@Ataxia_and_Me @alanROYGBIV @FibroFlutters @FoGenomics @FLGenomics I'll be easy to spot - stripy shirts, & my zebra mascot #zoellazebra who likes to stomp her hooves for #rarediseaseawareness I have a genetic connective tissue disorder 🦋🦓🦋 @FibroFlutters #StrutYourStripes #ZebraStrutters #patientadvocacy #geneticdisorders #chronicillness

Hi everyone, Carole from @FibroFlutters / #ZebraStrutters - Flutters & Strutters - here in the UK #LetsTalkRare

@Ataxia_and_Me Thank you 🦋🦓🦋 #StrutYourStripes + #Dazzle4Rare We're now Flutters + Strutters aka FibroFlutters + ZebraStrutters Supporting #EhlersDanlosSyndrome #PigmentedVillonodularSynovitis. #patientadvocacyorganisation #patientadvocacy #chronicillness #RareDisease #patientengagement

Time to choose! Tell us in comments 👍 Help give our little strutter a name 🦋🦓🦋 Anxious to get its hooves dirty & #raiseawareness #ZebraStrutters #RareDisease #PatientAdvocacy #Dazzle4Rare #StrutYourStripes #EhlersDanlosSyndrome #ultrarare #name #zebras

Our mascot will work hard to help advocate for #rarediseaseawareness #rarediseases Especially #ehlersdanlossyndrome, #musculoskeletal related rare + #undetermined disorders. #Dazzle4Rare #StrongerTogether #FibroFlutters #ZebraStrutters #patientadvocacy #strutyourstripes

@Ataxia_and_Me @dazzle4rare Thanks @Ataxia_and_Me This little #Zebra Strutter needs a name so it can help advocate, raise awareness and campaign for #rarediseases including our friends with #ataxia. #EhlersDanlosSyndrome #PigmentedVillonodularSynovitis #ZebraStrutters #RareDisease #Advocacy #Dazzle4Rare

Good morning and welcome to day 1 of #Dazzle4Rare22 🦓🦋🦓 In the name of also letting you have a little fun I'd like to introduce you #ZebraStrutters new mascot. 🦓🦓🦓 Time to give our mascot a name 🦓🦓🦓 Please write your suggestion in comments #justforfun #RareDisease

It's day 5 of #Dazzle4Rare +all week we've been asking for name suggestions for our new #mascot for #ZebraStrutters a name. Do you like one that has already been suggested... drop a note in comments. #funfriday #Awareness #patientadvocacyorganisation #chronicillness #RareDisease

Day 7 #Dazzle4Rare Thanks for all your suggestions for our new mascot. Names to choose from are on the poster, which would you pick? #ZebraStrutters #RareDisease #ultrarare #TeamDazzle #zebra #patientadvocacy #StrutYourStripes

@GoPI3Ks @dazzle4rare @Ataxia_and_Me @unitedadvocacy @BarbyIngle @buttahflyk @ncbrsfoundation @RareRevolutionM @IFAiArthritis Thank you 🙏 😊 🙏 #StrutYourStripes and #Dazzle4Rare2024 🦋🦓🦋 #StrongerTogether with united #rarediseasecommunities #zebrastrong #raredisease #chronicillness #FluttersandStrutters #ZebraStrutters #FibroFlutters #patientadvocacy

@RareRevolutionM @dazzle4rare Thank you 🦋🦓🦋 #StrutYourStripes + #Dazzle4Rare We're now Flutters + Strutters aka FibroFlutters + ZebraStrutters Supporting #EhlersDanlosSyndrome #PigmentedVillonodularSynovitis. #patientadvocacyorganisation #patientadvocacy #chronicillness #RareDisease #patientengagement

#MerryChristmas from #FibroFlutters #ZebraStrutters & #chronicillnessvoice Wishing you wellness as always Keep safe Stay warm Remember to pace yourselves Enjoy & have fun TY kindly for your support #chronicillness #ChronicPain #RareDisease #Health #patientadvocacy #charity

@Ataxia_and_Me @dazzle4rare #StrutYourStripes and #Dazzle4Rare 🦋🦓🦋 #StrongerTogether with united #rarediseasecommunities #zebrastrong #raredisease #chronicillness #FluttersandStrutters #ZebraStrutters #FibroFlutters #patientadvocacy

@FibroFlutters #ZebraStrutters – supporting Ehler's-Danlos Syndromes & Pigmented Villonodular Synovitis. Advocating for multidisciplinary approach to medical #healthcare so that #chronicillness & #raredisease patients can receive the type of care that they need. #dazzle4rare

Our founder got a surprise gift from @scrufton73 @FibroFlutters #ZebraStrutters #RareDisease #NotJustPatients #EDS #Ataxia #StrongerTogether #CoMorbidities

@Ataxia_and_Me @FoGenomics @FLGenomics @WalesGenePark @GenomicsWales @hardingnumber5 @MedGenWales These zebra feet will be a zebra strutting for rare diseases and undetermined. (Our Co-Founder has just finished biomarker matched immunotherapy 👏🏻👏🏻👏🏻 for Non small cell lung cancer.) #ZebraStrutters #FoG2025 #strutyourstripes #genomics #biodata #biomarker #StrongerTogether

We #Dazzle4Rare #StrutOurStripes for #EhlersDanlosSydromes and support #Dazzle4Rare2021 #EDS #HyperMobilitySpectrumdisorders Coming Soon #WatchThisSpace for #ZebraStrutters at @FibroFlutters RareDiseases #community

Sporting the #Zebra ish #Hexagons Ready for lunch in the @FibroFlutters cup (cup a soup) #ZebraStrutters #Dazzle4Rare #Ataxia

@scrufton73 @precisionforum @FibroFlutters "see" you at #PMFPatientWeek #Ataxia #RareDisease #Patient #ZebraStrutters

#ZebraStrutters @FibroFlutters – supporting Ehler's-Danlos Syndromes #EDS & Pigmented Villonodular Synovitis. Advocating for multidisciplinary approach to medical #healthcare so that #chronicillness & #raredisease patients can receive the type of care they need. #dazzle4rare