Disabled Trash Witch♿
@StinkRatsCharms
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Disabled & loud. TBI, MS, Bipolar. Fiber friend, crafter, & occasional variety streamer on Twitch. Community Art Show Host. Queer. TTRPG lover. She/they. Love!
Joined June 2017
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Hi y'all!
I'm Alex, your disabled ghoulish grandmother pal! I talk a lot about games, art, crafts, MS, TBI, mental health, and chronic illness in general
I occasionally stream on Twitch and hope to re-start my Community Art Shows soon!
Let's be fiendish friends everywhere!💜
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I'm crying
Now you're crying
We are all crying
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Someone I haven't talked to in forever just messaged me like oh my god why are you on chemo. I explained that I have pretty aggressive MS and chemo is a last line treatment
They asked me if I tried changing my fucking diet first. Maybe it's just all the meds Im on, but Im PISSED
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Genocide Joe is using your tax dollars to fund bombs rather than programs that allow life to flourish
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I promise I wanted to be done because this shit is exhausting, but this is the literal advice my "hey you live with MS" magazine gave me today. How timely
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Actually it's probably not the meds because THAT IS SUCH AN OFFENSIVE THING TO SAY ARE YOU KIDDING ME
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Institutionalization does not provide "dedicated support" and can be incredibly fucking traumatic. This is a really awful take that highlights a deep misunderstanding of what psych hospitals do
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I wish I could understand why leftists are like you're a bad person if you use Uber or buy certain brands, but they're also like stop bothering me about eating indoors because I need to live. The only answer I can come up with is one requires them to do something they don't wanna
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Hi wheel chair user here who can cross their legs because that is a common super thing! I can even stand to get stuff off shelves! It's a miracle I tell you!
Ambulatory wheelchair users exist. Stop making us afraid you're going to scream faker at us in public you weirdos
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If you are protesting, wear a mask! Kn95/n95/p100. Don't disable or kill your comrades. Don't harm one vulnerable group while fighting for another. Disease is used as a tool by the oppressor, and cops sure as fuck don't mask. You're better than that
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I called the cancer infusion center with my sweetest voice today and said I saw the CDC director recommended masking because of all the respiratory infections going around and was informed that hospital policy "hasn't changed quite yet" and staff still treats patients unmasked
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If I posted a maskless group photo and someone was like hey, I'm disappointed/pissed that you did that, I'd be like yeah fair. If I got COVID and someone went through my social media to supposedly pinpoint WHY I got COVID, I'd want to send them an envelope full of glitter because
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Are other high risk folks feeling like they don't have an appropriate place to process their ongoing anger? I can't talk to most folks about it, and I'm honestly afraid of offending my therapist if I just pop off about the world since she's out there living like most people
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I'm not a pacifist, but I do think a lot of leftists who talk about punching nazis but won't wear masks are less interested in protecting their communities and more interested in trying to be glorified as a hero or something
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Anyone who tells you that you need a "valid reason" or a "creative backstory" for why your character is disabled and demands to know why you wouldn't be healed or "fixed" is just a shitty DM
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I do wonder if kids/teens/young adults will have a wtf realization many years later about how their caregivers should have better protected them from COVID. Like I don't hate my parents for smoking literally everywhere inside with me, but I am like wtf were y'all doing sometimes
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I'm seeing a lot of "why aren't immunocompromised people nicer" tweets, and it's like
Plenty of us were, and continue to be, nice and are completely ignored
You try having your safety ignored for years and see if you're not just a little pissed off
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Y'all I'm watching COVID conscious and immunocompromised mutuals absolutely fucking breaking right now from having to take such high levels of precaution alone
The least you can do here is start shouldering some of that burden and make things a little safer
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I love seeing posts by doctors who say they can connect better with their patients without masks on
Y'all I went to the doctor before 2020. Most doctors are SHIT at connecting with their patients, and the ones who connect well did so just fine in masks. They're lying
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If masking becomes even more difficult for disabled folks in the near future, it's not because of the protesters. It's because of all of you with no access barriers who chose not to mask, not to normalize masking, and not to normalize caring about disabled folks. It's on you
All those protesters who had their masks forcibly ripped off by the police? A lot of you contributed to that because you normalized being anti-mask while the pandemic is ongoing.
