RT @EPNSnews: Happy #WorldBrainDay2024 .Let’s join forces & champion #BrainHealthandPrevention.Advocate for prevention & healthy behaviou….

Getting ready for the @EPNSnews @EACD2024 session on Creative Intervention in Paediatric Neurology with Philip Pearl, Christophe Mattys and Angels Garcia Cazorla

RT @VIBConferences: Because of #brainawarenessweek2024, we are thrilled to share that the 3rd edition of #BrainMosaic24 is set to take pla….

RT @eurordis: However, the panelists also recognised that whilst our community is very powerful and proactive in its advocacy, we need to d….

At the start of the INSAR meeting in Melbourne Australia today, INSAR’s president Petrus de Vries highlights the need for autism research to become more diverse, equitable ánd global. Must read 👇. #insar #autismresearch #lmic #mhgap

I’m attending the 12th European Conference on Rare Diseases and Orphan Products to discuss the TAND Toolkit! #ECRD2024 is the largest, patient-led, rare disease policy-shaping event held in Europe. Join the discussion! .#careforrare @TANDconsortium .

To all who live with TSC . ⁦@TANDconsortium⁩ advocating for TSC at #ICNC2024 last week. #worldtscday #15may #TSmatters ⁦@ETSCAssociation⁩ ⁦@tscalliance⁩ ⁦@TSCInternation1⁩

RT @EPNSnews: European Paediatric Neuroradiology Congress.13-16 Nov 2024 Budapest, Hungary. Organized by @ESNRad & @ESPRSociety.1 day fet….

🗓️Friday 24 MAY 2024 2-5PM.📍Universiteit Antwerpen . Join us for an informal get together on brain development research with a focus on brain malformations. Abstracts welcome! Submissions via Jessica.Rosenblum@uantwerpen.be. #exchange #connect #inspire

RT @EPNSnews: @WHO_Europe @WHO Intersectoral Global Action Plan on Epilepsy & other Neurological Disorders #IGAP.EPNS vision #childneurolog….

RT @drmankad: Excited to share this labour of love, now out in @Brain1878: 'The clinical and genetic spectrum of GPI anchor deficiency diso….

📅 17 MAY 2024 BSPN Spring Meeting . Join us for an exciting day on the management of developmental and epileptic encephalopathies @UZAnieuws @SWeckhuysen @FiladelfiaGene1 @HannahStamberg1 . Program & Registration 👇 .

Colleague recently had 2 papers accepted in Human Mutation @Hindawi which remain untraceable in @PubMedOnline despite having a DOI. Publishers need to ensure science is and remains findable and accessible.

Super powerful testimony of @timbuckinx at @EU_Brain ‘Towards a Rare Brain Disease Ecosystem’ .Rare Diseases come with an emotional and financial impact and risk for isolation for the individuals living with rare diseases as well as their families. #RareDiseaseAwareness

Connected to those living with or caring for someone with a rare disease . #RareDiseaseDay #shareyourcolours #deeljekleuren #shareforrare #StrongerTogether

On my way to @EU_Brain to raise awareness on rare diseases . #RareDiseaseDay2024 #shareyourcolours #shareforrare #StrongerTogether @EPNSnews

Getting ready for #RareDiseaseDay2024 . #deeljekleuren #shareyourcolours #StrongerTogether

NEW! Our educational review on MCD is now online . Diagnostic work‐up in malformations of cortical development - Rijckmans - Developmental Medicine & Child Neurology - Wiley Online Library.. #brainmalformations #education #review.

RT @EPNSnews: EPNS Membership- Make a difference! .New members welcome! Share with your colleagues!. @EU_Brain .@E….

RT @RDRUKHub: The RDRUK mTOR Pathway Diseases Node is holding a 1-day symposium, jointly with the MRC Centre for Neurodevelopmental Disorde….