Crohn's & Colitis UK
@CrohnsColitisUK
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Following
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Media
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We're here for everyone with Crohn's and Colitis. #cutthecrap - use our symptom checker today.
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Without diagnosis, without the right treatment Crohn’s and Colitis can be life threatening. People who experience delays to diagnosis are twice as likely to need surgery.
#CutTheCrap
Don’t ignore your symptoms, use our symptom checker today:
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Have you seen the incredible video of
@katelyn_ohashi
's gymnastics floor routine? The
#perfect10
routine is even more impressive considering Katelyn was diagnosed with Ulcerative Colitis in 2016!
#ItTakesGuts
living with
#Crohns
or
#Colitis
💪🏽💜
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1K
Did you see our incredible Ambassador
@Rylan
on The Wheel with
@McInTweet
this Christmas?
The £86K he won will help us make a huge difference to the lives of people with Crohn’s & Colitis.
Thank you Rylan – Merry Christmas to you and Mummy Linda 💜
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930
Crohn's and Colitis Awareness is here!
#ItTakesGuts
to talk about
#Crohns
and
#Colitis
. Stand with us and everyone affected by these devastating conditions - so together, we can improve lives today and build a world free from Crohn’s and Colitis tomorrow.
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It's
#WorldIBDday
!
#ItTakesGuts
to talk about
#Crohns
and
#Colitis
, but no one can see it until we say it. It's time to speak up and break down the stigma. One conversation at a time.
Text GUTS to 70500 to give £5 or visit
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“It takes guts to talk about
#Crohns
and
#Colitis
and that’s why I’m supporting Crohn’s & Colitis UK this
#AwarenessWeek
. My mum has Crohn’s disease so I have seen first-hand how terrible this disease can be. Please show your support too.”
Thanks to
@Rylan
for his support.
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Great to see inspirational vlogger
@hannahwitton
breaking taboos by talking about living with a
#Stoma
and Ulcerative
#Colitis
- on this morning's
@lorraine
💜
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It's World IBD Day, and we're here for you every step of the way. Raise awareness today by sharing our post with your reasons for supporting World IBD Day this year.
#WorldIBDDay
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Today is
#WorldOstomyDay
💜
Thank you to our amazing supporters who are raising vital awareness of
#Crohns
and
#Colitis
by sharing their
#ostomy
bag pics.
Please feel free to add your
#StomaSelfies
in the comments!
#ileostomy
#colostomy
#stoma
#IBD
#worldostomyday2018
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Charles made history after reaching the age of 100, 70 years after he was told by doctors he didn't have long to live. Diagnosed aged 30, he is the longest known survivor of
#Crohns
and the oldest member of our charity.
Happy 1️⃣0️⃣0️⃣th Birthday Charles!
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GREAT NEWS: Retail giant
@Argos_Online
is recognising invisible diseases such as
#Crohns
and
#Colitis
, by allowing members with our
#CantWaitCard
to access staff toilets in 800 UK stores.
Find out how to get your Card and
#RadarKey
when joining us:
👪
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Living with an invisible illness means we become masters in smiling and saying we're fine, when in reality, we're not feeling great. Just because we appear well, it doesn't mean we are. Be kind - you never know what someone's going through 💜
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Thanks so much
@joelycett
for taking us on tour! Our wonderful
@crohnscolitisuk
volunteers have been supporting our bucket collections up and down the country. You'll see us at
@joelycett
's London show
@OVOArena
tonight & Friday night collecting donations!
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You are not alone.
Artists
@allontheboard
remind us that we are all stronger together this
#Crohns
and
#Colitis
#AwarenesWeek
.
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216
377
“The doctors were telling me I won’t be able to do this but I wanted to find a way. I wanted to do the impossible. That is kind of what I do.”
@Dynamomagician
, living with
#Crohns
.
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372
"
#Pride
is about being who you are and embracing your authentic self. So this year I'm not hiding my
#ileostomy
bag... it's part of who I am, and I'm proud of who I am."
#ItTakesGuts
#Crohns
#Colitis
#IBD
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373
Just because my illness isn't visible doesn't mean it isn't existent.
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BREAKING NEWS:
@Tesco
rolls out new accessible toilet sign in over 700 stores!
#InvisibleIllness
#Crohns
#Colitis
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🌍 Today, we unite to celebrate
#WorldIBDDay
, raising awareness for Crohn's and Colitis. Let's recognise the strength, resilience, and courage of those living with these conditions. Join us in breaking the silence & increasing understanding.
#IBDAwareness
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131
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EXCLUSIVE:
#StrictlyComeDancing
star
@dowden_amy
reveals battle with
#Crohns
"It will be a relief that people will finally know, but I don’t want any sympathy. It doesn't define me, it's just part of me, and I want this to be a positive story"
Read more:
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"My mum has suffered all my life from severe Crohn’s Disease and I don’t think it gets spoken about as much as it should."
We totally agree with
@Rylan
...
#ItTakesGuts
to talk about
#Crohns
and
#Colitis
, let’s start conversations today.
