Explore tweets tagged as #SayScleroderma
This month, members of the scleroderma community joined us to #SayScleroderma by sharing their valuable lifehacks, which are practical tips and strategies for navigating life with scleroderma. Check out Helene's finger-cot trick in this video!
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It’s Scleroderma Awareness Month, and Brian is telling us why he chooses to #SayScleroderma! Every action brings us one step closer to a future without scleroderma. Let’s #SayScleroderma—this month and every month—until we find a cure.
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Coming up soon—February is Rare Disease Awareness Month. It's a time for us to come together and share what it means to live with a rare disease, like scleroderma. Join us on social media to share stories and information. #SayScleroderma
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Rare Disease Day is here: Today, we are coming together to #SayScleroderma and shine a light on the 300,000 people in the U.S. living with scleroderma.
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Throughout June, we invited you to join us in the #SayScleroderma campaign. Although Scleroderma Awareness Month has ended, it's important to remember that this effort does not have to stop here. Let's keep the momentum going—stay engaged, and continue to #SayScleroderma.
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It’s #WorldSclerodermaDay—a time to come together to raise awareness, fuel hope, and move toward a cure for scleroderma. Here are just a few of our incredible community members, and why they #SayScleroderma to raise awareness.
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To kick off Scleroderma Awareness Month, Andrew talks about his journey with this condition and why he chooses to #SayScleroderma. @ProjectScleroderma produced this film in partnership with @srfcure. Together, we #SayScleroderma so that one day, we’ll find a cure.
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“I #SayScleroderma because although it is rare and may feel isolating, it is not one to be alone with," says Ryan M. (dx 2019). "I see organizations all over the world where the conversations are going strong, and I encourage patients new and old to jump in."
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Why does Jennifer #SayScleroderma? 📣 “I #SayScleroderma because, although it is a rare disease, it affects many people and should not take years for patients to receive a diagnosis," she says. Read the full story here: https://t.co/58l2rXs7IC
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For #SclerodermaAwarenessMonth, join us to # SayScleroderma. #SayScleroderma with us—share your story, raise awareness, and help us move closer to finding a cure. Check out these resources to get started: 🔗 https://t.co/L0EhYkEzkQ
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Amplify your voice with our special #SayScleroderma profile picture frame! 🖼️ June is Scleroderma Awareness Month, and Barbara from Thriving with Scleroderma is choosing to spread the word with our custom #SayScleroderma frame. Get your frame now: https://t.co/NVEZIY1N9m
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#GivingTuesday is tomorrow! 💙 Join us in raising funds and awareness for scleroderma research. Donate: https://t.co/lENVjXydUc Or spread the word about scleroderma on social media! Add the SRF #SayScleroderma frame to your profile picture: https://t.co/eiQmYhUjpa
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Why does Hồng Thư #SayScleroderma? “Many people feel like I am different from before, but have no clue about what I am suffering from,” she explains. “I #SayScleroderma to raise awareness so that more people learn about this disease.” Read her story: https://t.co/O2kHpPiWuu
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What exactly is scleroderma, and how does it affect people? Scleroderma is best thought of as a single, yet complex disease that can progress in two main types: Systemic and Localized. Learn more about scleroderma and how to #SayScleroderma this month: https://t.co/7mFgolyhNx
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For Scout L., her mother Jackie’s experience with scleroderma is why she chooses to #SayScleroderma: to help drive research that leads to better, more personalized treatments. You can #SayScleroderma too: https://t.co/Hb1SdKAGMu
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I was diagnosed with this disease in 2011 within about 2-3 months after returning from a deployment. I'm almost 12 years in ith it now. A crazy condition, but grateful to still be alive. It's been a journey. #SayScleroderma #SclerodermaAwarenessMonth
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The countdown is on ⏳ Scleroderma Awareness Month kicks off soon in June! Get ready! Scleroderma Awareness Month is right around the corner. Explore our #SayScleroderma toolkit and learn how you can make a difference this June: https://t.co/9GVAovZeGJ
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Many people with an auto-immune condition such as inflammatory arthritis also have other auto-immune conditions, so we're always happy to help our friends at @WeAreSRUK raise awareness of these. It's Scleroderma Month - we encourage you to find out more. #SayScleroderma
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