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hypermobility.org Profile
hypermobility.org

@HMSACharity

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Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.

UK based, virtually global :)
Joined March 2011
Don't wanna be here? Send us removal request.
@HMSACharity
hypermobility.org
1 day
We return to our usual schedule this evening with a @JBOccyTherapy live Q&A on all things hypermobility, register at (click latest, then events) and we'll see you later on, and send the replay too. Questions by message or e-mail titled 'AskJo'.
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@HMSACharity
hypermobility.org
2 days
And this is why we love an instructor who can not only tell that you're in the right position, but using all the wrong muscles, but also train you how to use and identify the right ones. If all you're getting is 'how cool, you're really bendy' you need a better instructor!.
@Kathryn_Cura
Kathryn Knowles, PhD
3 days
My thoughts a hypermobile person at yoga. 30% of the time - wow my muscles aren’t strong enough for this. 70% of the time - my body is playdough, I can mould myself into any position, but god help anyone that says I should be able to ‘feel’ certain muscles engaging. @HMSACharity.
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@grok
Grok
3 days
Join millions who have switched to Grok.
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@HMSACharity
hypermobility.org
15 days
Thank you for the restock reminder!.
@adamfare1996
Adam Fare 🖤🤍💜
16 days
“So, Adam, what did you do today?”. “Nothing much, just sorted out my prescription”. “What? You spent all day doing that?”. My prescription:
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@HMSACharity
hypermobility.org
18 days
🧶 Are you ready to get crafty? 🎨 HMSA Members, don’t miss our Craft and Chat Drop-in on 27 August from 19:00 to 20:30 BST! It’s a free event where you can relax with fellow members. Book your spot here: #HMSA #Crafting #SocialEvent
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@HMSACharity
hypermobility.org
18 days
RT @jdibon: Time to move beyond the Beighton Score 🤔. Too many people are still being dismissed simply because they “don’t score high enoug….
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@HMSACharity
hypermobility.org
23 days
We spent the muggy afternoon catching up on last week's heatwave masterclass session in preparation for tomorrow's event, while failing to nap. There's still time to register, you'll get a catch up link and we'll see you at 7pm (BST). ☺️
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hypermobility.org
Upcoming events for professionals and patients run by the Hypermobility Syndromes Association
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@HMSACharity
hypermobility.org
23 days
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@HMSACharity
hypermobility.org
28 days
RT @adamfare1996: Most disabled people don’t claim disability benefits…. Many of those would be eligible, but they either choose not to, or….
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@HMSACharity
hypermobility.org
1 month
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@HMSACharity
hypermobility.org
1 month
Big Angry Sky Ball PSA: You have 24 hours to register for this Heatwave Management course with @JBOccyTherapy it starts tomorrow. If you're busy, register anyway, they'll be recorded, and we'll send the replay link when they go up. (Free to members)!
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@HMSACharity
hypermobility.org
1 month
You can reply/message us on sm, or during the stream using the chat function we'll do our best to get to them all! As usual, this session for patients will be recorded so if you're busy register anyway, we'll send the replay link when it's on the site.
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hypermobility.org
Upcoming events for professionals and patients run by the Hypermobility Syndromes Association
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@HMSACharity
hypermobility.org
1 month
We've some leftover questions from last month's big weekend to cover, and more rolling in, so Jo will be joined this Thursday evening by Dr Philip Bull. We're so excited we've already started collating the advance questions! >>
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@HMSACharity
hypermobility.org
1 month
Example with more info and links!. The Hypermobility Syndromes Association.for the last e-news - which contains links to upcoming events. Or, you can go and see everything we're up to.
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hypermobility.org
Upcoming events for professionals and patients run by the Hypermobility Syndromes Association
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@HMSACharity
hypermobility.org
1 month
Tonight: MellowMonday Relaxation with Kim for members!.Thursday: Jo & Dr Bull - free, public Q&A. Subscribe to our e-news, it's easy, just scroll to the bottom of any page on the website, add your email address! We'll be in touch when new events become available to book. 1/2
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@HMSACharity
hypermobility.org
2 months
On!.
@DiaryofaSickGrl
Candace D.
2 months
Subtitles on or off?.
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@HMSACharity
hypermobility.org
2 months
Louder for the people at the back!. Any cuts to PIP will force many disabled people OUT of work. Everyone knows working costs, with a disability it costs more.
@Tanni_GT
Tanni Grey-Thompson
2 months
PIP still isn’t an out of work benefit. Can people stop confusing it.
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@HMSACharity
hypermobility.org
2 months
RT @AmesTaylor_DA: 🧵Can we get something straight about welfare benefits?. Speaking from 20+ years of experience, a significant number peop….
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@HMSACharity
hypermobility.org
2 months
RT @DiaryofaSickGrl: Me 🫠.
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@HMSACharity
hypermobility.org
2 months
RT @Shrink_at_Large: Important. If you’re personally safe because of the 4+ ‘concession’ and feel relieved, that’s more than OK. It doesn….
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@HMSACharity
hypermobility.org
2 months
RT @AMAZlNGNATURE: Life Goals: to be as unbothered as a capybara
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