Disability justice is intertwined & part of all liberation movements including Palestine, Sudan, etc
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Every time I see somehow say they got COVID despite being vaxxed with Novavax my heart breaks. If they got Nova they've probably tried hard to keep up with a whirlwind of info, and some folks making huge claims about Nova probably made them feel more protected than they are
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If you're chronically ill and doing your best, know that that's enough
I've absolutely hit the "I can't do this anymore" phase of chronic illness, so I figured at least a few of y'all could also use the reminder that whatever your best looks like right now is just fine
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RE: the gym- do NOT go to the gym for like 6 weeks min if you get COVID. You could do permanent damage! I went from multiple work outs a day to missing almost an entire year of school because I was bed bound after a dual viral infection, and my health has never been the same
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If you're still wearing a mask in public spaces, I think you're pretty neat! If you've stopped, you can start again right now💜
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You trust your immune system? I trusted mine, and it decided to literally start eating my spinal cord and brain for FUN so maybe don't do that??
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Just because you dismissed or misused terms like fatigue, brain fog, or migraine when you were able bodied does not mean you suddenly need a "stronger" word when you begin actually experiencing these symptoms yourself- it means you probably have some ableism to work on
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If my partner wrote an article like this and I had the ability to (many disabled/chronically ill folks don't!) I would leave. This is a whole bunch of horrible wrapped up in a pretending to understand your ill partner package. Trying to make "I wish we could endanger
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If you think a mobility device could help you and you have access to one, you ARE allowed to use it. I don't care how old you are. I don't care if your symptoms don't fit whatever you think the typical need for a device is. If it improves your quality of life, then hell yeah
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This is why you should mask in public even if you feel fine
An unmasked, asymptomatic Covid positive person unknowingly can make an immunocompromised person seriously sick.
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I've never seen a COVID conscious person say that avoiding COVID is JUST for the vulnerable. We are saying everyone should avoid it AND folks should care about vulnerable people. The CDC has said that only the vulnerable need to avoid it, and we've said that's incorrect...
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I think one of the more frustrating things about being immunocompromised right now is that no one wants to understand that if everyone was taking layered precautions- masking, HEPA, skipping risky and unmasked activities- we might be able to have semi safe lives
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It's funny how doctors come on this app and say things like if you're rude it's going in your chart with zero reflection on what that means for patients and also say things like I'm just a poor lil doctor with no ability to withhold care and wonder why people are like wtf
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Expecting people to mask, especially at large events, especially at events concerning disabled folks, isn't expecting perfection. It's expecting literally the bare minimum. The bar is buried underground at this point
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I'm about to fucking sob. "Keeping the March safe and accessible for ALL is one of our core values" along with clear masking guidance and acknowledging it can be transmitted outdoors. Fucking amazing! This gives me so much hope
Since we're talking about it, a reminder about our mask policies! (1/2)
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Hey, if you're still masking in public and during social events with folks outside your immediate household or you decide today to start doing that, I think you're really fucking neat 💜
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This pandemic has just so dramatically altered my view of human beings as a whole. I'm having so much trouble grasping how I'm going to navigate the rest of my life given *gestures broadly*
If you're also feeling overwhelmed, you're definitely not alone💜
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It's so weird being disabled and being like hey will you please treat me like a human being and people going lol no thanks I'd rather not
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It's fucking incredible what nondisabled folks think exists. This is not A Thing most places, especially for food when you need it. When you do contact services, they often say sorry we don't do that. This is so out of touch with what disabled folks experience
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All of this. I'd add wear plain, unidentifiable clothing. All of your awesome buttons and patches and pins make you unique and more recognizable. A kn95/n95 mask is one wonderful way to cover your face and protect your comrades
‼️Protest Tips‼️
Cover your face
Cover arms/legs
Don't take pictures/record/post
Turn your phone off at home, if possible don't turn it on again till you are home
Bring water & light snacks
Write the number for local legal aid on your inner arm near the elbow
Don't Separate
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There will be many changes if COVID is declared no longer an emergency. I know most people are acting like it's over, but this is going to shift attitudes in a way that further ostracizes immunocompromised folks while also lowering the chances that we get an Evusheld replacement
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I really hate reading tweets about how at risk people's partners aren't taking precautions/are putting them in dangerous situations/are actively leaving them behind. It's awful just how little even those close to at risk folks value them as people. That's not new, but it sucks
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The eugenics vibes aside, are people who are describing their utopia as (somehow??) free of disability also envisioning a life free of aging (magically?). Like are we all just spry and then suddenly croaking one day? Or do they forget old people exist? I'm honestly lost
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We've been trying to tell folks for years that there's little to no support for disabled people. Seeing all these newly disabled folks with Long COVID asking why no one cares is both heart breaking and frustrating. Please learn from the community that's been here before you were
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I try really hard to be a sympathetic person, but when I see multiple Facebook posts about the anniversary of not being able to eat INSIDE a restaurant for a little while years ago I'm like for real? I still have to quarantine in my home because of yall, but alrighty.
