ern euro_nmd
@euro_nmd
Followers
2K
Following
2K
Media
789
Statuses
3K
Building bridges and breaking barriers in rare neuromuscular diseases.
Paris, France
Joined February 2017
🚨#EURONMD is excited to announce a new webinar series on the Management and Treatment of #Myopathies this June/July✨ 📚 This 10-part series will cover key topics on therapeutic and multidisciplinary care in myopathies. Join us👉 https://t.co/NbFPpQF2C7
1
9
33
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology 📚“Non-pharmacological management of myopathies” by Prof. Dr. med. Peter Young (Clinic for Rehabilitation Medical Park Reithofpark, Germany) 📆July 10th, 2025 16:00 CEST 👉Register here: https://t.co/G6ayMs6Tqu
0
3
6
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology 📚“Management of Cardiac Involvement in Myopathies” by Prof. Eloisa Arbustini (Fondazione IRCCS Policlinico San Matteo, Italy) 📆July 3rd, 2025 16:00 CEST 👉Register here: https://t.co/T7nhGCIPn8
0
2
5
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology 📚“Advances in Gene Therapy in Myopathies” by Prof. Francesco Muntoni (University College of London, UK) 📆June 26th, 2025 16:00 CEST 👉Register here: https://t.co/a5orqNip8J
0
3
8
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology 📚“Pain Management in Myopathies” by Dr. Stefanie Glaubitz (Department of Neurology, Universitätsmedizin Göttingen, Germany) 📆June 19th, 2025 16:00 CEST 👉Register here: https://t.co/mOPm2HZY2x
0
3
6
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology 📚“Treatment of idiopathic inflammatory myopathies” by Prof. Marianne de Visser, (Amsterdam University Medical Center, The Netherlands) 📆June 12th, 2025 16:00 CEST 👉Register here: https://t.co/VPVo4Li5JA
5
5
15
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology 📚“Genetic therapies of Neuromuscular Diseases” by Serge Braun, PharmD, PhD (Former @Telethon_France Scientific Director, Member of the french Academy of Pharmacy) 📆June 5th, 2025 16:00 CEST Register here https://t.co/I3yUxJsIJK
0
3
7
🌍Last week, the ERN-EuroBloodNet participated in 2 key events shaping the future of rare disease care across Europe. ✅Were crucial opportunities to share best practices, align on strategic goals, and reinforce collaboration among the European Reference Networks #ERNs
0
2
3
0
1
7
➡️#EURONMD webinar w/@ERN_RND & @EANeurology 📌 #FSHD webinar series – ep 4⃣ Final episode! 📚“Clinical Trial Readiness” delivered by Dr. Nicol Voermans & Ria de Haas (@radboudumc, the Netherlands) 📆May 28th, 2025 16:00 CEST Register here👉 https://t.co/aCMswNSojg
0
0
2
➡️#EURONMD webinar w/@ERN_RND & @EANeurology 📌 #FSHD webinar series – ep 3⃣ 📚“Pediatric FSHD” delivered by Prof. Tracey Willis (Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS Trust, UK) 📆May 22nd, 2025 16:00 CEST Register here 👉 https://t.co/jcmMoy5UxV
0
1
4
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology 📌#FSHD webinar series – ep 2⃣ 📚“International Clinical Care Guidelines” by Dr. Evangelista (@Inst_Myologie & Pitié Salpêtrière Hospital – AP-HP, France) 📆May 15th, 2025 16:00 CEST Register here 👉 https://t.co/KwDvwoQb1e
0
2
3
EPNS Congress 8-12 July 2025 B for Brain, Science & Health Roll the yellow dice and attend the 2 plenary sessions. **MRI-SCIENCE / NEUROIMAGING **NEUROMUSCULAR DISORDERS Learn more: https://t.co/NlGFCkCw0R
#EPNS2025 #paediatricneurology
@ESNRad @euro_nmd
1
2
10
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology 📌 #FSHD webinar series – ep 1️⃣ 📚“Genetic Diagnosis” delivered by Prof. Emiliano Giardina (University of Rome Tor Vergata, Italy) 📆 May 8th, 2025 16:00 CEST Register here 👉 https://t.co/TR9DR1WP5f
0
3
12
Check out their diverse programme featuring focused & case-based workshops, and many other sessions! 🧠 Join us at the 11th Congress of the @EANeurology (EAN) in Helsinki! 👉 Register here: https://t.co/buTsyQen7k ➡️ Early bird deadline: 16 April 2025 #EANeurology #ean2025
0
1
3
One day left to register at the early bird fee for in Person participation to #eshg2025. Join us in Milan or online for the #eshg2025 #hybridconference! Register at a reduced rate until April 10, 2025 at 23:59 CEST. More info:
2025.eshg.org
Registration for ESHG 2025 is now closed. The virtual platform is still accessible until November 30, 2025. The European Society of Human Genetics is planning the 2025 conference as a hybrid confer...
2
7
11
📢Conference "Towards an EU Action Plan on Rare Diseases" TEN President Baiba Miltovica asks Member States & European Parliament to guarantee significant budget for rare diseases in the next Multiannual Financial Framework 2028-2035.🤝🔬 🔗Live: https://t.co/weLpEoYrTk
1
4
8
🚨 Exciting news! #EURONMD is hosting a 4-episode webinar series on Facioscapulohumeral Muscular Dystrophy (#FSHD) this May! 🌟 Join expert speakers from across Europe to explore the latest research, clinical management, and therapies. Don’t miss out! 👉 https://t.co/6pDNsbfG2y
0
7
17
📢We're thrilled to announce the 3rd edition of our EuroNDD meeting! We offer this unique workshop to serve as an important forum for researchers, clinicians, and patient advocates to connect, exchange ideas, and drive progress in the field of rare NDDs. Spread the word! #EuroNDD
0
5
7