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It can be hard to talk about Crohn’s or Colitis. Sometimes, what we say isn’t exactly what we mean. Remember, not every disability is visible, and it can be hard to open up about their effects, even to loved ones 💜
#crohns
#colitis
#ibdcommunity
#ibd
#spoonies
#invisibleillness
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"I didn't tell people because I want a million people to like me, I told people because there's a million people out there just like me who are going through stuff and they need to know that they're not alone."
@Dynamomagician
, living with
#Crohns
.
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"Here’s the thing though. This year I have felt disabled. But I don’t know if I’m allowed to use that word to describe myself."
Am I Disabled? YouTuber
@hannahwitton
talks stomas, surgery and disability.
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It can be hard to talk about Crohn’s or Colitis. Sometimes it feels easier to put on a brave face, and what we say isn’t always exactly what we mean. Remember that not every disability is visible, and that it can be hard to open up about their effects even to loved ones 💜
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*BREAKING NEWS*
Wetherspoons is installing our Not Every Disability is Visible sign.
This is a huge step towards breaking the stigma around 'invisible disabilities'.
@MetroUK
#crohns
#colitis
#invisibleillness
#noteverydisabilityisvisible
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Stephen Conn, who lives with Crohn’s Disease, has graduated with a 1st class Master’s in chemical engineering. He chose this career path with the aim of helping to create medications that could aid others with Crohn’s and Colitis. Well done Stephen! 🎉👏
9
23
305
"There are not many people my age who speak out about this and a lot of people judge others."
Our supporter Oliver spoke to BBC News this week about why is sharing his stoma story for all to see👇
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Many people living with
#Crohns
and
#Colitis
feel like they have an
#invisibleillness
as their symptoms may not be immediately seen. Remember
#noteverydisabilityisvisible
and just because someone appears 'fine' on the outside it doesn't mean they're not struggling on the inside
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The impact of Crohn's or Colitis is often hidden behind closed doors or smiles. Others can forget that they may only see us on our good days, and that the condition still affects us even if we look OK.
Need help talking about this? Try our Talking Toolkit:
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BREAKING NEWS: The Government plans to extend
#BlueBadge
permit criteria specifically for 'hidden disabilities'.
Read more about the new eligibility criteria
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Amazing to see
@jeremycorbyn
and members of
@UKLabour
wearing a Crohn's & Colitis UK badge in
@UKParliament
#PMQs
during
#Crohns
and
#Colitis
Awareness Week 👍🏻
#ItTakesGuts
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Today is the first day of Crohn’s and Colitis Awareness Week 2023! Whether you are living with Crohn’s or Colitis, know someone who is, or just want to show your support - head to our website where you’ll find everything you need to get involved.
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“Yes, I have a bag of 💩 attached to me at all times, but it is absolutely 100% possible to have a stoma and still feel confident and comfortable in your own skin”
This is
@hannahwitton
's story 💜 via
@StylistMagazine
#Colitis
#Stoma
#ItTakesGuts
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295
MORE, MORE, MORE. How do you Lycett? How do you Lycett?
A huge thank you
@joelycett
for giving us the opportunity to host bucket collections at select shows.
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288
Today the Government announced plans to reform the fit note system, for people who are out of work with poor health.
@CrohnsColitisUK
Director of Services, Advocacy, and Evidence, Ruth Wakeman, had the following comment:
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23
135
285
You may have heard the Japanese Prime Minister has resigned due to health issues related to his Ulcerative Colitis. We wanted to reach out to let you know that this doesn’t mean employment with Ulcerative Colitis is not possible.
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It can be hard to talk about Crohn’s or Colitis. Sometimes, what we say isn’t exactly what we mean. Remember, not every disability is visible, and it can be hard to open up about their effects, even to loved ones 💜
#chronicillnesscommunity
#crohns
#colitis
#ibd
#invisibleillness
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107
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Thanks to
@allontheboard
for celebrating our 40th birthday like no other!
#ItTakesGuts
to board about
#Crohns
and
#Colitis
!
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"Any
#GP
starting their training from Sep 2018 will have to learn about
#Crohns
and
#Colitis
as part of their curriculum. That for me is the biggest long-term legacy so far”
Read how
@DrBarrettHVCCG
is leading the
#GPspotlight
project in our newsletter:
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Are you confused about how
#Crohns
and
#Colitis
impacts your risk of serious illness from
#coronavirus
#COVID19
? Our decision tree should help!
Download the full pdf version here:
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We're thrilled that
@NandosUK
and
@wagamama_uk
have announced they will support our
#NotEveryDisabilityisVisible
campaign by installing new accessible toilet signs!
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Sometimes, what can be seen on the outside isn’t the full picture. Not every disability is visible, but nonetheless, their effects can be life-changing.
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#CrohnsAndColitisAwarenessWeek
is here! Please RT to improve understanding of
#Crohns
Disease and Ulcerative
#Colitis
. They are the two main forms of Inflammatory Bowel Disease (
#IBD
) which affects 300,000 people in the UK and millions more worldwide
♡
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267
Retail giant
@marksandspencer
are rolling out our
#NotEveryDisabilityIsVisible
sign in all UK stores with accessible toilets.
Have you seen these signs in your local
#MandS
?