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If you weren't masking at cons before but are now, what did it? Call ins of large platforms? Seeing disabled folks online? One on one chats?
I'm so fucking disappointed by the folks I'm seeing not masking, and I want to know what actually changes people's minds
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Skip the holiday gathering, y'all, I am begging you. Especially if you or anyone attending isn't taking any precautions in your everyday life
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A small Christmas gathering of 7-10 people means a 25% chance someone has infectious COVID
20 people = 50% chance
Flight or restaurant with 100 people = 97% chance someone has infectious COVID
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Cops unmasking protesters is so fucked. Even if the cop doesn't think COVID is real, they know the protester does so it will incite fear and cause harm. They want that. If the cop thinks it's only to avoid surveillance, they're trying to get them doxxed and cause harm. Awful
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Because I haven't reminded you for a few days, you should be wearing a high quality mask (kn95, n95, p100) in all public spaces. If you're not, you are contributing to making the world inaccessible to disabled folks. Those folks you see not masking do not care about accessibility
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I get that folks maybe have some unresolved trauma from a new virus sweeping in and a time of not knowing/big change, but there were no fucking lock downs in the US and most of y'all abandoned any precaution (NOT a lock down btw) the moment you felt unaffected. Some of y'all
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Yes, I will be asking them to mask BUT I SHOULD NOT HAVE TO. Also the cancer center is one big open area with curtains so there's lots of shared air soooo
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No engagement for blue checks, but I cannot emphasize this enough- fuck you. If anyone says anything like this in my presence, I will lose my shit on them. Wildly inaccurate, wildly cruel. Do not ever do this shit.
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Holy shit it is unfortunate that public health has failed so badly that people think they got COVID by sharing an instrument and not by sharing the air because COVID is indeed airborne
Here's a reminder that being 6 feet apart is NOT enough for airborne illness. It's like smoke
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If you're looking for a way to improve the world right now, wearing a high quality mask (kn95/n95/p100) in public is something you can do that has an immediate impact. If you need help finding respirators, I will do whatever I can to help you figure that out
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People who won't take COVID seriously have been stealing my joy for years, and I'm over it. I'm done being so worried for and heartbroken by y'all. I don't know what this looks like- cutting folks off, viewing the world differently- not sure. But I've been crushed long enough.
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Like the moment they feel personally inconvenienced in a way they can be held accountable for, it's suddenly the governments job and the governments job alone. But the rest of the time we fight the man? No one is 100% consistent but this one baffles me
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I think I've maybe nailed down what bothers me so much about seeing high profile disabled folks ditch masks/modeling pandemic behavior. Even if an event is Davos Safe, we need to be working to get more people masking. Ditching masks isn't the way to do that. We end up with a
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It really fucks me up how many people are just okay going maskless to large events and then potentially exposing every person they come into contact with outside the event. Just not even trying to protect folks in any meaningful way
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Leana Wen is awful and has done irreparable harm, but don't talk about how she deserves this or how karma has come or anything like that like I'm seeing
Illness is NOT a fucking punishment. Framing it like that is ableist as fuck and really hurts disabled people
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@theLUCASTDS
My point is it's the only option a lot of folks have regardless of their income, and it's literally what programs for very serious diseases will tell you to do, so people should stop pretending disabled folks have any good options and let them be if they're not going to help
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I'm safe, but I'm getting to the point where I feel like I just can't anymore. The real possibility that I might never be able to leave my house like normal as the world becomes increasingly more desensitized to disabled deaths is a lot to just fucking sit with
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I don't know how y'all are okay with this and your contribution to it
Thousands of people dying due to COVID weekly and people are just rolling with it.
