hEDStogether
@hEDStogether
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Putting our #hEDStogether to co-create research with academics, health professionals, third sector, family & people with #HSD #EDS #POTS (& related conditions)
Joined November 2019
For #EDS & #HSD Awareness Month we have launched a NEW website with current research & support tools! Check it out!. #ehlersdanlossyndrome.#Hypermobilityspectrumdisorders.#myEDSchallenge #myHSDchallenge #raisingawarenesstogether.#IDM2020.#whywedoresearch
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RT @GemmaSPearce: NEW! Free fully accessible paper showing the results of running the rehabilitation intervention with and for people with….
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Fabulous to see @GemmaSPearce @SallyPezaro & @ndholliday being celebrated as part of #WomenInScienceDay . We have lots of fabulous women working in #STEM across #hEDStogether projects. @higo_anna @EftekhariHelen @SabeehaMalek @laurenmpurdy @DrEReinhold.
hedstogether.com
This #WomenInScienceDay, we’re applauding our amazing women researchers in #STEM! 👩🔬✨. We're continually inspired by how they are breaking barriers. Past & present, Coventry's women in science shine 🌟. Keep inspiring us - we couldn't be prouder to celebrate you all 🚀👏
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RT @UKPoTS: ⭐️💻 Webinar tomorrow evening - Ask the Experts 💻⭐️. Tomorrow evening the @HMSACharity are hosting a free webinar with #PoTS exp….
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RT @DrSarahBennett: Fabulous new open access work by @EftekhariHelen @GemmaSPearce @sophie_stan2 and Kate Seers in partnership with @hEDSto….
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RT @GemmaSPearce: New publication! Free open access to all 😃. POTS is starting to get better recognition now it is associated with Long COV….
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RT @GemmaSPearce: Our survey on hypermobility and the shoulder is closing soon. This is a final push so please do take part and/or share! :….
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RT @higo_anna: Check this out 😃Please share the survey 🙏🏻. @ShoulderGeek1 @theshoulderdoc @thecsp @chrissyholmes15….
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Check out Anna Higo's blog with some fantastic news! @higo_anna. In the blog she summarises a recent publication on shoulder treatments for hypermobility . & launches a NEW SURVEY! . Have a look, share with others and take part 😁❤ THANK YOU 🙏.
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RT @limbostate1: There's this new study which is for EDS and HSD with shoulders. My daughter's shoulder is always on the move😆.If anyone wa….
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RT @ehlersdanlosuk: EDS UK invites UK-based GPs and GP trainees to a FREE educational event in London this November. The event will focus o….
ehlers-danlos.org
EDS UK invites UK-based GPs and GP trainees to a FREE educational event in the Library of The Reform Club in London this November. We will be welcoming Dr Emma Reinhold, Dr Ben Frankel, Dr Alan Hakim...
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RT @GemmaSPearce: Do you have hypermobile #EhlersDanlosSyndrome or a similar diagnosis? . Do you have issues with your shoulder?. Are you a….
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RT @DrEReinhold: Announcing the most exciting opportunity for GPs this year!.[Drumroll] @ehlersdanlosuk are holding….
eventbrite.com
Enhance your understanding of Ehlers-Danlos Syndrome and hypermobility spectrum disorders.
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RT @higo_anna: Research into conservative management for hEDS/HSD with shoulder symptoms is severely lacking. Your participation will help….
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RT @higo_anna: Are you hEDS/HSD experiencing shoulder symptoms and living in the UK? Please take our 20minute survey exploring experiences….
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NEW page on website!. Surveys completed by people with hEDS/HSD (&similar) & healthcare professionals on their experiences & care from pregnancy to post-partum. THANK YOU to all who took part!. @GemmaSPearce @DrEReinhold @SallyPezaro @LMBell_ @Paul_NTDC
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The project page about Anna Higo's PhD on the hypermobile shoulder has been updated!. A review paper has been published and ethics has now been approved for a survey that will go live soon so watch this space to take part! . @higo_anna
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