A few months ago I was asked by a journal to review a case report on #FND disguised as angioedema. I explained to the authors that angioedema is NEVER FND and that they should learn about allergies and mast cell activation syndrome (MCAS). The patient was so sick, they ended up

Join Dysautonomia International on December 10th from 7:00-8:00PM Eastern for a free webinar with Dr. Amanda Miller to discuss her new research findings on using the Lumia device to track blood flow to the head in #dysautonomia. Register here: https://t.co/r1A4Gg3yIa

📢New Research Identifies Potential Biomarkers for Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD)! 🩸A recent study funded by The Ehlers-Danlos Society, and published in the American Journal of Medical Genetics, has identified

The #DysConf2024 lecture recordings are now available! You can register to view 25 recorded sessions from the leading dysautonomia experts for $25 at https://t.co/gcJk5U3257.

‘.. people are often struggling to function and ‘keep going’ most often in flux and dependant on many factors. This complex picture keeps people gauging what to do, when and how to do it whenever a headache presents, often learning from trial and error.’@NatMigraineCtr So true!

Therapeutic relationships are key ..suggestions cause beliefs which affect outcomes ..discover how to avoid words that hurt & find words that help. Learn skills to calm your patients & yourself #CPD #MedEd #MedTwitter @barnes_johnson @OneLongPlait @katejchartres @GNielsen_Physio

New research finds that COVID infects & significantly damages sensory and autonomic neurons before the virus infects the blood. Let's discuss... 🧵👇

He just wanted to help his mother. ❤️ 😂

Exciting new @BSMSMedSchool brain-body research. Role of #proprioception and #hypermobility in #emotions in #neurodivergence published by @royalsociety. News item here: https://t.co/LXd9LRdQ23. Full paper: https://t.co/WrgtkgzdZG Thanks @LisaQuadt @DrSFink and @CritchleyHugo and

Following our lively discussion on #stress and mind-body connection when it comes to #POTS or #LongCovid, here is my take on stress and some pointers to other physicians dealing with complex patients: #MedTwitter #NeuroTwitter ✔️ Stress is an important trigger for any chronic

Hypermobile Ehlers-Danlos syndrome (hEDS) is a connective tissue disorder whose genetic cause has been difficult to identify. Researchers at the Norris Lab conducted a study looking for genetic links to hEDS by sequencing the DNA of families and individuals with hEDS. They

My paper on #POTS as a CNS disorder explores how neuroinflammation at the dorsal medulla may be one of the key mechanisms in POTS. https://t.co/01MgnENXWC

Today is a huge win for our field: #POTS, #MCAS and #MECFS are listed as pathophysiologic mechanisms of #LongCovid in the @theNASEM report on Long Covid definition. Many people and organizations worked tirelessly to make this happen, not only since the pandemic, but for decades

EXCITING NEWS! Researchers at Medical University of South Carolina have identified kallikrein genetic variants in about 1/3 of individuals with hypermobile Ehlers-Danlos syndrome. A thread... 🧵👇

What should we do to influence large groups of people to change their behaviour? The most comprehensive synthesis of studies on behaviour change ever undertaken has been published & offers some clear steers: 1) For behaviour change at an individual level: - giving accurate

Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system. Many people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) also have a type of dysautonomia. There are different types of dysautonomia

A wonderful meeting with great colleagues. If you want to join our GPwER in Headache group, sign up to be a BASH member on our new website. https://t.co/jVT06nQsMs #migraine #headache

Thank you to the fantastic Dr Phil Holland for hosting the BASH GP group today 🩺 We started the day with an excellent talk from Phil on advances in migraine biology 🧠 & were treated to a fascinating tour of the lab 🔬Thank you to the team @WolfsonSPaRC for showing us around!

'Are You Choking? Throat Problems and Care in #EhlersDanlosSyndrome and #Hypermobility' with Professor Martin Birchall - Now available to watch on YouTube: https://t.co/FGpCwHxdqh #WorldVoiceDay ⁠

In this Penn State case report, doctors describe significant improvement in chronic pain and the ability to function after immunotherapy in a patient diagnosed with hypermobile EDS, POTS, MCAS, gastroparesis, CRPS, small fiber neuropathy and fibromyalgia. https://t.co/OY9LVCkrkL