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I wish folks who don't mask for recreational activities but do in essential areas would stop acting like they're doing us a huge favor by relegating us to a category of people who only deserve access to the absolute bare basics. Appreciate folks who mask, but weird takes lately
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We've talked a lot today about how there are many useful revolutionary skills, and if you have them great. If you are unable to have/learn/perform any skill folks deem important, you're still worthy of having around. Not everyone needs to be "useful" or particularly skilled
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To me that's weird behavior. You can both be frustrated that people who take zero precautions are all Pikachu face when they get sick and also think it's fucking weird to ask a million precaution questions and scour social media when someone says they're sick so you can be like
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I know folks don't know me, but I am an example of someone who the social model of disability or the end of capitalism does not totally cover. No amount of accommodation will make me able to shower daily or cook for myself or leave my home more than a few times a month (if that
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That person talking about queer pleasure and joy and yelling at disabled people has never listened to a COVID conscious poly person who wants to date but has been crushed because our queer community as a whole gives so few fucks about vulnerable people in regards to COVID
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Took me way too long fully realize that someone was not actually interested in discussing COVID safety but instead wanted to be reassured they were a still a good person, but I got there
Next time someone asks me to chat COVID safety w/them, I'm going to see what portion
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Gotta tell ya, things being bad enough that even the CDC director is telling folks to mask right before I'm in a hospital environment for 8-10 hours a day 5 days in a row getting chemo to wipe out my immune system does not feel good. Starting on Monday, so it's coming quick
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Friends I gotta tell you, the "I'm obviously not talking about disabled people/people who can't bathe" comments after you say how gross people are do not look good the way you think they do. Well obviously I'm not talking about you rarely hits well
Hey the talk about hygiene on the timeline is kinda making me feel some type of way again. Some of us can’t shower every day and that’s really okay. I actually smell good and I’m not gross.
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Didn't Walensky make almost this exact tweet and then disappear for weeks because COVID isn't mild and isn't a thing people should work through? Bernie should be ashamed for parroting these dangerous, inaccurate, and anti-worker talking points
I have tested positive for Covid. My symptoms are minimal and I will continue to work from home in Vermont while isolating in accordance with CDC guidance. I am glad to be fully up to date with the vaccine.
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The mask bans happening on campuses are obviously bad. This is a genuine question- given that folks who mask are the minority, the race to "normal" is working against us, and many of us are pretty ill what do we need to plan/do to ensure we are protecting our right to mask in all
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I saw this too. Y'all, what people need extra to cover basic necessities is about what a lot of disabled folks, myself included, make in an entire YEAR. That's what the average person needs *extra*. Shit is so broken for everyone. It's wild
There's an article going around saying Americans need $11,000 more because of price hikes everywhere.
Literally $11k would solve every problem I have right now. No wonder it feels like I'm drowning. I have never in my life been paid so much only to be so financially burdened. 😠
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Be gay, do crime, and wear a fucking mask all month and every month
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Folks like this do understand, they just don't like the answer because yes, you should care enough about vulnerable populations being disproportionately affected to mask as long as it takes. You know better now so you should do better. Y'all just don't want to
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If you're not taking COVID precautions, you're actively oppressing disabled people. You might as well be littering wheelchair ramps with d4s. Many of us can't risk our equipment on that. Those that do/have to risk it do so at heightened risk added by YOU. Lots of us will have our
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I've had so many folks tell me how terrified they'd be if they had MS (thanks?) which often manifests approx 10 years after exposure to a virus. So it's weird that they're not at all concerned with a novel virus that is *already* showing long term damage a few years in like...
