
Janet Freeman-Daily
@JFreemanDaily
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Writer, speaker, science geek, cancer research advocate and activist. Living with ROS1+ lung cancer since 2011. Cofounder @ros1cancer, @IASLC STARS. #LCSM
Seattle area
Joined June 2009
RT @oncologytube: šŗBREAKING VIDEO Overview:.šØFDA Approves TALETRECTINIB .š«NSCLC ROS1+.š TRUST-I Trial: 90% ORR .š72% DOR ā„12mo naive!ā²ļø. š°ā¦.
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RT @StephenVLiu: FDA approves taletrectinib for #ROS1 NSCLC based on TRUST I and TRUST II trials showing 1L RR 85-90% with 63-72% of responā¦.
fda.gov
On June 11, 2025, the Food and Drug Administration approved taletrectinib (Ibtrozi, Nuvation Bio Inc.).
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RT @matthewherper: The entire STAT staff is updating this story about layoffs at HHS. There will be a lot of info. But the short version iā¦.
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RT @jillfeldman4: My approach to treatment is: Iām not looking to throw a Hail Mary touchdown ā the odds arenāt in my favor. I need to keepā¦.
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A thoughtful perspective on importance of government-supported research infrastructure. It's not perfect, and could use reform. But you can't reform something that disappeared due to lack of funding for labs, support staff, equipment and office space.
nytimes.com
The Trump administration hobbles research and endangers the public health.
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On this #WorldCancerDay, take steps to amp up your lung cancer patient advocacy! Applications are now open for the 2025 IASLC STARS PRA & Scholar Programs. STARS can help you develop and enhance research advocacy skills.
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DEI is not the same as diversity in clinical trials. Diversity in clinical trials aims to test new drugs in a wide variety of people, because response to some medicines can vary by gender, age, ethnicity, and genetics.
statnews.com
Following the Trump administration's DEI ban, the FDA's move to scrub webpages has ensnared many pages focused on ensuring diversity in drug trials.
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RT @annewoj23: As we embark on Thanksgiving week I want to take a moment to reflect on this year and my family. Unfortunately I lost my sā¦.
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RT @annewoj23: When Susan was diagnosed with lung cancer we quickly learned we had many unanswered questions. We launched the @23andme Luā¦.
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RT @pompili_cecilia: The physicianās duty is not to stave off death or return patients to their old lives, but to take into our arms a patiā¦.
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RT @DRCamidge: Trying to surf the wave a little: For those up for a redux on all past ā¦@OncLiveā© How This is Building Me podcasts on the pā¦.
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RT @StephenVLiu: A treat to hear about novel therapeutic frontiers in fusion positive NSCLC from Dr. Alice Shaw at #CFS24. Profound efficacā¦.
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I woke up this morning inspired to write. Here's what popped into my head. #LCSM #lungcancer.
grayconnections.net
Iāve been living with and communicating about lung cancer for over 13 years. Since 2011 (the year I was diagnosed) Iāve been active in one or more online lung cancer patient groups. Sinā¦
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RT @tmprowell: NEW š£Final FDA Guidance on decentralized #clinicaltrials is out! Covers local labs, imaging, procedures; local healthcare prā¦.
fda.gov
Decentralized Clinical Trials for Drugs, Biological Products, and Devices
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Looking forward to learning more during next 3 days about informatics used in cancer research. Our patient panel will discuss connecting advocates to researchers. #ITCR2024 #NCIITCR @NCIDataSci
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Join me at #ILCSC24 Sept 20-21 to learn how #science is helping people live longer! The International Lung Cancer Survivorship Conference (a free virtual event with speakers from around the world) is open to all the #lungcancer community. Register at #lcsm.
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RT @IASLC: As part of the #IASLC50 celebration, we look at the past, present & future. In this episode, host @StephenVLiu focuses on the IAā¦.
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Still time to register for the STARS Webinar on "Advancing Trustworthy Artificial Intelligence for Cancer Research." Hope you'll join us tomorrow, Thursday, August 29 at 3 pm MDT (Denver time). Once you register, you'll receive the Zoom link via email.
iaslc.org
The IASLC STARS (Supportive Training for Advocates on Research and Science) Program is thrilled to present a webinar on the integration of artificial intelligen ...
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