @mcseeley @CelineGallaghe2 @DH_Lau .🔗
academic.oup.com
AbstractAims. This prospective, cross-sectional study aimed to identify sex-based differences in diagnostic and symptom experiences in postural orthostatic
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📣 The APF was proud to advocate at Parliament House today with @MissingSchoolAU, championing kids with chronic illness who are missing from school. 🙏 @MeganGilmour & the team for driving this conversation! @mcseeley @CelineGallaghe2 .
instagram.com
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RT @SciReports: Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome a….
nature.com
Scientific Reports - Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction
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More research from @Stanford_Neuro showing the burden of #POTS and #autonomic disorders after #COVID.
New from @Stanford_Neuro Among 491 individuals with no prior history of #autonomic disorders:.🔹 44% developed an autonomic disorder after COVID-19.🔹 75% of these had new onset POTS.
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📢 New Australian research on #POTS! 🇦🇺.Adelaide researchers have shown cerebral hypoperfusion in POTS is common. These findings have major implications for clinical care and future research. Read more: @CelineGallaghe2 @DH_Lau @ADARC_UoA @mcseeley.
Thrilled to share our published study on cerebral hypoperfusion in #POTS! Findings highlight key implications for clinical management and future research into autonomic disorders. Read more: @sahmriAU @CelineGallaghe2 @DH_Lau @ADARC_UoA #Dysautonomia.
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Big news! 🇦🇺 officially confirms a unique ICD code for #POTS – a huge win for recognition & health policy reform. 🙏to @mcseeley & @celinegallagher for tireless advocacy & @Dysautonomia & Dr Jeff Boris for paving the way in the US. #POTS #Dysautonomia.
instagram.com
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🧠 Those living with #POTS & hypermobility (#EDS) may also face craniocervical instability (#CCI). Evaluation like halo traction could be key for targeted treatment. Learn more from this Australian research: .@drprashanthrao.
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Registries like the Australian POTS Registry are vital to understanding the impact of #POTS and driving change. Funding is needed to expand this to a national platform. Let’s make it happen! @Mark_Butler_MP @healthgovau.
Excited to present the Australian POTS Registry data at #ACTA2024! Highlighting the burden of disability & QoL impacts for those with #POTS . 🙏 for the support of @SAHMRI_Heart @AustralianPots @ADARC_UoA @UniofAdelaide @SACVRN . Let’s drive change!
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Exciting new research from @TeamSRRaj shows that commercially available compression wear significantly improves symptoms and reduces heart rate in #POTS. A simple, accessible solution for better everyday management! #POTS #Dysautonomia #longCOVID.
Exciting research led by Dr. Kate Bourne on the ability of commercially available compression garments to reduce heart rate and improve symptoms in patients with POTS in a community setting now published in JACC!
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📢 Applications are open for our 2025 Research Grant and PhD Top-Up Scholarship, supporting innovative research to improve the lives of people with POTS in Australia. 💡.🗓️ Applications close: 20th December 2024. Learn more: @ADARC_UoA @SACVRN @sahmriAU.
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#POTS might be underdiagnosed if doctors don’t test standing response long enough. @TeamSRRaj research shows 5 minutes may not be sufficient. @AASAutonomic.
Raj Lab trainee Jaiden Uppal presenting on whether 5 mins is enough to diagnose POTS at the annual AAS meeting! #AAS2024 @AASAutonomic @LibinInstitute @UCalgary @UCalgaryMed @satish_r_raj
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RT @mcseeley: 1 week until our group of #POTS clinicians and friends walk 30km to raise money for @AustralianPots to support POTS research….
gofundme.com
Do you want to join us in making a difference? On the 26th October clinicians, rese… Marie-Claire Seeley needs your support for Walking Because 'POTS' Matters
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RT @mcseeley: 58% of POTS pts leave their jobs due to their diagnosis yet, there has never been any funding allocated in Australia for comm….
gofundme.com
Do you want to join us in making a difference? On the 26th October clinicians, rese… Marie-Claire Seeley needs your support for Walking Because 'POTS' Matters
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People with #POTS and #LongCovid often report an initial misdiagnosis of Functional Neurological Disorder. This paper offers a clear explanation of the differences between the two disorders.
As a neurologist who sees #Dysautonomia and #LongCovid patients, but also some functional neurologic disorders #FND patients, I can make a clear distinction between the diagnoses based on history and physical exam findings. We summarized these clinical distinctions in Table 2 in
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RT @mcseeley: I love to walk. So on October 26th I'm going to walk 30km from the Adelaide Hills to the city to raise funds for POTS resear….
gofundme.com
Do you want to join us in making a difference? On the 26th October clinicians, rese… Marie-Claire Seeley needs your support for Walking Because 'POTS' Matters
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This podcast lays bare the reality and struggles many clinicians with #POTS face while helping others navigate chronic illness. 🙏 to Caelum and all those who chose to care for our community
instagram.com
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RT @mcseeley: Thanks to @aishamae for bringing attention to the long diagnostic delay experienced by women with #POTS in Australia. A tim….
smh.com.au
Health experts want greater education about a debilitating syndrome which leaves patients, particularly women, facing a fight getting recognition and diagnosis.
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There is a difference between FND and #LongCovid This article clearly lays out the research and clinical perspectives on these disorders. #POTS #longCOVID.
🚨New work refuting that Long Covid is FND from clinical and research perspectives by an international and multidisciplinary team.🚨. It’s part of a special issue of the Journal of Personalized Medicine on “New Challenges and Perspectives in Neurology and Autonomic Disorders.” 🤔
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