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WHY would you testify before the senate to advocate for Long COVID without a fucking mask on. Stopping transmission and infection accumulation is vital, and modeling good behavior is so important
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I know it's probably just actually people with not great takes, but the door dash shit seems to escalate each time and a small part of me is like is this on purpose because it truly does get more wild each time
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Disabled folks aren't just upset about COVID injustice- they're upset about your direct contribution to it. Many of us can't get married, but we don't get mad at folks for marrying the person they love. We want the same option, but we also know that you getting married doesn't 1/
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I wasn't going to add to the "disabled people don't belong in fantasy" discourse, but if you dropped masking bc you don't want to and still attend cons/restaurants/large events, I'm not interested in your opinion on the matter bc you won't let disabled folks into real life spaces
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I really feel for immunocompromised kids (and their families) who are old enough to understand that people COULD be doing things to help protect them but just aren't. I'm old and probably have more coping strategies, and I struggle with ableism being so widely accepted as okay
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Here's the Chemo Day 1 Thread where I'll try to contain any chemo related updates💜
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Okay, so with a lot of help I've filled out an ADA request form for staff to mask, to have a private room, to be allowed to go outside should I need to unmask for any reason, for HEPA, and to open a window should CO2 rise about 800ppm. Let's hope short notice doesn't matter🤞
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Can you imagine being a leftist and saying well that ship has sailed on the government helping us on ANY other issue but COVID? You'd be pissed and also say that we need to work as a community to protect each other. Not just say well what am I supposed to do, WORRY about it?!
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Reading that the CDC potentially reducing isolation guidelines sounds like a good idea to some folks because "most people aren't doing it anyway" is just devastating. Are we going to stop recommending vegetables because people don't eat them anyway?
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If you're doing a New Year's Resolution, make it to be part of the solution rather than part of the problem by wearing a high quality mask (kn95, n95, p100) in all public places. If you're not masking, you're actively contributing to the oppression of disabled folks & not an ally
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Hey yall I appreciate the support a ton and don't have the energy to go through each comment and say this, so please refrain from using ableist language like idiot, stupid, crazy, insane, stuff like that.
@DEC0L0NIZE
often posts a graphic with great alternatives to those words💜
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"Well that's why!"
I don't know that I'm saying this eloquently, but we definitely get to be mad but also sometimes people are weird in a very uncomfortable way
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Wearing a mask to your polling place is one way you can quite easily make voting more accessible and safe for disabled folks today
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I'm going to continue advocating for consistent masking, but right now I'm feeling incredibly discouraged and disappointed. Modeling good behavior is so important, and we're seeing it less and less from folks who used to emphatically encourage it. People who other folks actually
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Can confirm your disabled friends are not okay right now. We haven't been, but things somehow feel even worse now
If you'd like to brighten a day, go through this thread 🌞
If you're disabled/chronically ill, reply to this tweet with your w*shl*st 💜💫
I'll start
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"Murder hobo" is one of those commonly used phrases we don't think about much but I really wish we'd phase out
It feels classist & bad, & it perpetuates a stereotype that one of our more vulnerable populations is violent
#Dnd
folks are so creative- let's find an alternative
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For example, half the TTRPG community hates me because I'm like y'all would be better if you masked. But I would NEVER see someone's post that they were sick and be like "this is why" and post a photo of them. I'd be like shit I hope you recover soon
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It's a really great day to start masking again and protecting high risk folks through your own simple actions
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Vulnerable people WORK at restaurants and bars, and often their workplaces won't allow them to mask so yes, there are vulnerable people at bars. People are often forgetting about workers
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Eeeek because I forget people don't know this- COVID can still be spread outdoors. Outdoors is going to be preferable to indoors risk wise, but it is NOT risk free by any stretch of the imagination. So if someone asks you to truly isolate b4 seeing them, outside still counts
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How can you do that? Imo
Mask in all public places-necessary or recreational
Takeout rather than eating in
Gather in small groups and test
Limit gathering
Hang out outside and distanced as much as possible
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This might be harsh, but whenever someone who is higher risk says they don't care if people around them take precautions, I'm like oh it's really sad that you don't value yourself enough to mind whether the people around you care whether you live or die or have a worsened QOL
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In case it wasn't clear, what you're doing is tone policing a marginalized, at risk group of people who are harboring incredibly valid anger, so maybe just don't
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