JAFA
@JAFAforkids
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JAFA is Juvenile Arthritis Foundation Australia. Juvenile arthritis is a painful auto-immune condition affecting over 6.000 kids & young people in Australia.
Joined March 2020
RT @DrJaneMunro: Health Report features 8 yo Nylah talking about her Juvenile Arthritis journey along with her dad. Prof Stephen Colagiuri….
abc.net.au
Covering the health stories that make a difference. Dr Norman Swan and Dr Preeya Alexander dissect the latest and breaking news in the medical world.
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Important support from peak bodies & health groups backing our campaign to reduce delays in diagnosing children with juvenile arthritis. Thanks to all who’ve signed our consensus statement including @PharmGuildAus @RACGP @MedicinesAus @PSA_National
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Children living with painful juvenile arthritis will benefit from a NSW gov’t budget investment of a record $6.9m in more specialist paediatric services. Thanks to @RyanPark_Keira for addressing this need and 2GB’s Chris O'Keefe for great support
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RT @adampeacock3: Incredible news, finally kids in NSW have access to services to help them through the pain of Juvenile Arthritis. Been a….
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Sincere thanks @Mark_Butler_MP & Dr Mike Freelander MP for announcing the first major federal gov’t investment in a national program to shorten delays in diagnosing juvenile arthritis. It’s vital to intervene early to prevent children from developing disabilities.
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Warmest congratulations on your engagement @AlboMP and Jodie Haydon from everyone in the JAFA Community. We enjoyed spending time with you at The Lodge in 2022 and wish you happiness in the years ahead.
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RT @adampeacock3: @JAFAforkids Huge day for the @JAFAforkids cause with findings of an Impact Study released at NSW Parliament House. It c….
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Our national IMPACT report has identified major inequality for children with juvenile arthritis who suffer pain & wait a year for diagnosis. Thanks to @RyanPark_Keira & @DrJoeMcGirrMP for launching the report & working for a better future for @JAFA kids
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Delays in juvenile arthritis diagnoses causing kids to live in pain
abc.net.au
Follow the latest news headlines from Australia's most trusted source. Read in-depth expert analysis and watch live coverage on ABC News.
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New AIHW report reveals up to 30k children & young adults in Australia live with juvenile arthritis, with a rise in hospitalisations and workforce shortages. More info: #JuvenileArthritis #JAFA @aihw @ArthritisAust @flipperm.
jafa.org.au
JAFA welcomes today’s release of the AIHW’s latest report on the status of juvenile idiopathic arthritis indicating that up to 30,000 children and young people in Australia aged 0-24 are living with...
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Met with NSW Health Minister Ryan Park discussing the shortage of paediatric rheumatology professionals. He's looking into the consumer-focused issues & seeking solutions. Encouraged by the positive dialogue More updates soon. Thanks Minister Park! @ryanpark_keira @adampeacock3
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#JAFA grateful for $800K federal funds for 2023-24. Focused on boosting awareness and early diagnosis of childhood arthritis & rheumatic diseases. Aiming to lessen pain & disability. @gedkearney Dr Mike Freelander @adampeacock3 @DrJaneMunro.
jafa.org.au
JAFA welcomes the inclusion of $800,000 in the 2023-24 federal budget to undertake work on awareness and health professional education with a focus on reducing delays in diagnosis.
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📣 In #Tasmania: No paediatric rheumatologist = costly trips to Melbourne. JAFA founders Ruth and Stephen Colagiuri with @polley_helen &.@janiefinlay (📷 Apr 28) advocate for better care for kids with arthritis & rheumatic diseases 📷#ArthritisAwareness #JAFA
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Great work raising awareness about your daughters' juvenile arthritis @adampeacock3 and @MichaelChammas. And thanks for spreading the word about what JAFA is trying to do for these kids.
The suffering and pain these kids go through is unimaginable. Thanks @WestsTigers this is something that means so much to both Adam and I with what our daughters have gone through 💛💛.
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Wow!! Big news for kids and families living with juvenile arthritis. Thanks to everyone at @WestsTigers .#juvenilearthritis. #jafa #juvenilearthritisweek .
weststigers.com.au
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RT @adampeacock3: Nylah (middle) couldn’t make it this morning to Canberra but caught up with some friends and their siblings on the weeken….
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Thanks to MPs @gedkearney, @Louise_Pratt, Dr Mike Freelander, @polley_helen, Anne Webster and @JAFAforkids families for supporting the launch of the 1st national registry to build vital data to help Aussie kids with #juvenilearthritis. #jafa #juvenilearthritisweek
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RT @DrJaneMunro: Celebrating Australia's first .Juvenile Arthrtis Week (JAW) at Birrarung Marr with Victorian kids & teens who have Juvenil….
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