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@kitty_is_odd

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Co-founder of charity organisation ALK+ International @ALKpositiveINT #TogetherWeCan further ALK+ cancer research

UK
Joined August 2011
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@kitty_is_odd
Cat
1 year
How long did your biomarkers take to come back?
@ALKpositiveINT
ALK+ International
1 year
@ALKpositiveINT surveyed of 130 ALK+ cancer patients from all over Europe. Today's post looks at the results of waiting times around biomarker testing. How long did you have to wait? Join the conversation below 👇 Donate here: https://t.co/lU8iN6W23x
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@ALKpositiveINT
ALK+ International
1 year
In '22, @ALKpositiveINT surveyed 130 ALK+ cancer patients from all over Europe. 69.5% of people said they would enter into a clinical trial upon progression, even if they still had further lines of treatment available to them. What would you do?
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@kitty_is_odd
Cat
1 year
#TogetherWeCan further ALK+ Research Glad to welcome a new team member 💙🩵🩷
@ALKpositiveINT
ALK+ International
1 year
ALK+ International proudly announces our new trustee Caroline.  Check out our website for info: https://t.co/Z7bZp4eNQs #TogetherWeCan further ALK+ cancer research  #ALKInternational #ALKAwareness #ResearchSavesLives #ALKPositiveResearch #ALKCancer #MoreResearchMoreLife
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@cv_cev
Clinically Vulnerable Families 💙💜💗
1 year
💥Covid Inquiry IPC Experts agree that CV people should have been/be allowed to enter healthcare with a high-grade mask. Also, they need to make the environment safe for CV people.💥
@cv_cev
Clinically Vulnerable Families 💙💜💗
1 year
🚨CV MASKING🚨 It [is] important to allow [CV people] to wear better quality masks if visiting a healthcare setting when potentially there is a high-risk of Covid transmitting to them? S: Yes, it is reasonable[.] W: I would add, safer ways [.] entry through [.] other measures
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@kitty_is_odd
Cat
2 years
https://t.co/tlpCXMR2hM Everyone deserves a chance. Winnie deserved a chance. Please sign this petition to make Lorlatinib available in NZ. #TogetherWeCan #Lorlatanib #ALKCancer
Tweet card summary image
change.org
Urge Pharmac to Fund Lorlatinib for NSCL ALK & ROS1 Positive Patients
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@ALKpositiveINT
ALK+ International
2 years
Julia will be running this year's London marathon & then a week later, the Boston marathon! Despite having a broken arm she is determined to support her good friend Mike, through his ALK+ cancer journey. @ALKpositiveINT is proud to be represented in this year's marathons and..
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@kitty_is_odd
Cat
2 years
An easy way to donate to ALK+ research is through @easyuk #TogetherWeCan further ALK+ Research
@ALKpositiveINT
ALK+ International
2 years
Help us to win £500 this week! Sign up to easyfundraising via our link. Not only will you enter us into the prize draw, but it’s a fantastic, free, and easy way to support us. Easyfundraising will turn your online shopping at over 8k brands into free donations.
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@ALKpositiveINT
ALK+ International
2 years
The 4th February 2024, marks World Cancer Day - World Cancer Day means so much to us as a charity, not only for the fundamental value it holds but also, as our charities official launch date 2 years ago.
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@ALKpositiveINT
ALK+ International
2 years
You can help @ALKpositiveINT WIN from a £1,000 prize fund in the #easyfundraising refer to win giveaway. We get FREE entry each time a new supporter signs up before the 31st January! It's completely free, so please get involved if you haven't already - https://t.co/tyT1CY6lPy
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@kitty_is_odd
Cat
2 years
Closing LCAM 2023- thanks to everyone that came together to further ALK+ cancer research ❤️#TogetherWeCan
@ALKpositiveINT
ALK+ International
2 years
As we come to the end of #LCAM we would like to thank each and everyone one of you, for your generosity, your support, and your friendship. Without you there is no hope, it is our togetherness that makes us a team.
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@ALKpositiveINT
ALK+ International
2 years
On @GivingTuesday, the whole world comes together to give back in many different ways: through acts of kindness, gifts of voice, time, talent, or treasure. Support @ALKpositiveINT and be part of a community of change to fund research into rare ALK+ cancers.  #TogetherWeCan
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@kitty_is_odd
Cat
2 years
Coffee morning including a few stalls selling hats and books, plus a load of great raffle prizes - if you're in the area pop in and see us ❤️ it's for a great cause. #hextable #coffeemorning #TogetherWeCan further ALK+ cancer research
@ALKpositiveINT
ALK+ International
2 years
In the Kent area tomorrow(25.11.23)?come& say hello to @ALKpositiveINT trustees @robot_hands and @kitty_is_odd @ Hextable Heritage Centre 10-12 #TogetherWeCan #MoreResearchMoreLife #LCAM #LungCancerAwarenessMonth #ALKCancerResearch #hextable #fundresearch #coffeemorning
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@kitty_is_odd
Cat
2 years
Couldn't agree more.
@c_vakka
Chetan Vakkalagadda, MD
2 years
Thank you Dr. Liu for highlighting our work! Unexpected resistance mutations can develop in patients with lung cancer on targeted therapies, making it important we do molecular testing at progression. #lcsm @JPatelMD @NUHemOncFellow @OHSUKnight
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@LungPolicy
Lung Cancer Policy Network
2 years
November marks #LungCancerAwarenessMonth. We want to see a world where #LungCancer is eliminated as a cause of death. In this video, our members emphasise why #LungCancer should be seen as a policy priority globally and why collaboration is key. #LCSM
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@ALKpositiveINT
ALK+ International
2 years
Becca wants to continue to live. Support research here and together we can further ALK+ cancer research. https://t.co/SwMBkAPGPk #TogetherWeCan #MoreResearchMoreLife #StrongerTogether #ResearchSavesLives #LCAM #LungCancerAwarenessMonth #ALKCancerResearch
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@kitty_is_odd
Cat
2 years
So proud to be part of this amazing initiative 💙🩵🩷
@ALKpositiveINT
ALK+ International
2 years
We’re excited to announce our 1st grant to @ICR_London. The ~£50k award will help build a tissue bank to support @HuangLabICR & @DrSanjayPopat @royalmarsden's study of resistance in ALK & EGFR #lungcancer. Thanks to all donors! Supporting #research is why we exist. #LCAM #LCSM
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@kitty_is_odd
Cat
2 years
Hayley speaks from the heart ❤️
@ALKpositiveINT
ALK+ International
2 years
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@kitty_is_odd
Cat
2 years
This woman is an inspiration ❤️
@ALKpositiveINT
ALK+ International
2 years
When Pui, from Thailand & living in France, was told she had a mass in her lung at age 34, the last thing she expected was #lungcancer. Five years on she talks about her treatment lines & how living in the present helps her cope w ALK lung cancer. 📖 https://t.co/g6zLrLUglb #LCSM
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@Yvonne_Diaz_
Yvonne Diaz
2 years
Such an honour to receive the @IASLC Patient Advocate Award at #WCLC23 along w/ @LAGurwitch, Graham Hall, Miryana Vela and Aditya Manna. Thanks @JFreemanDaily @ShaniShilo @HwakeleeMD & @karenkellymd & all at IASLC for this opportunity. Together we can improve the landscape #LCSM
@ChristianRolfo
Christian Rolfo
2 years
One of the most important @IASLC Award is the Patient Advocate Award. Thanks for all you’re doing for patients, families and all the care team! @ShaniShilo congrats to the awardees! @LAGurwitch @daunrespiro @JFreemanDaily @karenkellymd @HwakeleeMD #WCLC23
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