Mark Gately
@kramyletag
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Passionate Voluntary Worker and Charity Fundraiser, husband and father to Mrs G and Baby G.
Suffolk (County)
Joined October 2014
We welcome the announcement of the plan to cut NHS waiting lists so millions can get faster diagnosis and treatment. https://t.co/dfDGrypUth However, people with symptoms of #MND will need rapid access to specialist services.
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This year, please support the North West Kent Branch and join #TeamMND. There are lots of ways you can get involved and every penny you raise will make a difference. Find out how you can get involved
fundraising.mndassociation.org
The MND Association focuses on improving access to care, research and campaigning for those living with or affected by MND in England, Wales and Northern Ireland.
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https://t.co/nrE92RUw7n Can I ask your help by signing this petition so people with SOD1 MND can get an essential drug from the NHS.
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Today I'd #mnd awareness day and the Kent Branches are holding a joint event in Canterbury with some notable guest speakers
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❗️Just 4 weeks to go until our MND Warrior Alex Gibson takes on a 24 hour swim challenge 🏊♂️ We warmly welcome and volunteers who would like to swim in support! For more info email 👉🏼👉🏼 info@challengingmnd.org #swim #mnd #24hours #challenge
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Today is #CarersRightsDay With an estimate of around 7.2 million people in the UK having Chronic Kidney Disease stages 1-5 🥲 Say these patients have between 1/2 family carers You do the maths ! Kidney patient Carers deserve a huge TY 🙏 in fact they deserve a 🏅 #CarersRightsDay
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We're hiring! Are you interested in a PhD in #ALS #MND data science? @AlfredoIacoange and I have a funded project waiting for the right person! Modelling virtual populations to make our clinical trials faster, better and more patient-friendly Details: https://t.co/ITmWVsVBUH
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Today is #CarersRightsDay. Carer’s assessments are a right & can be the first step to vital support. Read our latest report on the state of carer's assessments as part of the #SupportMNDCarers campaign: https://t.co/asuyAj0HDJ
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Carer’s assessments are a 𝐫𝐢𝐠𝐡𝐭. An assessment can be the first step to vital support. Click below to read our @mndcampaigns team's latest report on the state of carer's assessments as part of our #SupportMNDCarers campaign. 📑 #CarersRightsDay
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The @Ofgem #PriceCap rising by 5% to £1,928 will come as a huge disappointment to the #MND community, especially as the #AutumnStatement did little to improve support. The energy crisis is not over. We’re calling for an Energy Social Tariff to stop bills going #ThroughTheRoof.
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Today is Carers Rights Day. If you're an unpaid carer, you have rights. They can help you access services, look after your wellbeing and provide info about looking after the person you support. The MND Association can help. Visit our Carers hub below. 🤝 #CarersRightsDay #MND
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Great to see @SteveBarclay @DHSCmedia @NIHRresearch supporting/recognising vital work of @UKMNDRI
https://t.co/y9cFMiwIvL Institute's COORDINATED plan to accelerate arrival of #MND treatments well underway, but even more focus needed from @SciTechgovuk @The_MRC @GeorgeFreemanMP
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It is only a couple of weeks until the next APPG on MND meeting. I have asked @louie_french Vice Chair APPG on MND @GarethJohnsonMP @DavidEvennettMP @AdamHollowayMP @abenaopp to attend the meeting and find out about #throughtheroof from @mndcampaigns #MND
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Wondering if anyone has battery issue with ipace was told potential issue within 28 days of software update. 4 weeks for telephone consultation with @Group1LandRover if a battery problem could be 4-6 weeks for parts. Thanks for honesty 20k on clock #ipace #stranded @gilescoren
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We're offering a Cost of Living Support Fund up to the value of £350, for those living with motor neurone disease. This is to help people who may currently be struggling with household bills or food shopping costs. Visit https://t.co/kckWqRLgrP to apply. We're here for you.
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⚡️Labour MP speaks about the #ULEZ tax: “Telling people to buy a new vehicle, forcing them to give up their jobs, potentially isolating elderly and vulnerable people who rely on family visits is beyond the pale.” https://t.co/OgWE3B6pmW Do #Bexley’s Labour Cllrs & members agree?
romfordrecorder.co.uk
Labour MP Jon Cruddas has reiterated his opposition to the Ultra Low Emission Zone (ULEZ) expansion in London, describing it as “beyond the…
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❗️Important date for the diary ❗️Our Afternoon Tea and Shopping Event has been rescheduled to the 17th of November. For tickets and more information 👉🏼👉🏼 https://t.co/eK1z5ToMfB
#afternoontea #shopping #fundraiser #mnd
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In response @MNDA said they are doing what they can “to press for the final set of data” https://t.co/GmAhnVFkXE We hope the urgency is communicated as assertively as possible &, scientific considerations aside, any structural/commercial barriers are explained & removed. 2/3
mndassociation.org
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Having tried for 6+ months, politely & assertively, to push @mndassoc as member/funder (n.b. funds donated by #MND community) of #Mirocals to influence involved scientists to expedite publication of paper, last week @united2endmnd issued an open letter https://t.co/6lm2zqSLVo 1/3
united2endmnd.org
Important Statement from Patients United 2 End MND Emma Moss, wife and mother with her daughter Veryan ”Proleukin will give me more time to be her Mother. More time to guide, nurture and love…
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Sam, living with MND, lives with his husband James, their 5-year-old son and their sausage dog, Ralph. It’s important to Sam to be independent for as long as he can as the disease progresses. For people with #MND and their carers, home adaptations are vital. 🏡 #ActToAdapt
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