Do you suffer with bowel accidents & scleroderma? Tell us how living with bowel accidents affects you & what support you received, to help future research! Complete the survey: https://t.co/erjSsQ0kNq @NCAresearchNHS @WeAreSRUK @alessia_alunno @delgaldoFrances @Worldsclerofnd

🚨Patients with Systemic Sclerosis ('Scleroderma') survey alert🚨 Complete our anonymous questionnaire on faecal incontinence symptoms to influence the future of research here! https://t.co/erjSsQ0kNq @Worldsclerofnd @WeAreSRUK @delgaldoFrances @NCAresearchNHS @alessia_alunno

📢 Participate in the @Worldsclerofnd Very Early Diagnosis of Systemic Sclerosis (VEDOSS) Survey! Your insights will: ✔️ Identify key challenges ✔️ Highlight unmet needs ✔️ Shape future education & research 🔗 https://t.co/gkNsTZ3Pos

So exciting all my fundraising merchandise has arrived, for my first London Marathon 💚 🇬🇧 for @WeAreSRUK Time to make a difference💙 #scleroderma #raynauds donate below or share if you can 🙏🏻 💪🏻 https://t.co/nm6jJRnTcu

Excellent work from our group with help from colleagues in Leeds and Santiago, Chile

🚨Patients with systemic sclerosis survey alert 🚨 Questionnaire on ORAL HEALTH 👄 needs of people with systemic sclerosis (on behalf of the SCTC Orofacial in SSc Working Group) https://t.co/DRzE0uuPT7 @WeAreSRUK @Worldsclerofnd @EUSTAR_org @delgaldoFrances @alessia_alunno

Our Head of Research, Ula is at @eular_org in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement & more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come. #EULAR2025 #SystemicSclerosis #Scleroderma

Great to lead hybrid digital ulcer consensus meeting yesterday @OfficialUoM. Expert panel (including remote colleagues in Italy and Australia) discussing and assessing photographs to provide training data for machine learning/AI. @NCAresearchNHS

SURVEY! Seeking clinicians perspectives on oral drug treatment for SSc Raynaud's. Important Discrete Choice Experiment on how clinicians choose treatment (Dr Michael Hughes and @sclerodermaUM). https://t.co/zFvQWJD9Bx @WeAreSRUK @Worldsclerofnd @EUSTAR_org @alessia_alunno

Just published in Microvascular Research: "Imaging the microvasculature using nailfold capillaroscopy in patients with Corona virus disease-2019; a cross-sectional study". Free access to our paper until April 17th 2025: https://t.co/pRHtljfYXu @NCAresearchNHS

JOB ALERT! Our group is recruiting for a part-time (0.5FTE) research assistant to work on an exciting international study of digital ulcers in systemic sclerosis. https://t.co/sTjJmES6Ri @WeAreSRUK @VersusArthritis @Worldsclerofnd @EUSTAR_org @NCAresearchNHS

NEW SURVEY for patients with systemic sclerosis (scleroderma) on the role of environmental and occupational factors in SSc. https://t.co/4lN2gmvVJ1 @WeAreSRUK @Worldsclerofnd @VersusArthritis @alessia_alunno @delgaldoFrances @eular_org @FarrSue01 @NCAresearchNHS @RheumatologyUK

National survey explores rheumatologists’ awareness, approaches to diagnosis & management, & training needs within systemic sclerosis Dr Michael Hughes from @salfordco_nhs is the senior author on this @wearesruk survey https://t.co/KC1DKia7gw @SclerodermaM

This study particularly needs females aged 52-59 currently - the research appointment @salfordco_nhs only takes an hour and could help to improve care for people with systemic sclerosis (we're looking for people without the condition)

🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today! Key updates include interstitial lung disease, pulmonary hypertension, and more. Read more: https://t.co/3GtPcPJu5A @WeAreSRUK

Great to see this work published - contributors include Drs Nuala O'Donoghue, Michael Hughes & Muditha Samaranayaka from @salfordco_nhs @SclerodermaM. Salford Royal is a referral centre for patients with #SystemicSclerosis & many of our patients have taken part in research.

Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar. On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises. Sign up now! https://t.co/xT3alhjQsF

NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: https://t.co/qyOjCNiyfb

Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment, and transforming #scleroderma care: Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🤝

We have really enjoyed hosting Dr Masrurul Haque, a Scleroderma Clinical Trials Consortium-funded visiting fellow from Bangladesh at Salford Royal over the last month. We send him home with our best wishes. @NCAresearchNHS @NCAlliance_NHS