ally (they/she)
@allyislearning
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PhD candidate researching neurodivergence & grief 🧠 promoting neuroinclusivity in grief support & palliative care 💜 all views are my own | boldly going 🖖
Joined January 2021
EDS UK's Guy’s (our IT & Digital manager) is taking a leap on Friday 13th September for #EhlersDanlosSyndrome & doing a charity skydive! Guy is hoping to raise £1313 and is at 95% of his target - can you help him reach it? Donate here! https://t.co/n0SztRqgfH
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Learn Julia at your own pace! Watch the video to explore its syntax, data structures & features like multiple dispatch. No prior experience needed! https://t.co/BpHtDLj3dj
#julialang #programming #juliacon
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🌟🌟📢📢New autism affirming study informed by the #autistic community. We are looking for young Autistic people aged 14-21 years who have #AnorexiaNervosa and have experienced family based therapy/treatment - For more info scan QR or click here https://t.co/kDCxnnYDHs.
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Co-production of palliative and end-of-life-care research with people with lived experience of homelessness needs to be transparent, prioritise building rapport, be trauma-informed and person-centred. #hpm #hapc #research
https://t.co/bYVfONrJvw
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Our new paper @AutismAdulthood found much consensus against normalization & for well-being, societal reform & supportive environments in autism community: findings were robust to closeness to autistics w/ intellectual disabilities & nonspeaking autistics.
liebertpub.com
Background: Controversy regarding the neurodiversity movement (NDM), the social and medical models of disability, autism intervention goals, and causal attributions of disability contributes to...
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📢☝️ We've just published our Better End of Life Report 2024 Watch Professor @kesleeman King's College London outline key findings⬇️ 🟡access to high-quality palliative and end of life care is patchy, inconsistent, and inequitable. 🟡But better care is possible. Help make a
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Financial insecurity can significantly impact adherence to treatment plans and can cause undue distress. #hpm #hapc #palliativecare
https://t.co/09wrM0CnI6
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Join us live for #SeizureFirstAid Training and Certification this month! Knowing how to help during a seizure can save a life. Learn how to recognize seizures and provide the right care when it matters most. Register: https://t.co/UJR0QiI0VI
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Last year @ScotGov launched a consultation on a proposed Learning Disabilities, Autism and Neurodivergence Bill. Find out what people told us in the independent consultation report➡️ https://t.co/4Qv6TSGYDh
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Have your responded to the call for views on Holyrood assisted suicide plans yet? It closes this Friday, 16 August. 📝 More details here: https://t.co/OAioEp7RdH
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The Scottish Parliament's Health, Social Care and Sport Committee is consulting on assisted suicide legislation. You can share your views by filling in a short form, or a more detailed response, at the page below. 📝 Respond by 16 August: https://t.co/OAioEp7RdH
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Delirium is common as people approach end of life. We have created a short video for families/carers outlining what to do if the person they care for develops delirium: @EdinUniHealth Funded by @MarieCurieEOLC
https://t.co/rqwbZTCEl8
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Preserve Summerhall as a Cultural Hub in Edinburgh - Sign the Petition! https://t.co/DSORD0Cwv8 via @UKChange
change.org
Preserve Summerhall as a Cultural Hub in Edinburgh
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"I'm being asked to vote for someone who thinks there's something wrong with me, not because of any views I hold but simply because of who I am. I will not do that." Greens MSP @Ross_Greer sets out why his party opposes the appointment of Kate Forbes as deputy first minister.
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We are excited to share our new publication based on our work on suicide in Scottish prisons, jointly first-authored by the three research fellows @AwSHuques Rebecca Helman and @JoeAnde11548713, with @DrAmyChandler. It is open access & free to read! https://t.co/euI9iRCNsg
journals.sagepub.com
Rates of suicides are on the rise in Scottish prisons. Fatal Accident and Sudden Deaths Inquiries (FAIs) carried out by sheriffs following these deaths provide ...
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Our article is in the latest issue of IJDD: https://t.co/TbsrNFnneu We report that people with intellectual disabilities give the same reasons for hurting themselves as everyone else. Seems obvious, but we currently don't respond as if this is the case. Time for a change.
tandfonline.com
Emotional distress has received less attention as an explanatory factor for self-injury in people with intellectual disabilities, with research and practice primarily focusing on biobehavioural fac...
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Please help take part in this research by MSc students @EdinburghUni. #camouflaging #identity #Autism here is the link - https://t.co/9wb6AVuii8
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I am so angered by the Cass Review. It is not only incredibly flawed but actually harmful. Read Cal Horton's brilliant article for a deep dive into the issues #ProtectTransKids
tandfonline.com
Since 2016 trans people in the UK, and particularly trans children, have experienced a sustained and escalating campaign to roll back trans freedoms, rights and access to healthcare. A series of l...
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