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Thanks,
@SarahGreenLD
for supporting our call to improve PIP for people with Crohn’s and Colitis. We look forward to working with the Minister
@VotePursglove
and his team on fluctuating conditions
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UPDATE: Coronavirus advice for people with Crohn’s and Colitis: Self-isolation and social distancing.
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It can be hard to talk about Crohn’s or Colitis. Sometimes, what we say isn’t exactly what we mean. Remember, not every disability is visible, and it can be hard to open up about their effects, even to loved ones 💜
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263
Congratulations to our 55 runners who took part in the
@brightonmarathon
today to support the fight against Crohn's Disease and Ulcerative Colitis!
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261
Our ambassador
@CarrieGrant1
describes being humiliated when using an accessible toilet at
@RoyalAlbertHall
#InvisibleIllness
#Crohns
#IBD
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Our deepest sympathy and thoughts go out to Seven's family. We have no words...
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253
Did you see
@HordleyJeff
(aka
#Emmerdale
'bad boy' Cain Dingle) talk about his
#Crohns
Disease on
#LooseWomen
today? 💜
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WE WON! We're the proud winners of a People's Choice Award from
@CharityFilm_
Awards! Thanks so much to you all for voting, and thanks to Sam, Aleesha and Neil for talking out about Crohn's and Colitis and making this video possible!
#ittakesguts
to live with these conditions 💪
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252
Stomas, scars and bloating are just some of the ways our bellies can be affected by Crohn’s or Colitis on the outside. But for some, the outside doesn’t always show what’s happening on the inside. Not every disability is visible, but all bellies are beautiful 💜
Art by Zappixart
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Did you see Amy Dowden, Lewis Moody and some of our amazing supporters in Amy's documentary this week? It was an incredibly powerful and honest portrayal of what it's like to live with Crohn's or Colitis.
Strictly Amy: Crohn's and Me is now on iPlayer:
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New legislation means people in England, Scotland and Wales can now request flexible working as soon as they start a new job. We know flexible working can be really important for people with Crohn's and Colitis, so we're pleased to see efforts to make employment more accessible💜
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The impact of
#Crohns
and
#Colitis
isn’t just physical.
That's why we're raising awareness of mental health this Crohn's and Colitis
#AwarenessWeek
.
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As
#WorldIBDday
draws to a close, stand with us and everyone affected by these devastating conditions - so that together, we can improve lives today and build a world free from
#Crohns
and
#Colitis
tomorrow...
#ItTakesGuts
0
159
245
Army vehicle mechanic Josh, who lives with Crohn's, is running 26 miles every day for 26 days, while carrying 26 pounds of weight! Josh is completing the unique challenge to raise awareness of Crohn's and money for Crohn's & Colitis UK. Thank you, Josh!💜
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"Whilst both men and women can have stomas, an increasing number of women in particular are fighting to raise awareness about life with a stoma bag in a bid to normalise it."
Featuring:
@hannahwitton
Harriet Williams
Jade Hughes
@GutlessGlamour
1
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238
It's
#worldIBDday
! RT to improve understanding of
#Crohns
Disease & Ulcerative
#Colitis
- the 2 main forms of
#IBD
, which affects 300,000 people in the UK & millions more worldwide.
Please help transform the lives of people with IBD:
💜 Text GUTS to 70500 to donate £5
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Frustrating to see this
@educationgovuk
. School attendance matters, but so does supporting children with chronic conditions. Not every tummy ache is mild. It could be something serious like Crohn's or Colitis. Many kids want to be in school, learning with their friends but can't.
14
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When you live with Crohn's or Colitis, fatigue can mean your body is already running low on energy even after sleep, and the simplest tasks can be totally exhausting. It's okay if you need to take breaks, take naps or need other adjustments to stay well 💜
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Thank you
@allontheboard
... We absolutely 💜 this!
#NotEveryDisabilityIsVisible
#ItTakesGuts
#Crohns
#Colitis
#IBD
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You may have seen that unfortunately Dynamo is in a flare-up. Which means out of respect, we are postponing our World IBD Day interview with him, "Illusions of invisible conditions", until he is back feeling well.
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Dynamo - getting the nation talking about Crohn's and Colitis
@BBCNews
@SkyNews
@MailOnline
@MetroUK
@DailyMirror
@Independent
@BuzzFeedUK
#Crohn
's
#MoonFaceForDynamo
#Dynamo
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#StrictlyComeDancing
finalist and Crohn’s & Colitis UK supporter
@dowden_amy
, spoke on
@BBCNews
this morning about managing her
#CrohnsDisease
and our exciting launch next week...
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230
Who 'gets it' in your life?
#Crohns
#Colitis
#IBD
#chronicillness
#ItTakesGuts
#NotEveryDisabilityIsVisible
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Sometimes living with an invisible condition like Crohn's or Colitis can feel like a lot to deal with. We all have good days and bad. That's why it's important to celebrate the small wins as well as the big milestones 💜
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We welcome
@HannahB4LiviMP
question to the Prime Minister today and we thank her, and her constituent
@stevensharp90
, for their work in supporting our campaign for the early diagnosis of Crohn’s and Colitis.
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