Anna Jansen
@jansen_ac
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Joined March 2019
Happy #WorldBrainDay2024 Let’s join forces & champion #BrainHealthandPrevention Advocate for prevention & healthy behaviours across the lifespan from prenatal, children, young people to later life. Improving lives of patients & carers @wfneurology @jansen_ac @sameermzuberi
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Because of #brainawarenessweek2024, we are thrilled to share that the 3rd edition of #BrainMosaic24 is set to take place in Leuven on the 10-11 October 2024. 📅 More info here: https://t.co/qcxX9lMKcK See you there? #neurodevelopment #neurodegeneration #computationalanalysis
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However, the panelists also recognised that whilst our community is very powerful and proactive in its advocacy, we need to draw the line between which services fall to us and which we should be provided.
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At the start of the INSAR meeting in Melbourne Australia today, INSAR’s president Petrus de Vries highlights the need for autism research to become more diverse, equitable ánd global. Must read 👇 #insar #autismresearch #lmic #mhgap
thetransmitter.org
Hosting the International Society for Autism Research annual meeting—which starts tomorrow—in Australia takes a step in that direction, making it easier for researchers, clinicians and advocates from…
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I’m attending the 12th European Conference on Rare Diseases and Orphan Products to discuss the TAND Toolkit! #ECRD2024 is the largest, patient-led, rare disease policy-shaping event held in Europe. Join the discussion! #careforrare @TANDconsortium
https://t.co/ZjycjQd6f7
invt.io
Register now!
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To all who live with TSC @TANDconsortium advocating for TSC at #ICNC2024 last week #worldtscday #15may #TSmatters @ETSCAssociation @tscalliance @TSCInternation1
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European Paediatric Neuroradiology Congress 13-16 Nov 2024 Budapest, Hungary. Organized by @ESNRad & @ESPRSociety 1 day fetal imaging course 2.5 days of educational sessions on hot topics, as well as opportunities for scientific paper presentations https://t.co/CyoETqbOaZ
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🗓️Friday 24 MAY 2024 2-5PM 📍Universiteit Antwerpen Join us for an informal get together on brain development research with a focus on brain malformations. Abstracts welcome! Submissions via Jessica.Rosenblum@uantwerpen.be #exchange #connect #inspire
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@WHO_Europe @WHO Intersectoral Global Action Plan on Epilepsy & other Neurological Disorders #IGAP EPNS vision #childneurology voice heard https://t.co/izQDKBbjsS
@EU_Brain @EANeurology @IlaeWeb @EpiCARE_ERN @ERN_RND @euro_nmd @icnapedia @jansen_ac @ESNRad @OneNeurology_
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Excited to share this labour of love, now out in @Brain1878: 'The clinical and genetic spectrum of GPI anchor deficiency disorders'. 🔗 https://t.co/lre4pd5dnJ Thank you @StephanieEfthy1 @IonSynapse and many, many others for this incredible collaboration!
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📅 17 MAY 2024 BSPN Spring Meeting Join us for an exciting day on the management of developmental and epileptic encephalopathies @UZAnieuws @SWeckhuysen @FiladelfiaGene1 @HannahStamberg1 Program & Registration 👇 https://t.co/E3Ro3Xk7Ho
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Colleague recently had 2 papers accepted in Human Mutation @Hindawi which remain untraceable in @PubMedOnline despite having a DOI. Publishers need to ensure science is and remains findable and accessible. https://t.co/lrjB48WONE
nature.com
Nature - An analysis of DOIs suggests that digital preservation is not keeping up with burgeoning scholarly knowledge.
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Super powerful testimony of @timbuckinx at @EU_Brain ‘Towards a Rare Brain Disease Ecosystem’ Rare Diseases come with an emotional and financial impact and risk for isolation for the individuals living with rare diseases as well as their families #RareDiseaseAwareness
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Connected to those living with or caring for someone with a rare disease #RareDiseaseDay #shareyourcolours #deeljekleuren #shareforrare #StrongerTogether
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On my way to @EU_Brain to raise awareness on rare diseases #RareDiseaseDay2024 #shareyourcolours #shareforrare #StrongerTogether @EPNSnews
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NEW! Our educational review on MCD is now online Diagnostic work‐up in malformations of cortical development - Rijckmans - Developmental Medicine & Child Neurology - Wiley Online Library https://t.co/cQuT6sD9u4
#brainmalformations #education #review
onlinelibrary.wiley.com
Malformations of cortical development (MCDs) represent a heterogeneous spectrum of disorders, characterized by abnormal development of the cerebral cortex. Many MCDs are of genetic origin, although...
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EPNS Membership- Make a difference! https://t.co/mkYoaOAIVs New members welcome! Share with your colleagues! @EU_Brain
@EANeurology
@ERN_RND
@EpiCARE_ERN
@euro_nmd
@mackeithpress
@senep_es
@rajeshramnair
@EACDtweet
@ERNIthaca
#paediatricneurology #Neurology #childneurology
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The RDRUK mTOR Pathway Diseases Node is holding a 1-day symposium, jointly with the MRC Centre for Neurodevelopmental Disorders (NDDs) on 'Tackling challenges in rare NDDs: an integrated perspective’ on 23rd April 2024! Information and registration ⬇️ https://t.co/cxQRFQvPQT
eventbrite.co.uk
Tackling challenges in rare neurodevelopmental disorders: an integrated perspective
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