SRFCure
@srfcure
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America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.
San Francisco, CA
Joined April 2011
This Thanksgiving, we’re thankful for this community 🧡 Today, we’re reflecting on the incredible community that is driving the search for a cure. Thank you for joining us. Wishing everyone a warm and wonderful holiday!
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"A year after I was diagnosed with scleroderma, I started to get very winded walking very short distances," Jackie remembers. "After testing, I received a diagnosis of interstitial lung disease and secondary pulmonary hypertension." Read her full story: https://t.co/lQK7Yc8Iik
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This year’s Cool Comedy • Hot Cuisine (CCHC) talent lineup didn’t just light up the stage—they helped raise awareness of scleroderma to wider audiences, including national recognition in a new article from Billboard. 🌟 Read the full article here: https://t.co/mpfDJbvL4d
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Mark your calendar for Giving Tuesday on December 2, a day of generosity that's celebrated around the world. You can make a gift now to be counted on GivingTuesday–and all gifts will be matched, dollar-for-dollar, so your impact will be doubled! Give now: https://t.co/u4iqnlDgav
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"Pulmonary hypertension has made my life challenging," she says. "Simple things that I did before have become a chore for me," Nola (dx 2010) says. We're highlighting Nola's story as part of PAH Awareness Month. Watch the full video here: https://t.co/I6FtLnGjvY
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November is PAH Awareness Month: Learn the signs and why it's important to get screened early 🔎 Learn more abut PAH and explore resources on our website: https://t.co/UiNrBwvY5U
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As the year comes to a close, we’re deeply grateful to you for being part of this unstoppable community driving progress toward a cure. The SRF exists for one reason: because research matters. Please consider making a gift today: https://t.co/n9Xq2GONcV
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Today, on its 29th anniversary, we're remembering late SRF Board Member Bob Saget’s film, “For Hope.” Bob directed and executive produced this moving story in 1996, gaining critical acclaim and changing how the world sees scleroderma. Watch for free: https://t.co/YITewZUgON.
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“Living with PAH and scleroderma has been difficult, but it was manageable,” says Barb H. (dx 1994.) “It never stopped me from doing something I really wanted to do.” This PAH Awareness Month, read her full story: https://t.co/1l7xpWIWYW
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What an incredible evening! Last night, the energy in NYC's Edison Ballroom was electric, with everyone united for a singular purpose: to end scleroderma. Please join us in giving a HUGE thank you to everyone who helped make last night a huge win for the scleroderma community.
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We’re gearing up for Cool Comedy • Hot Cuisine this week on Wednesday, November 12 with a fun look back—come walk down memory lane with @susanfeniger, who started the event with SRF Founder Sharon Monsky in 1987. Learn more: https://t.co/jb565eVNIi
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This month, let’s spread the word: early screening for pulmonary arterial hypertension (PAH) matters. Learn more about how to get involved this PAH Awareness Month: https://t.co/m2Og2pstZS
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Discover what's new in scleroderma research at SPIN's upcoming online event! 🔬 📅 Saturday, November 22 ⏰ 4-5:30 PM ET / 1-2:30 PM PT Register now and learn more about SPIN: https://t.co/cVjw5B4sEA
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Last month, the SRF joined rheumatology leaders at ACR Convergence 2025 in Chicago—the field’s premier annual meeting dedicated to advancing the prevention, diagnosis, and treatment of rheumatic diseases. Learn more about the ACR Convergence meeting: https://t.co/w8Smz9vjER
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“My journey to diagnosis was long and frustrating,” says Monika H. (dx 2017). “The first symptoms appeared as swelling and tingling in my fingers and toes, which I initially brushed off." Read her full story: https://t.co/CGlkZgKUkb
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At the 2025 ACR Conference, Dr. Khanna presented striking new data. This study evaluated a CAR T-cell therapy, which led to meaningful improvements in lung function and skin thickness among patients with severe, treatment-resistant disease. Learn more: https://t.co/0nIziSvGFg
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This October, the SRF is joining the Raynaud's Association in recognizing Raynaud's Awareness Month, to raise awareness around this condition and its its connection to scleroderma. Learn more about Raynaud’s phenomenon on our website: https://t.co/rIEixcatJW
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Let's talk about how scleroderma can impact your joints 💪 Learn more about scleroderma complications and treatments on our website: https://t.co/tLYH7xMCpa
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On October 23, we celebrate the birthday of Sharon Monsky, founder of the SRF. Her tireless leadership transformed the SRF into the nation’s leading nonprofit funder of scleroderma research—and her impact continues to shape our work today.
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Check it out: Dr. Gregory Gordon breaks down CONQUEST on Keep It Science! 🎧 Hosted by science communicators Dr. Elisabeth Kugler (dx in 2021 with scleroderma) and Dr. Nick Gaunt, the podcast shines a spotlight on rare diseases. Watch the episode here: https://t.co/RNj6p5lasp
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