SRUK | Scleroderma & Raynaud's UK
@WeAreSRUK
Followers
5K
Following
5K
Media
3K
Statuses
10K
Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
London, England
Joined February 2012
I’m running the London Marathon 2026 for @WeAreSRUK 🇬🇧 🫶🏼 If anyone can donate anything at all or share my post it would be really appreciated 💙 https://t.co/Vd97bo0Wd0
2026tcslondonmarathon.enthuse.com
Many thanks for visiting my page. For those who don't know me my name is Scarlett. I am running the TCS London Marathon 2026 for Scleroderma and Raynaud's UK (SRUK). SRUK work to improve the lives of
1
5
5
“We are delighted that @ScleroForum is signposting clinicians to SRUK to help them further support their patients living with scleroderma. SRUK provides information and support for patients, funding research and improving treatment'' - Sue Farrington, CEO, SRUK
We’re excited to announce our collaboration with @WeAreSRUK! 🎉 You can now find their site in the ‘useful links’ section of the Scleroderma Forum. Check it out to explore valuable patient resources to enhance your clinical practice: 🔗 https://t.co/25S47rBFXs
0
1
2
We’re excited to announce our collaboration with @WeAreSRUK! 🎉 You can now find their site in the ‘useful links’ section of the Scleroderma Forum. Check it out to explore valuable patient resources to enhance your clinical practice: 🔗 https://t.co/25S47rBFXs
0
1
0
So exciting all my fundraising merchandise has arrived, for my first London Marathon 💚 🇬🇧 for @WeAreSRUK Time to make a difference💙 #scleroderma #raynauds donate below or share if you can 🙏🏻 💪🏻 https://t.co/nm6jJRnTcu
0
2
5
🎓 Just 2 days to go until the SRUK Conference in Cambridge! Join us for expert talks, community connection & the latest in scleroderma care. 🎟️ Tickets available: https://t.co/8HK3QU9zn4 💙 Thanks to our sponsors: @ZuraBioLimited @Boehringer, @JNJNews & Bristol Myers Squibb.
0
2
2
🎓 The SRUK Conference is happening this Friday, 26 July in Cambridge! Proudly sponsored by @ZuraBioLimited, @Boehringer, @JNJNews & Bristol Myers Squibb. Don’t miss this powerful day of learning, connection & community. 🎟️ Tickets still available: https://t.co/8HK3QU9zn4
0
1
0
I’m raising money by running a marathon for @WeAreSRUK! Scleroderma is currently an incurable disease and isn’t known by many people. If you can donate anything at all or retweet my post it is really appreciated 🤍 https://t.co/Vd97bo0Wd0
0
3
1
I’m running the London Marathon!! 🏃🏻♀️🇬🇧 for @WeAreSRUK Please click the link below to find out more. If you can donate anything at all it would be really appreciated or share to spread awareness🤍❤️ https://t.co/Vd97bo1u2y
2026tcslondonmarathon.enthuse.com
Many thanks for visiting my page. For those who don't know me my name is Scarlett. I am running the TCS London Marathon 2026 for Scleroderma and Raynaud's UK (SRUK). SRUK work to improve the lives of
0
3
3
Take 2 mins to learn more of Sarahs story. Our beautiful friend & neighbour of 28 yrs Please support our Scarlett in anyway possible for her London Marathon, donate if you can to this relatively unknown disease. Retweets appreciated to raise awareness @WeAreSRUK
I’m running the London Marathon!! 🏃🏻♀️🇬🇧 for @WeAreSRUK Please click the link below to find out more. If you can donate anything at all it would be really appreciated or share to spread awareness🤍❤️ https://t.co/Vd97bo1u2y
0
4
3
The 10-Year Health Plan for England includes some welcome steps, but must go further to meet the needs of people with RAIRDs, and deliver the specialist care and support they need. Read our full statement➡️ https://t.co/jx0aNA0Ts1
0
2
3
🧪 Have an autoimmune disease? Help shape research & educate doctors on flares, triggers & symptoms. 🗣️ 🩺 Take this 45-min survey co-created by @Cambridge_Uni & top rheumatologists. 🎁 Prize draw: 4x £50 Amazon vouchers! 🔗 https://t.co/Lqi8I8FzlE 📅 Closes 14 July
0
1
2
Go an watch #SayScleroderma film if you haven't already. You can check @WeAreSRUK's website for more details. 🎦⬇️
Have you watched our #SayScleroderma film yet? 🎥 Dawn Neill from Magherafelt is one of 7 people featured. She recently spoke to @DerryNow about living with systemic sclerosis & why raising awareness matters 💜 Read more 👉 https://t.co/8OoIPtgauE
#SclerodermaAwareness #SRUK
0
2
3
"From Hardship to Hope: United for Scleroderma – Raising Awareness, Inspiring Strength, and Standing Together: https://t.co/LLClS2RBhn
0
2
4
Aberdeen student Mithi Ahmed-Richards thought her cold hands were just winter blues, but it was scleroderma, a rare autoimmune disease. Her story is a reminder: don’t ignore persistent symptoms. Read more👉 https://t.co/mbP6lNTHsn
pressandjournal.co.uk
Mithi Ahmed-Richards thought she just needed warmer gloves but it was the first sign of a rare autoimmune disease that would change her life.
0
0
1
Have you watched our #SayScleroderma film yet? 🎥 Dawn Neill from Magherafelt is one of 7 people featured. She recently spoke to @DerryNow about living with systemic sclerosis & why raising awareness matters 💜 Read more 👉 https://t.co/8OoIPtgauE
#SclerodermaAwareness #SRUK
derrynow.com
Dawn Neill has featured in a charity video to raise awareness of Scleroderma
0
3
7
June is #SclerodermaAwarenessMonth. @WeAreSRUK is raising awareness with their short film #SayScleroderma. 🎥 Watch the film and learn more about scleroderma and ways you can support on their website ➡️ https://t.co/sxcqIj5eax
#Scleroderma
0
2
3
🚨Patients with systemic sclerosis survey alert 🚨 Questionnaire on ORAL HEALTH 👄 needs of people with systemic sclerosis (on behalf of the SCTC Orofacial in SSc Working Group) https://t.co/DRzE0uuPT7
@WeAreSRUK @Worldsclerofnd @EUSTAR_org @delgaldoFrances @alessia_alunno
docs.google.com
Patient Questionnaire
0
3
4
Many people with an auto-immune condition such as inflammatory arthritis also have other auto-immune conditions, so we're always happy to help our friends at @WeAreSRUK raise awareness of these. It's Scleroderma Month - we encourage you to find out more. #SayScleroderma
0
3
7