Katy Styles
@WillowKaty
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#UnpaidCarer to @markrstyles who lives with Kennedy's Disease #MND Created @WeAreCarers Campaign to #ValueCarers
Canterbury, Kent
Joined October 2013
What did I spend my £64.60 Carers Allowance on this week? I spent £76 on my train travel to a London hospital to discuss the complex eye surgery I need. It didn't even cover it. Is it any wonder carers neglect their own health and wellbeing #ValueCarers
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My daughter and I attended #CarersParliament yesterday, determined to make our voices heard during the Q&A sessions. This past year has been incredibly tough because of the challenges surrounding my youngest daughter Freya’s care package and the ongoing shortage of trained staff
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i can really relate to this "Scholes stopped commentary work to care for son"
bbc.co.uk
Former Manchester United midfielder Paul Scholes says he stopped doing commentary work to fit his schedule around the routine of his autistic son.
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Do you live in Northumberland and have had to battle to get your child an education? Have you had to appeal or go to tribunal? Is your child currently not receiving the education they need? Please drop me a message with your story. DMs open ❤️❤️❤️
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📕 “Urgently invest an additional £1.5 billion in breaks & respite services in England (🎯with consequential funding for Devolved Nations) & legislate so that carers have a statutory right, to regular & meaningful breaks.⚖️ ➕Baroness Casey recs are implemented swiftly & in full
It’s time to unite behind this vision – not only to improve the lives of millions of carers, but to protect the future of the health and care systems in the UK. You can read the full report here
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Have Your Say on the Future Dementia Action Plan for Wales Welsh Government is developing a new Dementia Action Plan for Wales, and we want to make sure the voices of people in Cardiff and the Vale of Glamorgan are heard. The plan will shape how services and support are
forms.office.com
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This autumn, warmth feels like a luxury. But community can be a kind of warmth too — and that’s something we can share. 💬 Tell us: What’s one small thing that helps you feel cared for right now? 2/2
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Autumn always brings rising prices but for unpaid carers, every penny already counts. When you’re running on empty, a higher heating bill can mean difficult choices. Carers deserve more than warm words. We deserve a system that doesn’t rely on our struggle. 🧵1/2
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3 days to go! Join us on 22 October for the launch of WHO’s new course empowering informal caregivers. #CareForCarers #CareWork 👉 Register now: https://t.co/fTHdbkCJyJ
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Fantastic news. So well deserved Carolynne!
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Yesterday, I joined a cross-party call urging the government to take decisive action in support of Hugh’s Law, a proposed change to provide parents of seriously ill children with support from day one.
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🧵We’re pleased that, following our amendment tabled by @AlisonEBennett, the Government will amend the Mental Health Act Code of Practice. This means hospitals must take steps to identify children whose parents are detained and make sure young carers are linked to support
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Here I am, travelling to London! I’ve been shortlisted for a #nationalaward with @CarersUK for #campaigner of the Year. I shared my #energybill on this platform #Twitter on 3rd March 2022. This was the start of the #Ofgem #energypricecap rise. At this time my bills and many
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"When we say we're drowning, throw the damn lifeboat"
Lately, I’ve been feeling like I’m speaking a different language to all the non-carer people in my life, any #unpaidcarers relate? https://t.co/YhDkAh9M75
@Siobhan_ODwyer @WillowKaty @CarersUK @CarersTrust
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Do join me and the brilliant @RachelCDailey for a chat about disability rights at the @ConwayHall on Wednesday night. Lots of tickets available! It’ll be a good laugh, I hope as well as interesting. https://t.co/cXJsus2Wrt
conwayhall.org.uk
For much of history, people with learning disabilities have been regarded as unworthy of interest - often seen as a threat to the social order and sometimes dismissed as barely human. While recent...
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‘Frightened to get out of their cars’: Britain’s toxic race debates threaten overseas care workers https://t.co/dLs6PNo6RV?
theguardian.com
Staff are being advised to travel in mixed groups and carry panic alarms as incidents of intimidation spread
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This week’s Memory Matters Weekly is live. Three dementia research stories: • Creative experiences may delay brain aging • Nanotech reversed Alzheimer’s in mice • A new trial centring dignity in advance care planning Read the full issue here: https://t.co/JUHbhHAnI3
dementiawho.com
Memory Matters Weekly #5 - Creative experiences may help delay brain ageing, new nanotech shows promise for reversing Alzheimer’s in mice, and a dementia care trial aims to make advance care planning...
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From a carer who signed our #Protestfromhome petition 💔 Read the full article: https://t.co/Mi7FyTWD1Q
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*New Blog Post* What happens after the caring ends? People talk a lot about support during caregiving. But what about the moment after, when everything goes quiet? That's the question that I was asked that led to this blog, read more below⬇️ https://t.co/IRoxyKBgZm
dementiawho.com
There is no post caregiving support pathway. It is a gap you have to cross by yourself.
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Finally here, arrived late, feeling not great but couldn't miss the chance to attend #unpaidcarers conference just in time to hear @Mikeo56977865 & Jo wolith opening speeches #CAVCA25
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