ern euro_nmd
@euro_nmd
Followers
2K
Following
2K
Media
789
Statuses
3K
Building bridges and breaking barriers in rare neuromuscular diseases.
Paris, France
Joined February 2017
🚨#EURONMD is excited to announce a new webinar series on the Management and Treatment of #Myopathies this June/July✨. 📚 This 10-part series will cover key topics on therapeutic and multidisciplinary care in myopathies. Join us👉
1
10
34
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology . 📚“Non-pharmacological management of myopathies” by Prof. Dr. med. Peter Young (Clinic for Rehabilitation Medical Park Reithofpark, Germany). 📆July 10th, 2025 16:00 CEST. 👉Register here:
0
3
6
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology . 📚“Management of Cardiac Involvement in Myopathies” by Prof. Eloisa Arbustini (Fondazione IRCCS Policlinico San Matteo, Italy). 📆July 3rd, 2025 16:00 CEST. 👉Register here:
0
2
6
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology . 📚“Advances in Gene Therapy in Myopathies” by Prof. Francesco Muntoni (University College of London, UK). 📆June 26th, 2025 16:00 CEST. 👉Register here:
0
2
7
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology . 📚“Pain Management in Myopathies” by Dr. Stefanie Glaubitz (Department of Neurology, Universitätsmedizin Göttingen, Germany). 📆June 19th, 2025 16:00 CEST. 👉Register here:
0
3
6
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology . 📚“Treatment of idiopathic inflammatory myopathies” by Prof. Marianne de Visser, (Amsterdam University Medical Center, The Netherlands). 📆June 12th, 2025 16:00 CEST. 👉Register here:
5
5
15
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology. 📚“Genetic therapies of Neuromuscular Diseases” by Serge Braun, PharmD, PhD (Former @Telethon_France Scientific Director, Member of the french Academy of Pharmacy). 📆June 5th, 2025 16:00 CEST. Register here
0
3
7
RT @ERNEuroBloodNet: 🌍Last week, the ERN-EuroBloodNet participated in 2 key events shaping the future of rare disease care across Europe.….
0
2
0
0
1
0
➡️#EURONMD webinar w/@ERN_RND & @EANeurology . 📌 #FSHD webinar series – ep 4⃣.Final episode!. 📚“Clinical Trial Readiness” delivered by Dr. Nicol Voermans & Ria de Haas (@radboudumc, the Netherlands). 📆May 28th, 2025 16:00 CEST. Register here👉
0
0
2
➡️#EURONMD webinar w/@ERN_RND & @EANeurology. 📌 #FSHD webinar series – ep 3⃣. 📚“Pediatric FSHD” delivered by Prof. Tracey Willis (Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS Trust, UK). 📆May 22nd, 2025 16:00 CEST. Register here 👉
0
1
4
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology . 📌#FSHD webinar series – ep 2⃣. 📚“International Clinical Care Guidelines” by Dr. Evangelista (@Inst_Myologie & Pitié Salpêtrière Hospital – AP-HP, France). 📆May 15th, 2025 16:00 CEST. Register here 👉
0
2
3
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology . 📌 #FSHD webinar series – ep 1️⃣. 📚“Genetic Diagnosis” delivered by Prof. Emiliano Giardina (University of Rome Tor Vergata, Italy). 📆 May 8th, 2025 16:00 CEST. Register here 👉
0
3
13
Check out their diverse programme featuring focused & case-based workshops, and many other sessions!. 🧠 Join us at the 11th Congress of the @EANeurology (EAN) in Helsinki! . 👉 Register here: .➡️ Early bird deadline: 16 April 2025. #EANeurology #ean2025
0
1
3
RT @eshgsociety: One day left to register at the early bird fee for in Person participation to #eshg2025. Join us in Milan or online for th….
2025.eshg.org
Registration for ESHG 2025 is now open. The European Society of Human Genetics is planning the 2025 conference as a hybrid conference. This will allow attendees to participate in-person or online...
0
7
0
RT @ERNIthaca: 📢We're thrilled to announce the 3rd edition of our EuroNDD meeting!.We offer this unique workshop to serve as an important f….
0
5
0