SEDSConnective
@SEDSConnective
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Charity for Hypermobility EDS / HSD NEURODIVERGENCE ADHD Autism Dyspraxia TS Dyslexia Chair/Founder Jane Green MBE @JGJanegreenMBE Patron Dr Eccles @Bendybrain
Global
Joined January 2019
Strange or utterly makes sense! . Did you know some of the connections with hypermobility and neurodivergence ? .#EDS #HSD #neurodivergent
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Post #Covid-19 symptoms and still not recovering ?.Find out more #GJH #hypermobility #neurodivergence
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RT @JGjanegreenMBE: 'We need a holistic view of neurodivergent education. We rely on children to tell us when they are in pain, but a….
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Plus neurodivergence, RLS Atopic dermatitis psychiatric disorders and hypermobility.
🚨 Excited to share our new paper on neuropsychiatric disorders in #MCAS. There are many interesting findings here, but the most striking is: . 📢 The most common comorbidity of MCAS was #POTS occurring in 50% of female patients and 16% of male patients.
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We wondered if others knew? 🤔.
@SEDSConnective This might be an odd question, but what does SEDS actually mean? It’s based on connective tissue but that’s not the acronym?.
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RT @SEDSConnective: Oh my GERD or GORD!.Gastro oesophageal reflux disease is when acid and other contents of the stomach reflux back up. Of….
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📢SEDSConnective Newsletter!.Sign up as a member (it’s free, but donations are always helpful) and subscribe to our monthly newsletter!.Be the first to hear our exclusive news, exciting updates as well as opportunities to take part in events and projects. Register as a member
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We agree, listen to the community voices and actually by doing so will also save money too. #pip.
1 As mum of @PhoebeOckenden:I am her @DWPgovuk appointee & deal on an ongoing: often weekly basis with the massive inefficiencies of DWP / Universal Credit &PIP. I would urge @leicesterliz to listen to lived experience. Listen!
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RT @RichardBurgon: When MPs vote on Tuesday, we're voting on whether to introduce a 4-point rule for PIP. That rule means disabled people….
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RT @JGjanegreenMBE: NEW study on autistic adults 18+ , parents/carers and chronic long term pain.online focus group 60 mins.email al2464@b….
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BODIES, BRAINS AND BURNOUT.The Invisible Impact of Covid-19 on hypermobility and Neurodivergence ( Autism ADHD dyspraxia Tourette's +). You will learn about the genetics, immunology, and cytokine cascades, MCAS and resulting dysregulation of the autonomic nervous system, GI
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Oh my GERD or GORD!.Gastro oesophageal reflux disease is when acid and other contents of the stomach reflux back up. Often this causes a burning sensation in the chest, oesophagus or throat. Read more here on the SEDSConnective website :.
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Astonishing or totally makes sense ?. 90% of people #hEDS HSD suffer from these 9 common gastrointestinal symptoms . Read the gastroenterology paper here and the link to the practicalGastro Journal
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Please donate here: Your support helps us to advocate for inclusion for people with symptomatic hypermobility and neurodivergence.
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If you are a UK resident or British citizen living overseas, please consider signing this petition. So many of our members could be affected ….
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